Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Completely Disappointed


newgfcali

Recommended Posts

gary'sgirl Explorer

Thanks for the links and for sharing some of the experiences and symptoms that you all have been going through. It has been helpful!

I hope with time all problems resolve for all of us - hopefully less time rather than more. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 53
  • Created
  • Last Reply
JNBunnie1 Community Regular

Ummm....you know, I'm sure it was all that pineapple upside-down cake I'd been consuming! ;)

In answer to your question--and I hope I don't get in trouble here--I'm not sure. I drink filtered water, don't use pewter plates or anything...I did however, grow up sort of between 3 military bases, and found on the EPA's site reports of the horrific poisoning of the wells in the area (we had a well) in the area. I live across a narrow bay from another base, and the same site listed at least 52 or so "known" heavy metals in the bay.

My doc said that she's getting as many of her patients as are willing to do this test, and that they all say, "How in the world could I have heavy metal poisoning?" And she tells them "Because it's in the air, the water, the ground---pretty much everywhere. Because you live on Planet Earth."

Got any metal fillings in your teeth?

Black Sheep Apprentice

Oh, I'd forgotten about them. :blink: I had them replaced with the porcelain or whatever it is, about 3 1/2 years ago. But I didn't realize at the time (which was dumb) that when you do this, you're supposed to do a heavy-metal detox, at least for mercury, because removing them releases a lot of mercury. Then last year, when my doc had me do the detox, I was researching h.m. poisoning, and read about detoxing before and after the fillings come out. Believe me, I was doing the Homer Simpson "DOH!"

I'm still not sure about the lead and tungsten, unless it's from the military stuff. I could find very little on tungsten....almost everything I found said it hadn't been studied much, except in Russia. And wouldn't you know it, all the Russian sites re. the stuff were in Russian! About all I could find was that it's used a lot in military "stuff" (of course they never said what), and some interesting little articles re. leukemia clusters in Fallon, NV several years back. They tested the area and found it to be quite high in tungsten. Fallon has a Navy base, I believe.

  • 1 month later...
Coolclimates Collaborator

I have almost finished Shauna "Gluten free Girl" book. It's really been a pleasure to read something about Celiac that is also uplifting and enlightening. I made her chocolate banana bread w/ teff flour from her blog the other day, it turned out awesome!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,852
    • Most Online (within 30 mins)
      7,748

    Maud
    Newest Member
    Maud
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.