Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Does A Dh Outbreak Progress?


Terrified Mom

Recommended Posts

Terrified Mom Newbie

My son has had a rash pop up on his thighs and belly over the last couple of months. It started off looking like tiny whiteheads, TONS of them over his thighs. Now there are 7-8 plaque like lesions on his thighs, and 3 on his belly. It does look like many of the psoriasis pictures I've seen (although my brother was dx'd with psoriasis 20 years ago and it looks nothing like his), but I'm partially hoping my son has DH. Wouldn't be surprised if my brother's was that, too, looking at online images of DH. I was losing hope that my son has DH until I saw several posts here mentioning the small white head like bumps. Does my son's progression sound right? I'll try to post a picture of what it looks like now when I get home in a couple of hours.

Thanks in advance!

ETA: I should note that it doesn't seem to itch, but he says it does hurt.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Terrified Mom Newbie

legs2.webp

That's his spots from a few days ago. When I picked him up today they were nowhere near as red and it looks as if someone painted clear nail polish over them. Very shiny and slightly sticky feeling. Nanny thinks it's ringworm, but I would think the ped would have caught that 2 weeks ago.

lovegrov Collaborator

Doesn't sound or look like DH to me. I had it for 20 years.

richard

mushroom Proficient

I must say that the scaly plaque on his right leg (left as you look at the picture) looks a great deal like a psoriasis plaque. Did they do a punch biopsy of one of the scales to make the psoriasis diagnosis?

Terrified Mom Newbie

They haven't done anything to test his rash, the pedi just looked at it and said psoriasis. She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding. A friend of mine whose daughter has been dx'd with celiac said his rash looks just like her DDs, and it always flares up after she's glutened by her grandparents.

Why does this all have to be so confusing?

Terrified Mom Newbie

BTW... here is a closeup of the two spots on his right leg...

legs3.webp

mushroom Proficient

She said she could distinguish it from eczema by scratching at it, psoriasis would bleed, but she didn't want to do that to him. Well, I have, and no bleeding.

My psosriasis has never bled :blink: and believe me I have scratched at it plenty. The closeup shows more discrete white bumps rather than scales. I think he should see a dermatologist for eval.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Terrified Mom Newbie

We go to the derm on May 20 and the gluten-free trial has been canceled. I posted on the pre-dx board about what his rash has done, but wanted to post it here, too, with updated pictures.

The above picture was taken April 2nd. we went gluten-free around that time and I was using Psorzema on his rash. It was improving. As of April 20 most of the redness was gone, except for right after his bath. It was slowly fading away.

His father took him on the 20th for a second opinion. This ped said Ringworm. (Yes, I know, it looks NOTHING like ringworm, because it ISN'T!!!) He rx'd an antifungal. I've been using it, more to prove them wrong than anything and anticipate seeing the derm as scheduled on the 20th.

Now, after a week of using the antifungal AND putting Michael back on gluten...

legs1b.webp

legs2b.webp

legs3b.webp

Here's the April 2nd picture again just for easy comparison without as much scrolling...

legs2.webp

WAY worse. :(

andiewilson10 Newbie

some of those red welts without the white in the middle is what my DH looked like on my elbows and under arms before i was diagnosed. i was on steriod cream, anti fungal, everything other than a gluten-free diet. i think the anti fungal might have made it worse... who knows. get it biopsied and see. make sure they take a chuck of normal looking skin RIGHT next to the rash for a DH diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,375
    • Most Online (within 30 mins)
      7,748

    Sher Lee
    Newest Member
    Sher Lee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.