Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Does A Dh Outbreak Progress?

Terrified Mom

Recommended Posts

Terrified Mom Newbie
Terrified Mom
Posted

My son has had a rash pop up on his thighs and belly over the last couple of months. It started off looking like tiny whiteheads, TONS of them over his thighs. Now there are 7-8 plaque like lesions on his thighs, and 3 on his belly. It does look like many of the psoriasis pictures I've seen (although my brother was dx'd with psoriasis 20 years ago and it looks nothing like his), but I'm partially hoping my son has DH. Wouldn't be surprised if my brother's was that, too, looking at online images of DH. I was losing hope that my son has DH until I saw several posts here mentioning the small white head like bumps. Does my son's progression sound right? I'll try to post a picture of what it looks like now when I get home in a couple of hours.

Thanks in advance!

ETA: I should note that it doesn't seem to itch, but he says it does hurt.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Terrified Mom Newbie
Terrified Mom
Posted
  • Author

legs2.webp

That's his spots from a few days ago. When I picked him up today they were nowhere near as red and it looks as if someone painted clear nail polish over them. Very shiny and slightly sticky feeling. Nanny thinks it's ringworm, but I would think the ped would have caught that 2 weeks ago.

lovegrov Collaborator
lovegrov
Posted

Doesn't sound or look like DH to me. I had it for 20 years.

richard

mushroom Proficient
mushroom
Posted

I must say that the scaly plaque on his right leg (left as you look at the picture) looks a great deal like a psoriasis plaque. Did they do a punch biopsy of one of the scales to make the psoriasis diagnosis?

Terrified Mom Newbie
Terrified Mom
Posted
  • Author

They haven't done anything to test his rash, the pedi just looked at it and said psoriasis. She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding. A friend of mine whose daughter has been dx'd with celiac said his rash looks just like her DDs, and it always flares up after she's glutened by her grandparents.

Why does this all have to be so confusing?

Terrified Mom Newbie
Terrified Mom
Posted
  • Author

BTW... here is a closeup of the two spots on his right leg...

legs3.webp

mushroom Proficient
mushroom
Posted

She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding.

My psosriasis has never bled :blink: and believe me I have scratched at it plenty. The closeup shows more discrete white bumps rather than scales. I think he should see a dermatologist for eval.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
Terrified Mom Newbie
Terrified Mom
Posted
  • Author

We go to the derm on May 20 and the gluten-free trial has been canceled. I posted on the pre-dx board about what his rash has done, but wanted to post it here, too, with updated pictures.

The above picture was taken April 2nd. we went gluten-free around that time and I was using Psorzema on his rash. It was improving. As of April 20 most of the redness was gone, except for right after his bath. It was slowly fading away.

His father took him on the 20th for a second opinion. This ped said Ringworm. (Yes, I know, it looks NOTHING like ringworm, because it ISN'T!!!) He rx'd an antifungal. I've been using it, more to prove them wrong than anything and anticipate seeing the derm as scheduled on the 20th.

Now, after a week of using the antifungal AND putting Michael back on gluten...

legs1b.webp

legs2b.webp

legs3b.webp

Here's the April 2nd picture again just for easy comparison without as much scrolling...

legs2.webp

WAY worse. :(

andiewilson10 Newbie
andiewilson10
Posted

some of those red welts without the white in the middle is what my DH looked like on my elbows and under arms before i was diagnosed. i was on steriod cream, anti fungal, everything other than a gluten-free diet. i think the anti fungal might have made it worse... who knows. get it biopsied and see. make sure they take a chuck of normal looking skin RIGHT next to the rash for a DH diagnosis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748
    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.