Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Does A Dh Outbreak Progress?


Terrified Mom

Recommended Posts

Terrified Mom Newbie

My son has had a rash pop up on his thighs and belly over the last couple of months. It started off looking like tiny whiteheads, TONS of them over his thighs. Now there are 7-8 plaque like lesions on his thighs, and 3 on his belly. It does look like many of the psoriasis pictures I've seen (although my brother was dx'd with psoriasis 20 years ago and it looks nothing like his), but I'm partially hoping my son has DH. Wouldn't be surprised if my brother's was that, too, looking at online images of DH. I was losing hope that my son has DH until I saw several posts here mentioning the small white head like bumps. Does my son's progression sound right? I'll try to post a picture of what it looks like now when I get home in a couple of hours.

Thanks in advance!

ETA: I should note that it doesn't seem to itch, but he says it does hurt.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Terrified Mom Newbie

legs2.webp

That's his spots from a few days ago. When I picked him up today they were nowhere near as red and it looks as if someone painted clear nail polish over them. Very shiny and slightly sticky feeling. Nanny thinks it's ringworm, but I would think the ped would have caught that 2 weeks ago.

lovegrov Collaborator

Doesn't sound or look like DH to me. I had it for 20 years.

richard

mushroom Proficient

I must say that the scaly plaque on his right leg (left as you look at the picture) looks a great deal like a psoriasis plaque. Did they do a punch biopsy of one of the scales to make the psoriasis diagnosis?

Terrified Mom Newbie

They haven't done anything to test his rash, the pedi just looked at it and said psoriasis. She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding. A friend of mine whose daughter has been dx'd with celiac said his rash looks just like her DDs, and it always flares up after she's glutened by her grandparents.

Why does this all have to be so confusing?

Terrified Mom Newbie

BTW... here is a closeup of the two spots on his right leg...

legs3.webp

mushroom Proficient

She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding.

My psosriasis has never bled :blink: and believe me I have scratched at it plenty. The closeup shows more discrete white bumps rather than scales. I think he should see a dermatologist for eval.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Terrified Mom Newbie

We go to the derm on May 20 and the gluten-free trial has been canceled. I posted on the pre-dx board about what his rash has done, but wanted to post it here, too, with updated pictures.

The above picture was taken April 2nd. we went gluten-free around that time and I was using Psorzema on his rash. It was improving. As of April 20 most of the redness was gone, except for right after his bath. It was slowly fading away.

His father took him on the 20th for a second opinion. This ped said Ringworm. (Yes, I know, it looks NOTHING like ringworm, because it ISN'T!!!) He rx'd an antifungal. I've been using it, more to prove them wrong than anything and anticipate seeing the derm as scheduled on the 20th.

Now, after a week of using the antifungal AND putting Michael back on gluten...

legs1b.webp

legs2b.webp

legs3b.webp

Here's the April 2nd picture again just for easy comparison without as much scrolling...

legs2.webp

WAY worse. :(

andiewilson10 Newbie

some of those red welts without the white in the middle is what my DH looked like on my elbows and under arms before i was diagnosed. i was on steriod cream, anti fungal, everything other than a gluten-free diet. i think the anti fungal might have made it worse... who knows. get it biopsied and see. make sure they take a chuck of normal looking skin RIGHT next to the rash for a DH diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 posted a topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,250
    • Most Online (within 30 mins)
      7,748

    goody33
    Newest Member
    goody33
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.