Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Obsessive Compulsive Disorder/anxiety


lakegirl410

Recommended Posts

lakegirl410 Rookie

Hi!

I'm not sure how long I've been suffering from Celiac Disease, but I've had stomach issues since high school. I also have Obsessive Compulsive Disorder/Anxiety/Depression. That's been going on since I was about three. I was wondering if there is any type of link. I know OCD/Anxiety/Depression is caused by a chemical imbalance in the brain, but it seems to me that my stomach issues got much worse at the same time that I had an emotional meltdown and had to be put on SSRIs. This was around the time I graduated from college and was forced to look for a "real" job in the "real" world. (Art History just doesn't pay the bills.) I really don't know if there could be a link, but I was wondering if anybody has any ideas.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

There is a very strong link between gluten and at the very least anxiety and depression (would have to ask someone else about the OCD). For me my chronic anxiety went away quite quickly after going gluten free.

Wolicki Enthusiast

'Before going gluten free, as I got sicker and sicker, I was on Xanax 4 times a day. That went away within days :D

glutout Rookie

'Before going gluten free, as I got sicker and sicker, I was on Xanax 4 times a day. That went away within days :D

For 7 years I have been on disability due to anxiety, and neurological problems. I have only gotten worse. Meds nor therapy helped. Recently, I was diagnosed with Celiacs. I do not know if there is a connection. I have seen a lady who says I have had so much malabsorption issues for so long that I am depleted in all the nutrients required for my brain and body to function normally. I don't know how much scientific proof there is for this , but she has me on vitamins and minerals to help. I have tried to take supplements in the past, but they never really helped. She gives me "predigested" vitamins. Everything is powder or liquid that I have to drink because otherwise, I wouldn't absorb or digest them very well. Makes sense, but the results are yet to be seen. It's only been about 2 weeks.

So, I guess there could be a connection because of the other problems contribued BY the Celiac Disease.

MRM Apprentice

i believe gluten has caused my anxiety and depression issues all my life. by week 3 of being gluten free i felt so relaxed and happy. i got glutened last week and i could tell almost immediately because the panic feeling came back very quickly.

fitbunni Newbie

wow i am so glad i read this. i just posted a Q about celiac and bipolar and im thinking they are def. related. im having such a hard time going gluten free tho. im so exhausted trying to uncover all the traps and hidden gluten EVERYWHERE. i just lost my health insurance today, though, so i am sort of happy that i may be able to treat my bpd with diet alone.

StacyA Enthusiast

OCD has more of a hereditary link than general anxiety and depression (there's also a link between OCD and tourette's in families) - in other words, if you have true OCD you were born with it.

Celiac's could probably worsen OCD, but not cause it. SSRI's generally are the best treatment for OCD. Counseling techniques and self-help don't hold a candle to SSRI's for OCD. (Some people have tried St. John's Wort - but I haven't seen it work as well as a prescribed SSRI.)

As for depression and anxiety - see how a gluten-free diet effects those. For some people, anxiety is inherited and for some people anxiety is environmentally caused and for some people it's both. The same for depression.

And fitbunni - I commented on your post about bipolar. True bipolar disorder really can't be treated by a gluten-free diet. But see my reply.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

There seems to be some link between celiac and schizophrenia. I don't know if there is any link to OCD or other disorders. Probably depression is linked. Gluten ataxia is also linked to celiac. It seems to me that celiac can definitely affect the brain. I don't think there is really any doubt about that. There are also people who put their autistic children on a Gluten-free Casein-free diet. If you search on "celiac OCD" or any other condition name you can find lots of info on possible affects.

Schizophrenia / Mental Problems and Celiac Disease

  • 2 weeks later...
kimann79 Apprentice

This is an interesting thread. I was diagnosed with OCD after my first child was born. I've had pretty bad anxiety since I was about four, but it spun out of control after having my daughter. I'm not sure if I have "true" OCD, despite what my therapist said, or I just have a bizarre form of severe anxiety. Whatever it was, it was bad.

I've noticed a reduction of anxiety since switching from Synthroid to T3/HC though for my thyroid disease.

I wonder if going gluten free would further reduce my anxiety. That would be fabulous!

