Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Weakness


masterjen

Recommended Posts

masterjen Explorer

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LB1983 Newbie

I have had Celiacs for over two years. My diet had to change dramatically!!! I lost over 80lbs in 6 months. I have always been small..so when I got fat it was a shocker! I had celiacs my entire life but the loss of my dad triggered its bad self! I had severe atrophy for months after I went on the gluten-free diet! I could't do the smallest things like walk alot or get up n down. It got better after time and you have to push yourself...but not too hard. The headaches..well...I still have them!! I'm only 26 and I've had a rough 2 years. I have headaches...stomach pains...@ times due to the gluten-free diet. It's hard!! I was in nursing when i got so sick. The celiacs threw me into hypothyroid disease, irreg. heart beat, fibromyalgia, and non-specified lupus. It stinks....

quote name='masterjen' date='22 March 2010 - 07:43 AM' timestamp='1269272614' post='600090']

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!

Fozzie Newbie

I am also one month into this diet and I also experience muscle weakness and a low grade headache with brain fog. It is improving with the dieet and two 45 min walks per day. Tomorrow I am going for acupuncture hoping that it will improve my current state of health. hang in there. :rolleyes:

Reba32 Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

i-geek Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

Those were my first impressions, too: either not enough calorie intake or a nutrient deficiency. I find that if I don't eat a big enough lunch with enough fat and protein, I get headaches and sometimes I get the shakes. For me, it's usually a blood sugar crash and resolves when I increase food intake. In fact, I'd better eat a big meal tonight since I had salad and yogurt for lunch and I've got a pounding headache now (different from a gluten migraine, but still not fun).

Reba32 Rookie

yeah, if I haven't had enough to eat I get the shakes and muscle weakness. Particularly in my legs. And then I start to feel nauseous. If I don't allow myself to get hungry, I don't get these symptoms. And fasting blood sugar tests have all come up with blood glucose in the normal range. I usually have to eat every 3 hours or so.

  • 10 months later...
hanumandrea Newbie

Hello,

youve probably resolved your issue by now, but I wanted to add for the record:

I have experienced muscle weakness for the last 3-4 years if I do not eat enough protein. Just discovered my gluten intolerance a few months ago after 3 years of infertility and early onset osteoporosis. If I do not eat protein (in adequate amounts)at lunch and dinner, I get shaky and weak for 30 minutes to hours afterward. Fortunately I do not htink this is as severe as it is for some, but possibly related to malabsorption of protein. I look forward to learning more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Freesoul999 Newbie

Hi there :) I've been gluten free for about 2 years. Please take heed! This could save you years of heart ache! Often, when people switch from wheat.. they go to corn and rice. These are no good for you, and could very well be causing you muscle weakness, as they do me. Please go to www.marksdailyapple.com and click on 'success stories'. or google Mark Sisson. on top of that I'd be getting a fructose malabsorption breath test and an igG allergy test (210 foods test). If you need help finding info, drop me a line. Good luck!

p.s. my best friend is having amazing results with this, and when I eat like this I feel on top of the world.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.