Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

19 Month Old With Chronic Diarrhea


alaynasmommy

Recommended Posts

alaynasmommy Newbie

My 19 month old daughter has had diarrhea for over 5 weeks now. Some days she goes 5-7 times. I took her to the pediatrician once weekly for the last 3 weeks. The first visit the doctor said that she had gastroentirits. The next week, she had a bowel movement while waiting for the doctor and it had blood in it. The doctor said the blood was probably from where she had so much diarrhea it had busted blood vessels in the colon. She ordered a stool culture to test for parasites, cdiff, and gardiasis. It came back normal. I took her back again and this time the doctor(different ped in the office) was very concerned about the diarrhea and her weight. She weighs 22lbs which is in the 15% for weight. She has always been a slow gainer (she weighed 7lbs 15oz at birth). The pediatrician last week referred her to a pediatric GI doctor. She goes for the appointment next week. The ped also mentioned celiac disease but she said she wanted to wait and let the GI doctor run the tests to save my baby a blood stick (she said he would probably order other labs as well). Her appetite is good some days and some days she hardly eats anything. She does drink well, so I am not concerned with dehydration at this point. She as been waking up at night having bowel movements as well. She has been very clingy and irritable--hard to get to sleep at night. She is very petite and has the ethiopian look (big tummy). She also has had a rash. It begin on her stomach and back but that has gone away and now it is on her face. Her bowel movements contain undigested food (sorry..TMI). The ped last week did give her 5 days worth of probiotics. Her bowel movements did firm up some but she is still having the diarrhea atleast 1-2 times daily. She took her last dose of the Florastor on Monday morning of this week. She had 4 bowel movements yesterday and one during the night last night. She eats all solid foods. I have taken all of her juice away 4 weeks ago. My question is does this sound like celiac disease? I really want to know what is going with my baby. Thanks...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It certainly could be, but there's no way to rule out other things that have overlapping symptoms without some variety of testing. I hope your GI appointment is soon. If you are doing any diagnostic tests, do NOT take her gluten free - it will mess up the tests. Know that tests are not as reliable in children under 2, so even if she tests negative, it may be worth trying the diet (and/or trying to identify other problem foods). You may find keeping a food diary (what she eats and any symptoms you notice (from the immediacy of a bowel movement to skin rashes to crankiness to length of sleep) helpful for yourself and the GI, particularly if you can rotate through the foods she eats so she's not eating the same things every meal.

misskatie Newbie

If she's had this since birth and she was breast fed it seems unlikely to me, but if she was on formula, and I have no idea what they put in formula, it may be a more likely possibility.

Hope you figure out the cause!

alaynasmommy Newbie

She has only had the real watery and sometimes mucousy diarrhea for 5 weeks. She was breastfed until 12 months. We started solids at 6 months. I just don't know what is wrong with her. While she was on breastmilk she did have the seedy bowel movements but since she was 12 months she has been on solid foods. I take her to GI doctor next Friday so maybe he will shed some light on this.

ravenwoodglass Mentor

She has only had the real watery and sometimes mucousy diarrhea for 5 weeks. She was breastfed until 12 months. We started solids at 6 months. I just don't know what is wrong with her. While she was on breastmilk she did have the seedy bowel movements but since she was 12 months she has been on solid foods. I take her to GI doctor next Friday so maybe he will shed some light on this.

I am glad your doctor has already run stool testing and that came back okay. She does sound a lot like she may be celiac. Hopefully the GI doctor will see her soon. I know the ped wants to spare her a 'stick' but it might be helpful to have the lab results from the test when you see the GI. Your ped may be unsure what tests to order for a full panel. That info can be found through the home page here if that should be the case. False negatives are fairly common with little ones with both blood and biopsy so after all the testing is done please do give the diet a try.

alaynasmommy Newbie

My daughter has begun having regular bowel movements for the last week. They are formed and I if I catch her before she sits down I could dump them in the toilet. I guess the probiotics that the pediatrician put her on worked. This is the first time every that she has had what I would call normal bowel movements. She is still very irratable but I think that is coming from her age and the fact the she is spoiled rotten. Her appt with Ped GI doctor is this Friday. I am thinking of cancelling since she hasn't had the diarrhea in a week. What do you think? If she in fact had celiac, the diarrhea wouldn't stop would it while still eating gluten?

nora-n Rookie

Most adults with celaic are asymptomatic (meaning they have no diarrhea) so diarreah is not even the main symptom of celiac nowadays.

Some also only have constipation as symptom.

Crankyness and being in the low percentile for weight is enough to get tested, I think.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

My daughter's ped gastro would want his own testing. Your ped saved her from an extra poke.

Celiac baby's can react to gluten in breastmilk.

There are enough reasons to keep that appointment.

  • 5 months later...
mommylovesjosie Newbie

Has anything with your daughter been resolved? My daughter is 19 months also with relentless diarrhea. All results came back negative so no bacteria or anything. Could this just be a very bad virus?

ravenwoodglass Mentor

Has anything with your daughter been resolved? My daughter is 19 months also with relentless diarrhea. All results came back negative so no bacteria or anything. Could this just be a very bad virus?

How long has she had D? Has she had an endo and testing for celiac? If she has go ahead and to a trial of the diet. If she hasn't had testing for celiac keep her on gluten until that is done. False negatives are even more common in children than in adults so when testing is done a strict trial is advised.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.