Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unusual Dreams, Heavy Sleep And Day Exhaustion


GReilly

Recommended Posts

GReilly Newbie

This is my first post, so far so good on the gluten free diet but I'm still getting the hang of it.

Since going gluten free two weeks ago I've had both positive and negative changes in my sleep habits (which have been one of my main concerns). Firstly I've been sleeping more deeply, however I've also been experiencing unusual dreams every night where I am getting in car accidents or being followed by people I need to kill. They're waking me up in a cold sweat and I believe leaving me to be exhaused through out the following day. Has anyone else experienced dreams similar to these? Is there anything that can be done to aleviate these (eat less of something, more of something, vit. etc?) Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



butterfl8 Rookie

I too noticed at first that I began to remember my dreams more when I went gluten free. My dreams didn't disturb me, so I just enjoyed them and went on my way, so to speak. Perhaps you will find that to be the case for you as well, as time goes on. I do take 250 mg magnesium when I go to bed, that helps me drop right off. I do wake up early, usually about 4-5 am most mornings. Then I have coffee!! Best of luck--let us know how you're doing!

-Daisy

Cranberry Newbie

I too noticed at first that I began to remember my dreams more when I went gluten free. My dreams didn't disturb me, so I just enjoyed them and went on my way, so to speak. Perhaps you will find that to be the case for you as well, as time goes on. I do take 250 mg magnesium when I go to bed, that helps me drop right off. I do wake up early, usually about 4-5 am most mornings. Then I have coffee!! Best of luck--let us know how you're doing!

-Daisy

Magnesium. Thats a good idea. I sometimes have problems dropping off but once im asleep im fine. I have always had weird dreams so I dont blame the diet for it... just my mind ;)

GReilly Newbie

Yeah, I've always had weird dream but not this consistently. It's a pain but hopefully they start to subside and just become more interesting rather than odd. Magnesium is a good idea, I'll have to try it! Thanks for the suggestions.

  • 2 months later...
MelissaBe123 Newbie

Before I started my gluten free diet, I was tired all day long. I also could never remember my dreams. And now that I have been on it for a few months, things have changed. At first, I wasn't tired at all during the day. Now, I remember my dreams and I am starting to become more tired.

Does anyone have anything like this?

conniebky Collaborator

I sleep much much better than I used to. And I awake at about 5AM. I used to have 2 beers before bed, because I was under the notion that made me sleep better. But I sleep more soundly now. And dreams....notsomuch.

frogrun Apprentice

Dreaming is good; however, excessive dreaming and/or crazy dreams might mean you are in rem rebound...meaning you were deprived for rem and are now getting too much, which can make you feel tired in the morning. I've heard of this happening while people are detoxing from gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
gfreegirlie Rookie

Before I started my gluten free diet, I was tired all day long. I also could never remember my dreams. And now that I have been on it for a few months, things have changed. At first, I wasn't tired at all during the day. Now, I remember my dreams and I am starting to become more tired.

Does anyone have anything like this?

That sounds a lot like what I am going through. I have been on the gluten free diet for a while now but I am the only one in my family with it and I am not close to anyone with it so I haven't been doing it very well; until recently I was still eating things with MSG and maltodextrin in it. I just started to learn more and become more strict with my diet. I have been having crazy dreams everynight. I forget them pretty quickly but I know they are vivid. I wake up pretty alert but then after about 2 hours I start to get sleepy again. By like 10 or 12 hours of being awake I am exhausted already. I used to get B12 shots and then I had to stop so I connected it to that, but I just didn't think the gluten free diet could cause sleeping problems.

Julz33 Newbie

That sounds a lot like what I am going through. I have been on the gluten free diet for a while now but I am the only one in my family with it and I am not close to anyone with it so I haven't been doing it very well; until recently I was still eating things with MSG and maltodextrin in it. I just started to learn more and become more strict with my diet. I have been having crazy dreams everynight. I forget them pretty quickly but I know they are vivid. I wake up pretty alert but then after about 2 hours I start to get sleepy again. By like 10 or 12 hours of being awake I am exhausted already. I used to get B12 shots and then I had to stop so I connected it to that, but I just didn't think the gluten free diet could cause sleeping problems.

I'm newly diagnosed and still learning where the gluten is hiding. I thought I had saw that MSG doesn't have gluten. Are you avoiding it because it does have it, or because you react to it aside from the gluten issue? The list of things to avoid seems to grow and grow everyday.

Thanks

  • 2 weeks later...
Aphreal Contributor

I am going through the exact same thing. I am sleeping very deep and wake up more rested now (usually... still detoxing) but my dreams are crazy. For me however, I notice this cycle when there is something big going on. I say going gluten-free is pretty big :) Wish my dreams were more pleasant but alas, they are pretty crummy. At least I can almost get through the day without having 2 naps now. That is such an improvement over just a few weeks ago where I could have slept all day and all night.

  • 4 weeks later...
starrytrekchic Apprentice

Low blood sugar could be culprit, especially if you're not replacing the carbs that have been cut from your diet.

Intense and disturbing dreams are frequently caused by low blood sugar--your brain's telling you it can't function right on the fuel it has. The disturbed sleep then leads to exhaustion during the day.

If this is the problem--it's easily solved. Eat something shortly before bed--like a piece of fruit--for several days in a row to see if it resolves.

