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Completely Disappointed

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gary'sgirl Explorer
gary'sgirl
Posted

Thanks for the links and for sharing some of the experiences and symptoms that you all have been going through. It has been helpful!

I hope with time all problems resolve for all of us - hopefully less time rather than more. :D

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JNBunnie1 Community Regular
JNBunnie1
Posted

Ummm....you know, I'm sure it was all that pineapple upside-down cake I'd been consuming! ;)

In answer to your question--and I hope I don't get in trouble here--I'm not sure. I drink filtered water, don't use pewter plates or anything...I did however, grow up sort of between 3 military bases, and found on the EPA's site reports of the horrific poisoning of the wells in the area (we had a well) in the area. I live across a narrow bay from another base, and the same site listed at least 52 or so "known" heavy metals in the bay.

My doc said that she's getting as many of her patients as are willing to do this test, and that they all say, "How in the world could I have heavy metal poisoning?" And she tells them "Because it's in the air, the water, the ground---pretty much everywhere. Because you live on Planet Earth."

Got any metal fillings in your teeth?

Black Sheep Apprentice
Black Sheep
Posted

Oh, I'd forgotten about them. :blink: I had them replaced with the porcelain or whatever it is, about 3 1/2 years ago. But I didn't realize at the time (which was dumb) that when you do this, you're supposed to do a heavy-metal detox, at least for mercury, because removing them releases a lot of mercury. Then last year, when my doc had me do the detox, I was researching h.m. poisoning, and read about detoxing before and after the fillings come out. Believe me, I was doing the Homer Simpson "DOH!"

I'm still not sure about the lead and tungsten, unless it's from the military stuff. I could find very little on tungsten....almost everything I found said it hadn't been studied much, except in Russia. And wouldn't you know it, all the Russian sites re. the stuff were in Russian! About all I could find was that it's used a lot in military "stuff" (of course they never said what), and some interesting little articles re. leukemia clusters in Fallon, NV several years back. They tested the area and found it to be quite high in tungsten. Fallon has a Navy base, I believe.

  • 1 month later...
Coolclimates Collaborator
Coolclimates
Posted

I have almost finished Shauna "Gluten free Girl" book. It's really been a pleasure to read something about Celiac that is also uplifting and enlightening. I made her chocolate banana bread w/ teff flour from her blog the other day, it turned out awesome!

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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