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Adhd Medications


Wolicki

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Wolicki Enthusiast

Hi,

My 9 year old son was diagnosed ADHD at age 5. It has gotten progressively worse and the dosage of the meds has gotten higher. Without his meds, he can't even stay focused long enough to tie his shoes :(

He was diagnosed last fall with Celiac. He has been on a very strict diet since October, with only 3 "slip ups" during that time, when he couldn't resist candy. One of the things I was hoping was that maybe he could get off the amphetamine drugs once he went gluten free. I have not noticed any difference in his ADHD since going gluten free.

So, were any of your celiac children with ADHD able to go off their meds, or at least cut the dose after going gluten free?

Thanks a bunch

Janie


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Yup Apprentice

Hi,

Have you had him tested for a sleep disorders? I had an ADHD student who was getting tested for that.

Wolicki Enthusiast

No, no sleep disorder tests. Never even thought to do that. He doesn't have any sleep issues at all.

slee Apprentice

Hi-

My son has also has ADHD. He was gluten free prior to medication. Although the gluten free diet helped a small amount, it didn't help very much, I think he just felt better. He's now been gluten free and on medication about 2 years. He also takes medication to help him sleep, due to a suspected sleep disorder, so it's not a bad idea to at least talk to your child's doctor about that. We did recently need to change medications, because he was doing worse on the old medicine. Now he's like a different child. I was so resistant to the idea of medication for so long, but now that we've found the correct medicine for him, he's still himself, but as odd as it sounds, even more himself. It's not the ADHD getting in the way. His conference we had last week was amazing, it's made such a difference in his life. People who don't know of this change keep commenting on the changes in him lately. I can see why you would want your son off medication, but it may not be related to the celiac at all and perhaps he's not on the right medication for him yet. It's worth finding the right one, and the right doctor to help. So, I guess my answer is that the gluten free diet did not change my child's need for medication.

Wolicki Enthusiast

Thank you. We have changed meds and dosages several times. He's now taking Ritalin SR 40 mg in the am and a boost of regular Ritalin 10mg in the afternoon to get him through homework. He's actually doing beautifully on this combo. I just still really hate the idea of giving him drugs every day. I have some friends who have kids with Autism. They kept telling me that the need for meds would go away with the diet. I think they are full of beans now, LOL.

Both of my boys have ADHD, and a really bad case. The good news is that the meds work for them. I guess I just need to resign myself to the fact that they will probably be on it for a long time.

The diet has eliminated all of their tummy aches, vomiting and headaches, so in the grand scheme of things, we're all good. Thanks for your comments:)

janie

shayesmom Rookie

Thank you. We have changed meds and dosages several times. He's now taking Ritalin SR 40 mg in the am and a boost of regular Ritalin 10mg in the afternoon to get him through homework. He's actually doing beautifully on this combo. I just still really hate the idea of giving him drugs every day. I have some friends who have kids with Autism. They kept telling me that the need for meds would go away with the diet. I think they are full of beans now, LOL.

Both of my boys have ADHD, and a really bad case. The good news is that the meds work for them. I guess I just need to resign myself to the fact that they will probably be on it for a long time.

The diet has eliminated all of their tummy aches, vomiting and headaches, so in the grand scheme of things, we're all good. Thanks for your comments:)

janie

ADHD can often also be helped by avoiding certain chemicals (preservatives, food colorings, food additives). There also is often a problem with dairy. I've known of a few people who tried adding omegas and enzymes to the mix with really good results...including getting off the medications. For more info, you can check out this link and the subsequent supporting links. Open Original Shared Link

Glad to hear that things are getting better already!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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