BTW, every book I've read on the subject (and I've read a ton!) suggested or plainly stated that behavior therapy and exposure and response techniques were the best course of treatment for OCD. Of course, I'm not a doctor, but I am fairly obsessive when it comes to learning about my health. ;)

Mtndog Collaborator

Hi!

I'm not sure how long I've been suffering from Celiac Disease, but I've had stomach issues since high school. I also have Obsessive Compulsive Disorder/Anxiety/Depression. That's been going on since I was about three.

I am so glad I popped into this thread. Your story sounds like mine- I had stomach/depression/anxiety issues from a very young age. There is definitely a link between celiac and psych issues. I don't have "true" OCD but my GAD (generalized Anxiety Disorder) has manifested as OCD several times.

I have been gluten-free for 5 years and that has gotten MUCH better. I still need to be on meds, but I have Lyme which causes a whole host of psych symptoms. Many people on this board have reported being able to go off or reduce depression/anxiety meds after going gluten-free!

For 7 years I have been on disability due to anxiety, and neurological problems. I have only gotten worse. Meds nor therapy helped. Recently, I was diagnosed with Celiacs.

I hope you feel better soon!

You might be interested in this article- many doctors regard the gut as the second brain Celiac And The Gluten Gut-Brain Connection Seen In Reversible Abnormal SPECT Brain Scans

It says, "SPECT brain imaging of the majority of the few celiac disease patients studied reveals abnormalities that are usually most severe in the frontal areas of the brain. Improvement of these abnormalities are seen on a gluten-free diet. The frontal area of the brain is important in brain function that controls attention, impulse control, organization, and problem solving. Problems in this area of the brain result in short attention span, disorganization, procrastination, short-term memory problems, anxiety and depression."

BTW, every book I've read on the subject (and I've read a ton!) suggested or plainly stated that behavior therapy and exposure and response techniques were the best course of treatment for OCD. Of course, I'm not a doctor, but I am fairly obsessive when it comes to learning about my health. ;)

Yes- behavior therapy is crucial with true OCD but meds can help that process.

passionfruit877 Apprentice

Very interesting. I wanted to say I have much more anxiety when I get glutened as well.

  • 4 weeks later...
Looking for answers Contributor

I had OCD back to my earliest childhood memory. It was debilating throughout my childhood and teenage years. I went through therapy, tried meds, neither helped. I read a really good book on the subject that helped me control some of the symptoms througout college and early adulthood so I could eliminate the compulsions, but the obessions continued. Then (THANK GOD) I stopped eating gluten in 2006. Good news, it went away. Today, I'm happy to report that I no longer suffer from it. I would still say that my personality is Type A/somewhat obessive, but the difference is I control what I'm obsessive about. Meaning, I only get obessive about things I ENJOY thinking about and doing - like learnign about health. :) I haven't since had an negative obession or compulsion. I have a feeling you'll find the same releif. Be sure to get on a good multivitamin/multimineral. Remember, our stomachs don't absorb a lot of nutrients, and this often causes or worsens the problem. I take a liquid one twice a day that is similar to blood plasma (AKA isotonic), so it is super easy to absorb, and I take it on an empty stomach.

I somewhat agree with another poster who said it is genetic (my grandmother, mom and brother have OCD too). However, I but if they went gluten free their symptoms who clear up as well.

  • 7 years later...
Guest anonymous4698873
On 4/6/2010 at 8:31 PM, StacyA said:

OCD has more of a hereditary link than general anxiety and depression (there's also a link between OCD and tourette's in families) - in other words, if you have true OCD you were born with it.

 

Celiac's could probably worsen OCD, but not cause it. SSRI's generally are the best treatment for OCD. Counseling techniques and self-help don't hold a candle to SSRI's for OCD. (Some people have tried St. John's Wort - but I haven't seen it work as well as a prescribed SSRI.)

 

As for depression and anxiety - see how a gluten-free diet effects those. For some people, anxiety is inherited and for some people anxiety is environmentally caused and for some people it's both. The same for depression.

 

And fitbunni - I commented on your post about bipolar. True bipolar disorder really can't be treated by a gluten-free diet. But see my reply.

I didn't develop severe OCD (yes, severe. I can actually say I was diagnosed) until shortly after my grandma died when I was 12. The OCD was triggered by trauma. Sure, you could have the genes for greater likelihood of having OCD, but you're making it seem like you either 100% develop it or 100% don't. That's like saying you will develop celiac if you were born with the genes. But this isn't true because 30% of the population has the celiac genes.

