Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scopes Tomorrow!


dermgirl

Recommended Posts

dermgirl Rookie

Tomorrow is my day for colonoscopy and endoscopy....I waited over 2 months to see a gastro, I was forunate he has openings this week for the scopes. He is a specialist in celiac and gluten sensitivity. I am so thankful, because my other doctor has not a clue. He didn't even run the correct celiac panel. He said it was negative, to eat more bananas & take calcium. OMG! I did testing through Enterolab, I have 1 celiac gene & tested positvie for gluten sensitivity. I will be glad when Dr. Fine publishes his studies. I have been eating gluten since yesterday. Now I am saying so long to gluten....I am beginning to think it is posion for all! I cleaned my kitchen out yesterday, bags going to the homeless shelter (I worry about them too!) I have been researching recipes, trying to gear up! I have a son in college who has some of the same issues I have. He stopped eating gluten--feels so much better! I have a supportive family, so I am blessed! I have to say I am starving today, right now I am sipping on yummy chicken broth. I have to start the laxitives at 4pm...which is so funny, I have chronic diarrea. For those of you who pray, I would covet your prayers for tomorrow, I am nervous. This is my first scope. I am thankful for this forum, up until a few months ago, I could not have told you what celiac or gluten problems were about. I just keep thinking, how many people are suffering every singe day??? How many people are actually willing to change their lifestyle to feel better? I know it is worth it to me....I can't wait to start feeling better!

Blessings!

Bev


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anabananakins Explorer

Tomorrow is my day for colonoscopy and endoscopy....

Blessings!

Bev

I will be thinking of you! But don't be anxious, you will be fine :-)

Ana

AutumnSong Rookie

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

dermgirl Rookie

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

AutumnSong Rookie

Praise God! I'm thankful everything went well. Yes, God is good!

Blessings,

Elizabeth

nutralady2001 Newbie

Hi Bev I have Hashimoto's too. More than likely your tests will be positive. Both my blood tests and biopsy were positive. Let us know what happens !

Black Sheep Apprentice

Thanks for the prayers...God is good :-)

Blessings!

Bev

Ah, that He is!!! B) I just saw this, sorry I was too late to pray for you, too, but happy to hear that you survived your ordeal, and with such a great attitude! Even though going g.f. is hard (it's been 1 month for me), it's such a blessing to finally have an answer, 'ya know? I mean, I don't know if gluten is the root of all my health issues, it's way too soon to know, but---it's obviously a huge part of my problem. As soon as we can afford it, my doc is going to test for food allergies, too.

Let us know how your tests turn out!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

I am glad this went well. I was also told I had irritation in the esophagus and stomach. Personally I feel this was a reaction from the prep as I had no stomach pain previous, none after and only had pain while drinking that nasty stuff. My doc gave me a bunch of different acid blockers to try but I used Pepto the next day for the left over discomfort and didn't need anything after that. This may not be the case for you.

I am glad to hear you are going to stick with the diet and hope the biopsies show something definative.

AlysounRI Contributor

He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons.

Bev, this happened to me too.

What do you mean I have acid reflux and small ulcers in my esophagus??

How come I have never felt it??

I'm on protonix now and my doc wants me to have a repeat scope in two months to see how the little ulcers are doing.

still waiting on the results of my endopscopy and blood tests too. Next week sometime.

I'm crossing all paws for you. Just getting off the poison once and for all was such a relief!!

Good luck with everything!!

Allison

sa1937 Community Regular

Bev, I just had my endoscopy/biopsy on Fri. My GI doc diagnosed me with gastritis and duodenitis by visual examination. I need to wait 3 weeks for a follow-up appt. as he will be out of town for two weeks so I won't know the biopsy results until then, even through they'll be available in a week.

He did tell me to go gluten free until then. So here I am wondering where I stand. I do not have stomach pain, acid reflux or anything like that so the gastritis/duodenitis was a complete surprise to me.

So I don't know if I will be diagnosed with celiac or not. Nor do I know how long it will take to see if the gluten free diet will make a difference or if 3 weeks is long enough to see any results. I had a very positive celiac panel in Dec., which pretty well tells me I do have celiac regardless of biopsy results. It just seems to take so long while waiting for a referral to a GI doc and then scheduling the endoscopy. A colonoscopy is definitely in my future. I just want to get rid of the Big D.

I'm so glad everything went well for you!!! biggrin.gif

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.