  • 2 weeks later...
cap6 Enthusiast

I have been gluten-free for 5 months and for the past 6 weeks or so I have been having bad dreams at least once a week or more. My spouse has to wake me as I am yelping in my sleep. Usually someone chasing me & I am trying to escape. Also I am so exhausted during the day even after sleeping 9 or 10 hours. I am usually ready for bed around 4:00 - I make myself wait till 9 or so. !! The "Honey are you ready for bed" at 4 in the afternoon gets me The Look! lol

Gluten-Is-Icky Newbie

Yeah, it's been the same thing for me. Been gluten-free for over a year, but since going gluten-free I feel like I need a lot more sleep than I used to like, 8-10 hours just to function right. A couple of years ago I could go on around 6 hours a night for days at a time and be fine. Now I feel sick and super cranky when I haven't gotten enough sleep. I've been having a lot of bad dreams, especially in the last couple months. Nothing overly stressful seems to have happend so I'm not sure why.

Is there supposed to be a connection between gluten free diets and sleeping? I don't think I've run into it in my research so far..

cap6 Enthusiast

my iron was low so dr put me on supplements. After 2 months am still really tired but was supposed to be retested for iron count in 3 weeks which I haven't done. We have been traveling in our rv for the past 2 mo so have the test scheduled for as soon as we get home. Maybe the iron is still too low.

kareng Grand Master

my iron was low so dr put me on supplements. After 2 months am still really tired but was supposed to be retested for iron count in 3 weeks which I haven't done. We have been traveling in our rv for the past 2 mo so have the test scheduled for as soon as we get home. Maybe the iron is still too low.

Are you taking B12? That helps the iron work better. Also, you should take the iron without eating 1 hour before & 2 hours after. Especially - coffee, dairy, grains.

I have a B vitamin complex with vit C which also helps the iron. Just take them with lunch, not with iron.

cap6 Enthusiast

Thanks ~ will give your suggestion a try. I'm "tired" of needing 10+ hours of sleep! Don't have time. lol

kbjoseph Newbie

I too noticed at first that I began to remember my dreams more when I went gluten free. My dreams didn't disturb me, so I just enjoyed them and went on my way, so to speak. Perhaps you will find that to be the case for you as well, as time goes on. I do take 250 mg magnesium when I go to bed, that helps me drop right off. I do wake up early, usually about 4-5 am most mornings. Then I have coffee!! Best of luck--let us know how you're doing!

-Daisy

What type/brand of magnesium suppliment do you take? Can you get it at a normal pharmacy?

  • 4 weeks later...
baylissmeg Newbie

Hi

My parnter is a Coeliac and I just thought it was him. But raeding these messages about unusual dreams, maybe there is more to it.

He will often be awake 1 minute and then the next in a deep sleep, jumping his body as if the bullets are being shot into his chest. Another recurrent dream is that he is screaming at someone who is about to kill him!

He forgets about it in the morning, but at the time when i've wopen him up, we have a little chat about it, to calm him down.

Any thoughts?

meg

  • 2 weeks later...
up late Newbie

I have been gluten-free for 5 months and for the past 6 weeks or so I have been having bad dreams at least once a week or more. My spouse has to wake me as I am yelping in my sleep. Usually someone chasing me & I am trying to escape. Also I am so exhausted during the day even after sleeping 9 or 10 hours. I am usually ready for bed around 4:00 - I make myself wait till 9 or so. !! The "Honey are you ready for bed" at 4 in the afternoon gets me The Look! lol

Hi

My parnter is a Coeliac and I just thought it was him. But raeding these messages about unusual dreams, maybe there is more to it.

He will often be awake 1 minute and then the next in a deep sleep, jumping his body as if the bullets are being shot into his chest. Another recurrent dream is that he is screaming at someone who is about to kill him!

He forgets about it in the morning, but at the time when i've wopen him up, we have a little chat about it, to calm him down.

Any thoughts?

meg

I've been getting this for years, the nightmares, yelling, waking up, even sleepwalking, it's worse when I'm under stress or overtired. I got told I had PTSD :/ (combined with anxiety and odd sensations that went away gluten-free) I'm starting to think now it's not that at all.

  • 4 months later...
Melstar23 Apprentice

Since going gluten free I have been remembering my dreams much more than I used to. Mostly they are nightmares so I thought that was why they were sticking in my mind. I never thought to connect it with my diet.

waterlily- Explorer

huh with me I'm having less nightmares and remembering dreams less. I wonder why? Interesting stuff. :D

  • 2 weeks later...
RebeccaLynn Rookie

Being a total newb to gluten-free living, I am SO happy to hear that is why my sleep is so messed up! I could sleep all day & night most days. I completely bonk at about 3:00pm and have to force myself to stay awake until 8 or 9. Though lately, I have gotten into the terrible habit of coma-crashing from 4-6pm. Then I am up until 1:00 am kicking myself and waking up super groggy in the morning. Not a good combination. I have just started taking B12 & Zinc and a multivitamin. I am hoping that my sleep levels out & I can get rested.

  • 3 weeks later...
sarawr Newbie

Since going gluten free, i find it really hard to wake up! Not so much because i'm tired, but i get into such a deep sleep, i often dont hear my alarm go off, and i can easily fall back into a long sleep!

Also i can remember my dreams very clearly the next day, and they seem more vivid then they used too. Often things that have occurred from the day before get into my dreams. i remember having long conversations in my dreams that muddle me when i wake up, as to what happened in the dream and real life!

mushroom Proficient

Yes, it is often hard to figure out dreams from what actually happened. It is only when my dreams put two people together that I know would never have happened that I can say, Ahah!! a dream. But often the combinations are very interesting. My subconscious is much more creative than real life :o:lol:

sarawr Newbie

I get this even worse after drinking alcohol, i feel fairly sober until i go to sleep and then i have continued conversations with people in my dreams. so i wake up feeling muddled, drunk and confused about what happened!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.