Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

9 Month Deployment


K8ling

Recommended Posts

K8ling Enthusiast

Hey guys. My husband just found out that he will be (possibly) going on a 9 month deployment, leaving me to fend for myself. My biggest fear is I will get glutenated (BAD) and have no one here to help me with my 18 month old little boy. Any tips for dealing with this alone? I'm pretty freaked out right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bobbijo6681 Apprentice

My best suggestion is to take it one day at a time. Do your best to take care of yourself and your little one and hope for the best. Hopefully he won't have to go(fingers crossed for your family) but if he does just do the best that you can. Line up a few people that you can call for help in a crisis and just do your best. I know you are kinda new to this whole things so hopefully by the time he is ready to leave you will have a better grasp on the diet and will feel much more comfortable than you do now.

Again...remember BREATHE!!! And take one day at a time. Hope for the best, plan for the worst and see where you end up.

jenngolightly Contributor

The fear of getting glutened subsides after awhile. What's great about being alone is that you can live in a strict, gluten-free household - that way, your chances of getting sick are greatly reduced. Next, figure out some safe meals and stick to them. Rice and chicken? Rice and hamburgers? Rice and ... Your baby can eat gluten-free food. You'll be fine.

Don't eat out. At least until you get the hang of this diet and are confident in yourself enough to demand for gluten-free meals. That took me a long time. I was a mouse when I went out to eat. I just asked for things that I thought might be gluten-free without making a big fuss about it. Now, I am demanding and assertive. I'm paying for it, it should be safe!

Don't eat at relative's houses unless they too have celiac. Relatives can mean well, but they don't have gluten-free cookware. They have wooden spoons, Teflon pans, plastic colanders, etc. Their gluten-free meals are cross contaminated even though they meant well. Bring your own food. Make it a pot-luck. Don't hide in your house, just bring food everywhere you go. If you have sensitive friends and family, they will understand (make sure they know ahead of time that you'll be contributing to the meal). If you have insensitive friends and family, get new friends. :-)

My husband went on deployment in Kuwait in the first gulf war. I know how worried I was. This fear of yours about gluten may be worsened by the worry for your husband... but this won't be very hard. You'll get the hang of it soon.

Good luck.

K8ling Enthusiast

The fear of getting glutened subsides after awhile. What's great about being alone is that you can live in a strict, gluten-free household - that way, your chances of getting sick are greatly reduced. Next, figure out some safe meals and stick to them. Rice and chicken? Rice and hamburgers? Rice and ... Your baby can eat gluten-free food. You'll be fine.

Don't eat out. At least until you get the hang of this diet and are confident in yourself enough to demand for gluten-free meals. That took me a long time. I was a mouse when I went out to eat. I just asked for things that I thought might be gluten-free without making a big fuss about it. Now, I am demanding and assertive. I'm paying for it, it should be safe!

Don't eat at relative's houses unless they too have celiac. Relatives can mean well, but they don't have gluten-free cookware. They have wooden spoons, Teflon pans, plastic colanders, etc. Their gluten-free meals are cross contaminated even though they meant well. Bring your own food. Make it a pot-luck. Don't hide in your house, just bring food everywhere you go. If you have sensitive friends and family, they will understand (make sure they know ahead of time that you'll be contributing to the meal). If you have insensitive friends and family, get new friends. :-)

My husband went on deployment in Kuwait in the first gulf war. I know how worried I was. This fear of yours about gluten may be worsened by the worry for your husband... but this won't be very hard. You'll get the hang of it soon.

Good luck.

Thanks for the advice. I am so afraid to eat out right now anyway...this will be my 7th deployment but the longest I have ever had to go through. I'm VERY overwhelmed....hopefully he won't have to go (wishful thinking).

Right now we are strictly gluten free, with the exception of the deployment "sick box" for the baby which has a few cans of chicken noodle soup and crackers in it. The fridge and freezer, as well as both cabinets got cleared out when my husband found out I was allergic to gluten.

I am lucky too that my grandmother is allergic to gluten and I have some very supportive friends who's husbands are also in the same unit, so I won't be totally alone :).

sa1937 Community Regular

If your hubby gets deployed, do you plan to stay within the military community or "go home" wherever that will be? Military wives have a real camaraderie and take care of their own. I experienced that when my then husband went to VietNam and I stayed in Lawton, OK instead of heading home to Minneapolis. I think that made all the difference in the world to have a closely knit group of friends who shared so many experiences during that year.

Of course, this really has nothing to do with a gluten free diet but if you get together and bring your own food, I think it'll be manageable...not easy, just manageable. And you could have strict control over your gluten free kitchen.

Wishing you the best!!! biggrin.gif

ravenwoodglass Mentor

I know your worried about it but you would really be surprised what we can do when we have to as Moms. You've gotten some great advice already so I don't have too much to add other than to say that things do get easier with time. It sounds like your doing all the right things. As a former military wife myself I know that you likely have a lot of support available if you need it. In a real pinch if you do get glutened and get very, very ill call the chaplins office if your new on base and don't know anyone yet. They could be helpful.

K8ling Enthusiast

Thanks, guys. I DO stay here (we own a house and I am in grad school- plus I'd probably strangle myself if I had to live with my parents again lol). I have some very good friends, unfortunately some of the wives are very catty and obnoxious. I try not to be around them very much. I go to the spouse functions, but aside from my very good friends I don't trust the rest of them not to flour me on purpose. You'd think we'd be closer but...nope...

Anyway, things are looking up, now we just play the waiting game. Thanks for all the support, and the chaplain idea, I never thought of that!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



modiddly16 Enthusiast

Don't take any unnecessary risks by eating out if you're really concerned. I rarely eat out as is...even if a place is "gluten-free friendly", I still tend to be a skeptic and I'm 7 years (close) gluten free. There are some days that if I'm traveling or something that I refuse to eat at all...which obviously I don't recommend haha. Just be careful....maybe take on a new hobby of cooking and see if you can become a mini Paula Dean by the time your husband gets back!! Just try to cut back on the butter...Paula loves her butter :P

K8ling Enthusiast

Don't take any unnecessary risks by eating out if you're really concerned. I rarely eat out as is...even if a place is "gluten-free friendly", I still tend to be a skeptic and I'm 7 years (close) gluten free. There are some days that if I'm traveling or something that I refuse to eat at all...which obviously I don't recommend haha. Just be careful....maybe take on a new hobby of cooking and see if you can become a mini Paula Dean by the time your husband gets back!! Just try to cut back on the butter...Paula loves her butter :P

EVERYTHING is better with butter :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      37

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    4. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,361
    • Most Online (within 30 mins)
      7,748

    Julie Mitchell
    Newest Member
    Julie Mitchell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.