Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bout To Lose My Noggin- What Is Making This Worse?

tiredofbeingsickandtired

Recommended Posts

tiredofbeingsickandtired Apprentice
tiredofbeingsickandtired
Posted

I know its been awhile since I've been here, but its hard to type when you're scratching.

I switched to sea salt, tried to find foods without added salt...can the sea salt be making this worse.

I'm skippety allergic to everything! EVERYTHING! Bare Minerals is a no go, tried every amkeup I can find and I still break out or turn beet red. I'm having a HORRIBLE time with shampoo and conditoner. I can't use sulfites or sulfates, safflower and sunflower showed up on my skin test so they're out, but they are in so many soaps, shampoos, and lotions. I used California Baby for awhile now I react horribly. My scalp is the worst though my back, legs and arms are not great either.

I need to find a soap, facewash and lotion, shampoo and conditoner, oh and makeup that won't cause me irritation :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Glamour Explorer
Glamour
Posted

I know its been awhile since I've been here, but its hard to type when you're scratching.

I switched to sea salt, tried to find foods without added salt...can the sea salt be making this worse.

I'm skippety allergic to everything! EVERYTHING! Bare Minerals is a no go, tried every amkeup I can find and I still break out or turn beet red. I'm having a HORRIBLE time with shampoo and conditoner. I can't use sulfites or sulfates, safflower and sunflower showed up on my skin test so they're out, but they are in so many soaps, shampoos, and lotions. I used California Baby for awhile now I react horribly. My scalp is the worst though my back, legs and arms are not great either.

I need to find a soap, facewash and lotion, shampoo and conditoner, oh and makeup that won't cause me irritation :(

I sympathize - I have been having bad attacks and don't know if I got glutened or if I even have DH. I just went off dairy a few days ago - again. I am also try to get 20-30 minutes of sunshine a day - I used to tan a little and had great skin.

As for shampoo - I switched to Dessert Essence gluten-free Coconut Shampoo in the tube. My scalp is much better and my neck base has cleared up. You can get this at most healthfood stores and whole foods. I just use this for soap (when I need soap). I just have not been using a lot of makeup or beauty products. Mascara and lipgloss.

Trying to get the diet as clean as possible and not giving up. Wheat and wheat products were making me fat. I have lost a lot of weight, and taking the advice of others and not going crazy with gluten-free baked goods. I find Udi's bread in moderation and Whole Food gluten-free bakery cheese biscuits are a good treat.

I backed off of my green juicing and it has hurt my health and I think affected the rash.

I have been using lac-hydrin but it burns and irritates the worst areas of rash. It is great for the rest of my skin. I use lubriderm free on the other areas.

  • 2 weeks later...
gabby Enthusiast
gabby
Posted

Hi,

Not sure if this will help...but I thought I'd tell you about something similar I went through 3 years ago. Everything was making me itch. I was down to using raw eggs and lemon juice with no soap to have a shower and wash my hair. But still i'd end up with a terrible horrific rash all over my arms, knees, ankles an legs. After much, much, much searching, I found out the culprit was the hot water tank in our apartment building. They use something called muric acid (not sure on the spelling of that) in the hot water tank to help keep the water pipes from getting gunky. If used properly, the muric acid should be undetectable. If they put too much in...then look out because it is very rough on skin. In our building, the guys who were supposed to be taking care of the water tank on a regular basis would instead come only once in a blue moon and then put a huge amount of muric acid in the tank. (kind of like how some people don't check the chlorine levels in their pool every day...and instead add a ton of chlorine all at once)

The building manager finally changed maintenance companies, and things got somewhat better. I eventually moved out. If you live in a house then this wouldn't be your problem. But if you are in a building...it could be making things worse for you.

Not sure if this is what is going on with you...but again thought I'd pass it on.

Guest doradomiel
Guest doradomiel
Posted

I know how you feel. Believe it or not MAC Studio Fix Powder Foundation is gluten-free. They don't advertise as gluten-free, but I found out after spending 8 hours at the mall looking for gluten-free, oil-free foundation.

I don't want a matte finish all the time, so sometimes I'll mix the powder with a "safe" lotion. I just scrape some of the powder off the top with my thumbnail, pour that into my palm, and mix with my lotion until smooth and creamy. I use a lotion with a dewy finish so it won't dry out and look matte again.

Then there's this Joelle make-up they advertise on this site, but I haven't tried it yet. But it's supposed to be gluten-free.

Guest doradomiel
Guest doradomiel
Posted

Lush also carries a lot of gluten free products too.

  • 2 weeks later...
Patricia27 Newbie
Patricia27
Posted

Hi ~ Have you cut out soy products? My husband & I are both Celiac however he cannot tolerate any soy, whatsoever. Once he cut that out, he was much better. (He had been enjoying gluten-free crackers but they contained soy)

He is on Dapsone for his rash.

I am on Diflucan since I was recently diagnosed & my yeast levels were through the roof. I am finally starting to feel better. I cheated once & paid so dearly, (or should I say harshly!) so I have become 100% gluten-free!

Best wishes to you. Let us know how you make out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748
    Elkay008
    Newest Member
    Elkay008
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.