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How Does A Dh Outbreak Progress?


Terrified Mom

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Terrified Mom Newbie

My son has had a rash pop up on his thighs and belly over the last couple of months. It started off looking like tiny whiteheads, TONS of them over his thighs. Now there are 7-8 plaque like lesions on his thighs, and 3 on his belly. It does look like many of the psoriasis pictures I've seen (although my brother was dx'd with psoriasis 20 years ago and it looks nothing like his), but I'm partially hoping my son has DH. Wouldn't be surprised if my brother's was that, too, looking at online images of DH. I was losing hope that my son has DH until I saw several posts here mentioning the small white head like bumps. Does my son's progression sound right? I'll try to post a picture of what it looks like now when I get home in a couple of hours.

Thanks in advance!

ETA: I should note that it doesn't seem to itch, but he says it does hurt.


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Terrified Mom Newbie

legs2.webp

That's his spots from a few days ago. When I picked him up today they were nowhere near as red and it looks as if someone painted clear nail polish over them. Very shiny and slightly sticky feeling. Nanny thinks it's ringworm, but I would think the ped would have caught that 2 weeks ago.

lovegrov Collaborator

Doesn't sound or look like DH to me. I had it for 20 years.

richard

mushroom Proficient

I must say that the scaly plaque on his right leg (left as you look at the picture) looks a great deal like a psoriasis plaque. Did they do a punch biopsy of one of the scales to make the psoriasis diagnosis?

Terrified Mom Newbie

They haven't done anything to test his rash, the pedi just looked at it and said psoriasis. She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding. A friend of mine whose daughter has been dx'd with celiac said his rash looks just like her DDs, and it always flares up after she's glutened by her grandparents.

Why does this all have to be so confusing?

Terrified Mom Newbie

BTW... here is a closeup of the two spots on his right leg...

legs3.webp

mushroom Proficient

She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding.

My psosriasis has never bled :blink: and believe me I have scratched at it plenty. The closeup shows more discrete white bumps rather than scales. I think he should see a dermatologist for eval.


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  • 2 weeks later...
Terrified Mom Newbie

We go to the derm on May 20 and the gluten-free trial has been canceled. I posted on the pre-dx board about what his rash has done, but wanted to post it here, too, with updated pictures.

The above picture was taken April 2nd. we went gluten-free around that time and I was using Psorzema on his rash. It was improving. As of April 20 most of the redness was gone, except for right after his bath. It was slowly fading away.

His father took him on the 20th for a second opinion. This ped said Ringworm. (Yes, I know, it looks NOTHING like ringworm, because it ISN'T!!!) He rx'd an antifungal. I've been using it, more to prove them wrong than anything and anticipate seeing the derm as scheduled on the 20th.

Now, after a week of using the antifungal AND putting Michael back on gluten...

legs1b.webp

legs2b.webp

legs3b.webp

Here's the April 2nd picture again just for easy comparison without as much scrolling...

legs2.webp

WAY worse. :(

andiewilson10 Newbie

some of those red welts without the white in the middle is what my DH looked like on my elbows and under arms before i was diagnosed. i was on steriod cream, anti fungal, everything other than a gluten-free diet. i think the anti fungal might have made it worse... who knows. get it biopsied and see. make sure they take a chuck of normal looking skin RIGHT next to the rash for a DH diagnosis.

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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