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Gi Just Not Getting Better


jasonD2

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Roda Rising Star

well ill try rotating out brown rice for a few days..what can i eat in its place? white rice?

Have you tried wild rice, buckwheat, millet, teff or amaranth? I have only tried the first three in whole grain form and all in flour. Millett makes a great substitute for rice.


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Dace Rookie

Quinoa needs to be soaked for 24 hours prior to cooking, or it can cause digestion problems.

Is anything on your list new? or is there anything that you have recently increased the volume of?

I was sick for nearly two weeks before I figured out that it was the broccoli I was putting in my morning smoothie. I am not a broccoli fan, but I know it is good for you, so I started adding it into my morning smoothie. I got up to 1 cup and it took be a while of playing detective to figure out the broccoli was making me sick!

dilettantesteph Collaborator

It can be very strange which things can make you sick. This last winter I switched to store tomatoes from the farmers market tomatoes. Gradually all my symptoms crept up on me. I couldn't get away from the bathroom. When I stopped eating the tomatoes I got better. I had been eating three different kinds, all organic. I added them back in one at a time. Two of them I could eat just fine, and one I couldn't. The companies from the ones I could eat e-mailed me that they did not use produce coatings. The company from the tomatoes that I couldn't eat did not respond to my e-mail asking about coatings. I don't know what it was that made me sick, but I'm staying away from that companies tomatoes, organic or not.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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