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Gi Just Not Getting Better


jasonD2

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Roda Rising Star

well ill try rotating out brown rice for a few days..what can i eat in its place? white rice?

Have you tried wild rice, buckwheat, millet, teff or amaranth? I have only tried the first three in whole grain form and all in flour. Millett makes a great substitute for rice.


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Dace Rookie

Quinoa needs to be soaked for 24 hours prior to cooking, or it can cause digestion problems.

Is anything on your list new? or is there anything that you have recently increased the volume of?

I was sick for nearly two weeks before I figured out that it was the broccoli I was putting in my morning smoothie. I am not a broccoli fan, but I know it is good for you, so I started adding it into my morning smoothie. I got up to 1 cup and it took be a while of playing detective to figure out the broccoli was making me sick!

dilettantesteph Collaborator

It can be very strange which things can make you sick. This last winter I switched to store tomatoes from the farmers market tomatoes. Gradually all my symptoms crept up on me. I couldn't get away from the bathroom. When I stopped eating the tomatoes I got better. I had been eating three different kinds, all organic. I added them back in one at a time. Two of them I could eat just fine, and one I couldn't. The companies from the ones I could eat e-mailed me that they did not use produce coatings. The company from the tomatoes that I couldn't eat did not respond to my e-mail asking about coatings. I don't know what it was that made me sick, but I'm staying away from that companies tomatoes, organic or not.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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