Plus, OCD is an anxiety disorder. It's a form of anxiety. OCD is a means to keep control just like anorexia. Both can be triggered by upsetting life events, which is what happened to me and lots of other people. I've been living with this cruel mental disorder for 10 years - trust me, I know what I'm talking about. I have been on at least three different types of SSRIs since I was 12. None of them worked. It was a waste of time and money. It was like taking a sugar pill for months on end. The only thing that has ever worked was CBT. But that takes a lot of time and effort for a lot of people, so many give up.

OCD can definitely be environmental. It's an anxiety disorder.

knitty kitty Grand Master
On 3/1/2018 at 5:33 PM, fletcher96 said:

I didn't develop severe OCD (yes, severe. I can actually say I was diagnosed) until shortly after my grandma died when I was 12. The OCD was triggered by trauma. Sure, you could have the genes for greater likelihood of having OCD, but you're making it seem like you either 100% develop it or 100% don't. That's like saying you will develop celiac if you were born with the genes. But this isn't true because 30% of the population has the celiac genes.

Plus, OCD is an anxiety disorder. It's a form of anxiety. OCD is a means to keep control just like anorexia. Both can be triggered by upsetting life events, which is what happened to me and lots of other people. I've been living with this cruel mental disorder for 10 years - trust me, I know what I'm talking about. I have been on at least three different types of SSRIs since I was 12. None of them worked. It was a waste of time and money. It was like taking a sugar pill for months on end. The only thing that has ever worked was CBT. But that takes a lot of time and effort for a lot of people, so many give up.

OCD can definitely be environmental. It's an anxiety disorder.

Again, always check the date.  This is an old thread.  You can start your own new thread.

I have some articles that you might find interesting and helpful.  

Open Original Shared Link

Vitamin B12 deficiency can cause OCD.  

And strange behavior

Open Original Shared Link

And other deficiencies

Open Original Shared Link

And what wheat and dairy can do to your brain.

Open Original Shared Link

Open Original Shared Link

Hope these help.

 

Guest anonymous4698873
10 hours ago, knitty kitty said:

Again, always check the date.  This is an old thread.  You can start your own new thread.

I have some articles that you might find interesting and helpful.  

Open Original Shared Link

Vitamin B12 deficiency can cause OCD.  

And strange behavior

Open Original Shared Link

And other deficiencies

Open Original Shared Link

And what wheat and dairy can do to your brain.

Open Original Shared Link

Open Original Shared Link

Hope these help.

 

I got my blood checked, and everything was normal. I'm at a loss of what to do. I'm beginning to think I am really just mentally ill even though I don't think I'm depressed or psychotic, but if the doctors think I am, it must be true! (sarcasm partially intended). I'm interested in what the last two studies have to say, though. It could be just food allergies. My brother gets them, too, especially with tree nuts (anaphylaxis). He sleeps all the time and always has. It's got to be the food. Maybe not gluten but a wheat allergy? Who knows. Thank you.

knitty kitty Grand Master

Open Original Shared Link

One more on NCGS, celiac disease, and mood disorders.  

There are lots of articles out there that connect wheat and dairy allergies to mental changes.  Have you done any tests for allergies? 

I believe subclinical vitamin deficiencies may still be present.  The RDA of certain vitamins are set too low.  The level of certain vitamins in the blood isn't an accurate measure of the vitamins inside the tissues where they're  used.  Taking a B-Complex vitamin may help.  The B vitamins are water soluble and any excess will be excreted in urine.  The B vitamins all work better together.  

When you begin a low carb or gluten free diet, you are no longer getting the vitamins that gluten containing flour is required to be enriched with.  Adding a B-Complex vitamin will help ensure you get those missing vitamins while your intestines heal.  

I had a horrible time getting doctors to believe me, so I know how you feel.  I cut out gluten and dairy and nightshades.  I followed the AutoImmune Paleo Protocol and a low histamine diet.  And I began to feel better over the following months.  

http://www.thepatientceliac.com/tag/histamine-intolerance-and-celiac-disease/

Hope this helps!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    3. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

    4. - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,405
    • Most Online (within 30 mins)
      7,748

    Kbradway
    Newest Member
    Kbradway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.