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Bout To Lose My Noggin- What Is Making This Worse?


tiredofbeingsickandtired

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tiredofbeingsickandtired Apprentice

I know its been awhile since I've been here, but its hard to type when you're scratching.

I switched to sea salt, tried to find foods without added salt...can the sea salt be making this worse.

I'm skippety allergic to everything! EVERYTHING! Bare Minerals is a no go, tried every amkeup I can find and I still break out or turn beet red. I'm having a HORRIBLE time with shampoo and conditoner. I can't use sulfites or sulfates, safflower and sunflower showed up on my skin test so they're out, but they are in so many soaps, shampoos, and lotions. I used California Baby for awhile now I react horribly. My scalp is the worst though my back, legs and arms are not great either.

I need to find a soap, facewash and lotion, shampoo and conditoner, oh and makeup that won't cause me irritation :(


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Glamour Explorer

I know its been awhile since I've been here, but its hard to type when you're scratching.

I switched to sea salt, tried to find foods without added salt...can the sea salt be making this worse.

I'm skippety allergic to everything! EVERYTHING! Bare Minerals is a no go, tried every amkeup I can find and I still break out or turn beet red. I'm having a HORRIBLE time with shampoo and conditoner. I can't use sulfites or sulfates, safflower and sunflower showed up on my skin test so they're out, but they are in so many soaps, shampoos, and lotions. I used California Baby for awhile now I react horribly. My scalp is the worst though my back, legs and arms are not great either.

I need to find a soap, facewash and lotion, shampoo and conditoner, oh and makeup that won't cause me irritation :(

I sympathize - I have been having bad attacks and don't know if I got glutened or if I even have DH. I just went off dairy a few days ago - again. I am also try to get 20-30 minutes of sunshine a day - I used to tan a little and had great skin.

As for shampoo - I switched to Dessert Essence gluten-free Coconut Shampoo in the tube. My scalp is much better and my neck base has cleared up. You can get this at most healthfood stores and whole foods. I just use this for soap (when I need soap). I just have not been using a lot of makeup or beauty products. Mascara and lipgloss.

Trying to get the diet as clean as possible and not giving up. Wheat and wheat products were making me fat. I have lost a lot of weight, and taking the advice of others and not going crazy with gluten-free baked goods. I find Udi's bread in moderation and Whole Food gluten-free bakery cheese biscuits are a good treat.

I backed off of my green juicing and it has hurt my health and I think affected the rash.

I have been using lac-hydrin but it burns and irritates the worst areas of rash. It is great for the rest of my skin. I use lubriderm free on the other areas.

  • 2 weeks later...
gabby Enthusiast

Hi,

Not sure if this will help...but I thought I'd tell you about something similar I went through 3 years ago. Everything was making me itch. I was down to using raw eggs and lemon juice with no soap to have a shower and wash my hair. But still i'd end up with a terrible horrific rash all over my arms, knees, ankles an legs. After much, much, much searching, I found out the culprit was the hot water tank in our apartment building. They use something called muric acid (not sure on the spelling of that) in the hot water tank to help keep the water pipes from getting gunky. If used properly, the muric acid should be undetectable. If they put too much in...then look out because it is very rough on skin. In our building, the guys who were supposed to be taking care of the water tank on a regular basis would instead come only once in a blue moon and then put a huge amount of muric acid in the tank. (kind of like how some people don't check the chlorine levels in their pool every day...and instead add a ton of chlorine all at once)

The building manager finally changed maintenance companies, and things got somewhat better. I eventually moved out. If you live in a house then this wouldn't be your problem. But if you are in a building...it could be making things worse for you.

Not sure if this is what is going on with you...but again thought I'd pass it on.

Guest doradomiel

I know how you feel. Believe it or not MAC Studio Fix Powder Foundation is gluten-free. They don't advertise as gluten-free, but I found out after spending 8 hours at the mall looking for gluten-free, oil-free foundation.

I don't want a matte finish all the time, so sometimes I'll mix the powder with a "safe" lotion. I just scrape some of the powder off the top with my thumbnail, pour that into my palm, and mix with my lotion until smooth and creamy. I use a lotion with a dewy finish so it won't dry out and look matte again.

Then there's this Joelle make-up they advertise on this site, but I haven't tried it yet. But it's supposed to be gluten-free.

Guest doradomiel

Lush also carries a lot of gluten free products too.

  • 2 weeks later...
Patricia27 Newbie

Hi ~ Have you cut out soy products? My husband & I are both Celiac however he cannot tolerate any soy, whatsoever. Once he cut that out, he was much better. (He had been enjoying gluten-free crackers but they contained soy)

He is on Dapsone for his rash.

I am on Diflucan since I was recently diagnosed & my yeast levels were through the roof. I am finally starting to feel better. I cheated once & paid so dearly, (or should I say harshly!) so I have become 100% gluten-free!

Best wishes to you. Let us know how you make out.

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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