Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting "glutened" For The First Time


GFLindsey

Recommended Posts

GFLindsey Explorer

I was glutened for the first time since going gluten-free in late January. I ate some shelled sunflower seeds that were produced in a facility with wheat products (ughh.. didn't look closely enough at the label!). Anyway, I felt nauseas the first 12 hours. Then had really bad case of D and bloating. I was so nauseas I could barely breathe and my heart was pounding for a half hour (also have a heart condition). Barely ate that whole day. The next day my lower back and gut were just sore. And today, the fourth day in, my back is still bothering me and every time I eat I feel like I could throw up. How long do your reactions typically last? I am asking on an individual basis since I know everyone reacts differently. Anyone have similar symptoms to mine? Also, can I expect to have a similar reaction in the future when I get glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

My symptoms last up to a week. The chemical reaction occurring in your body is somewhat self-sustaining, and can last up to two weeks, but some folks experience symptoms longer than that as their body recovers from the two-week long auto-immune rampage.

sandiz Apprentice

I did some baking at work on Saturday, didn't eat any and had a reaction. I had nausea Sunday barely ate and bad headache with swollen eyes. Still today Monday my tummy is "tender", feels like my IBS symptoms. Since going gluten-free the beginning of Jan, I have had reactions that only last a few days. I hear you on the reading the labels better, I am always checking. Good luck and hang in there.

Reba32 Rookie

length of time of your symptoms may depend on how much you got glutened I think! Cross contamination that might only have some flour dust on it may affect you differently than eating some actual gluten containing product. And the longer you're gluten free, I think the longer you'll notice the symptoms when it does happen.

I've noticed symptoms anywhere from 2 days to over a week.

Wolicki Enthusiast

GI symptoms, 3-4 days. Muscle pain, exhaustion and weakness, up to 2 weeks :blink:

WheatChef Apprentice

Good luck getting through it. The two times I've been glutened the problems have lasted for 3 days for simple cross contamination and 6 days from actual gluten product consumption. I'm starting to get to the point where I end up getting frustrated with certain companies for unclear labeling and end up just stop buying their products.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.