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I Hate Feeling Like I Am Crazy....


tictax707

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tictax707 Apprentice

Ok all, there is a food somewhere in my diet that is irritating me. I can't be sure if it is gluten, because as we all know there are a host of other intolerances out there, of which I have a few. But I get really frustrated at times like this when something I am eating is CLEARLY irritating my system and I can't figure out what it is. I have been slowly eliminating certain suspect foods over the past few days, and instead of getting better, I am getting worse. So clearly the culprit is still in there somewhere. Tomorrow I am putting the brakes on this whole process and going back to my rice cereal and meal supplement to give myself a chance to rest and slowly add back in basic foods.

I hate this mentality that I get in where I start suspecting everything I eat all over again. I am really truly careful about this diet, I make all my own food, and don't often eat out, much less eat things that contain ingredient lists. It's like this crazy form or paranoia or dementia where I don't feel safe and I don't know where the enemy is hiding and it really stresses me out. I am also stressed about getting sick because I have a race (triathlon) this coming weekend. We have to swim off Alcatraz island to the mainland, and while I am properly freaked out about that, I can't have my strength sapped by some sneaky ingredient!!! This race is too important to me!

I am scared of being sick and confused about the offending food and frustrated with this whole process. I realize I am not looking for help finding the offending food - I am looking for help battling these mental states that come on when we start to feel sick or threatened. :( (where's the emoticon that's actually crying?!)


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mushroom Proficient

I know, it really stinks to have to feel paranoid about everything you put in your mouth :o Don't let it get you down!. I think your plan following the race is a good one - go back to basics and start again, one by one. It's really the only way to be sure. Good luck with the race :) Hope you swim at high tide!!

tictax707 Apprentice

Thanks for the well wishes, mushroom. Just having someone tell me I am doing the right thing helps. :) Today saw some improvements over yesterday. One good thing about going back to the basics is that the fear and paranoia go away because I really do trust my baby food & meal replacement! Emotionally, that makes quite a difference. After one more day of rest I will be hopefully ready for real food again. (just in time!)

PS - I checked the tides too! They should be in our favor... :D

Skylark Collaborator

I don't know about you, but eating gluten actually makes me depressed and anxious. When I get glutened I don't only have to cope with the frustration, but also a physical anxiety reaction caused by the gluten itself. I wonder if you have something similar going on? I know the feeling of returning to "safe" foods. I've been eating home cooked food all week after getting glutened Sunday.

Good luck in your race!

butterfl8 Rookie

Banana's? They are good too, right? I can sympathize with how you feel. I know soy is a total problem for me, but I keep thinking there's something else that is keeping me from being 100%. Or what I think 100% should be? Should I cut out x, y, z? AHHHHH!!! You can do this! And you are much stronger than I am, being willing to search to find the culprit. I will probably wait until I actually feel really bad, not just 'not good.'

Here's hoping the support helps--

-Daisy

tictax707 Apprentice

the support really does help, and I am so grateful! And I DO get real depression/anxiety with these incidents... I can feel this whole mental/physical circuit that gets activated and it seriously adds to the downer of it all. Blech - hopefully tomorrow will be the end of this dip, but my system sure does seem to be taking its sweet time... <_<

BethM55 Enthusiast

I hear ya'. I'm finally realizing that when I'm moody and irritable, it's likely I've been glutened. Of course, there's PMS, family, etc, etc, but I'm thinking that when I get that really out of control, out of body, wanting to bite someone's head off irritability and depression and despair, gluten could easily be the culprit. Sigh. It's more complicated than I ever thought. :blink:


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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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