Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy After 3 Months Of Gluten Free


bluebonnet

Recommended Posts

bluebonnet Explorer

my doctor wants me to have an endoscopy/colonoscopy. while i'm responding well to the gluten free diet, i told him he is doing it "backwards" that it may not be accurate ... should i start eating gluten again between now and my appt? he is checking me for other issues as well but i'm not sure if i should eat gluten again. just with a few accidents lately its taking forever to get the pains and bloating gone. i've had 2 tests done with one being positive and one being negative so that's why my doctor wants to have a "gold standard" done plus to check for a few other things that may or may not be related.

do you think i healed enough in 3 months for them not to get an accurate result for their "gold standard" biopsy? i know there is tons of inflammation and i'm really worried about whatever else they might discover. i'm so confused about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

For the best chance at a Gold Standard diagnosis you really need to be eating gluten. If the doctor is just looking for other issues then no but if he is attempting to diagnose you as celiac you must go back to a full gluten diet to get the best chance of accurate results. Even on a full gluten diet there is still a chance of a false negative on the biopsy.

GFinDC Veteran

Right, and you need to be on gluten for quite a while, maybe 2 or 3 months every day. If you had one positive test, it seems like that would be enough to settle the issue? The endoscopy seems to be a hit or miss type thing, not a guaranteed answer, even after being on gluten. The positive test results are said to be more reliable than the negatives results.

If it makes you sick though, is it really worth getting the diagnosis? Maybe you could check into Enterolab testing instead. It can show if you are making antibodies in your intestines. It's not a diagnosis either, but if you have gliaden antibodies in your intestine, then something is causing them.

bluebonnet Explorer

i really don't want to eat it again especially because its a hit or miss. maybe they will see something while they are in there checking me out but i just don't think i want to eat it if its not a guarantee. i just wasn't sure if 3 months did any great amount of healing.

thanks for the advice!! :)

WheatChef Apprentice

The gluten challenge is one of the most irresponsible aspects of medicine these days. Apparently the whole "keep my patients from harm" aspect of the Hippocratic oath doesn't apply when doctors are dealing with someone suffering from gluten problems.

If your doctor simply wants to take a look inside to see how things are going and to look for any unrelated problems then that's not that bad of an idea. If he wants you to poison yourself for a semi-useless diagnosis then that just seems like it's a bit of a selfish act on his part.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.