Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

People Who Were Diagnosed And Feel Much Better


somersat

Recommended Posts

somersat Newbie

And think clearly and are not hungry all the time?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes but it did take awhile. It was about 6 months before I noticed a real difference with energy but the stomach pain and constant D ended before that happened. My tummy issues resolved within a month, with some slip ups of course gluten wise. Even after 8 years I sometimes still get glutened but now it is only about once or twice a year.

I was sleeping better almost immediately, but I had been up every night in the bathroom in agony for 5 years before that.

My thinking got clearer within a couple months. I think sublingual B12 helped a lot with that and it also seemed to help my ataxia resolve.

I hope this is helpful. We don't get celiac symptoms overnight, it is usually a process that leaves us ill for months or years before we finally are diagnosed. We don't heal overnight either. It takes some time. How much time varies with the individual, the systems under attack by the antibodies and how gluten free the person is.

freeatlast Collaborator

And think clearly and are not hungry all the time?

Thanks!

Yes, that has been my experience. I'm still ADD, but now I have "episodes" not constant forgetfulness. When I started back eating wheat/gluten for three years between August 2005-August 2008, I WAS hungry all the time, gained 20 pounds, and had gas when I least expected it and couldn't control it sometimes. THAT was embarrassing.

Now, I can go back to skipping meals and not having to have snacks between all the time and do just fine :) After I went back on gluten free in August 2008, it took longer to get better than the first time when I was younger and didn't lose weight this time either. Then, last year I went on The Zone diet, stayed gluten free, and I lost weight and it got my system back in synch.

chasbari Apprentice

Things certainly aren't perfect yet but instead of dreading going to sleep....if I could, I now sleep easily. I used to feel like I could never have enough padding on the mattress to keep me from major discomfort (in fact it felt like my body really wanted to be six feet under.) We took the mattress cushion off as I have no pressure points like I used to. The hunger has calmed down considerably although it took time and a real sense of withdrawal for months to get to the point where it became manageable. A side benefit is that my rheumatoid arthritis eased considerably as well.. to the point where I can not only walk, I can now run and sprint. My hearing and vision problems settled down and even though I lost most of my body fat and have a hard time maintaining weight I never get cold anymore. Used to be I could never stay warm. There are still rough patches but nothing like my average day used to be.. just a gentle reminder to be grateful for the good days!

CS

tarnalberry Community Regular
People Who Were Diagnosed And Feel Much Better Do you sleep well, not obsess about food, and have lots of energy? And think clearly and are not hungry all the time?

Sleep well? Eh... I have restless leg, apparently independent of but worsened by low iron stores. Even when the iron is back up, there's still come RLS. It's better on meds, but I'm off meds due to pregnancy. With the meds, I'd say I sleep pretty darn well. Without them, I'd say I sleep well enough. (With the pregnancy in 3rd trimester... HAHAHAHA! I'm lucky if I get to sleep for seven hours in a night and only wake up sore and needing to pee three times a night. So, no, not well. :P )

Obsess about food? No, but I don't think I ever did. Well, I have been a fairly careful planner for a while - between wanting to lose weight many years ago (and needing to be very cognizant of my diet) and having reactive hypoglycemia. But I plan as best is possible, change plans if needed, and don't really obsess. Can you be more specific over how you obsess over food?

Have lots of energy? Eh, I have fibromyalgia separate from celiac (developed years after going Gluten-free Casein-free) so I'd never say I have lots of energy. (And again, with the pregnancy, I'm pretty much tired or exhausted most of the time. :P Can't really remember having a full bucket of energy for a whole day in ages. :D ) But different people have different natural levels of energy, regardless of how much they WANT to be able to do. I have a friend who is fairly go-go-go and always has something happening. Maybe she is often tired, but it certainly never seems that way. I know that I would never have been able to keep up with her. And I know people have commented that it seemed like I did an awful lot in the past, always on the go, but given the sorts of things I was doing, it wasn't all that energy draining for me. I also have had low testosterone levels for years - before the celiac diagnosis - and getting THAT treated definitely helped a lot as well. (No, my thyroid levels have never come back low, and they don't come back borderline low either. We keep an eye on them, but they continue to be fine as best we can tell.)

Think clearly? (Again, this is funny while pregnant, which essentially causes you to be drugged with endorphins at much higher blood levels than normal. :) Clear minded is NOT how I'd describe myself at the moment. :D ) I think that improving my sleep had FAR FAR FAR FAR FAR more to do with "thinking clearly" than the change in diet. I can't emphasize enough how enough GOOD QUALITY sleep makes a difference. You can get plenty of crappy sleep and still feel like a zombie (which I have had, thanks to the RLS).

Not hungry all the time? I find that hormone variations through my cycle affected my hunger levels more than being gluten free or not. And stress levels from general life. What makes the most difference to me to not be HUNGRY all the time is to eat properly balanced (in fat/carbs/protein) meals, to steady blood sugar levels.

A lot of people have had the changes you're looking for, but I think it's easy to think that the gluten-free diet will clear up everything, when a lot of these things are relative and have other causes that are common in our lives.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,359
    • Most Online (within 30 mins)
      7,748

    Atlanta GF
    Newest Member
    Atlanta GF
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.