Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Starch?


foodiegurl

Recommended Posts

foodiegurl Collaborator

I was wondering what your thoughts were on wheat starch? I know I have read that in the US it is not as 'cleaned" and pure and not safe to consider gluten-free. But in Europe that have more "pure wheat starch, and I know of some Scandinavian companies that put it in the gluten-free breads, cakes, cookies. And apparently that is considered gluten-free there.

Would you eat a gluten-free product from a European country? Or is the word 'wheat' enough to turn you off? Just curious.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I personally don't eat anything with wheat on the label unless it has "buck" in front of it :lol: Codex wheat starch is supposed to be safe for celiacs, but not for all celiacs. Our member Irish DaveyBoy cannot eat it. It depends on your level of sensitivity.

YoloGx Rookie

I agree. I doubt I could handle it given how sensitive I am; however there are others who aren't as sensitive. Here in the States for instance distilled whiskey is considered safe for many celiacs--but I reacted badly repeatedly just from kissing an ex boyfriend who drank it. I also ate some "Glutino" cookies from Canada that are supposed to be gluten-free--and I was down for a day with a migraine, as was my new celiac boyfriend.

Bea

mamaw Community Regular

I think the company you are referring to is Toro. They used to be sold in the US but recently close shop in the US. The rule of thumb is under 20ppm's....with that said I did eat the Toro mixes because I was sent samples a few years back. They were good & I had no outward symptoms... optive word here is : outward.....

For me I wouldn't run out & buy these products when I can get great taste without any wheat starch....

Just my thoughts.blessings

mamaw

Takala Enthusiast

I wouldn't touch it.

There is no reason to put a product deliberately derived from wheat into any food or medication products I consume, no matter what assurances I was given that it was supposedly "safe."

I have read of way too many anecdotes of people getting sick from these products.

It's already a minefield just trying to deal with the cross contamination issues of other supposedly "gluten free" items and then afterwards you find out by research that surprise, the facility is not gluten free or the manufacturer doesn't "get" it- witness the big uproar over when a famous American pretzel manufacturer, which is going to introduce a line of "gluten free" pretzels soon, revealed himself in an interview to be a clueless idiot on why manufacturing the wheat pretzels in the same facility put people at risk of illness. (and who was really taken to task by other gluten free and celiac blogs.)

foodiegurl Collaborator

I was actually not singling out Toro, but some other brands there that are currently just over there, but had a friend who wanted to send me some, but was worried about trying it. The last thing I want to do it make myself sick, yet these are companies who only make gluten-free food. So am I wondering..is the wheat starch safe in them, if all celiacs in Sweden, Norway, etc..eats this stuff....or are we still damaging ourselves inside?

ravenwoodglass Mentor

So am I wondering..is the wheat starch safe in them, if all celiacs in Sweden, Norway, etc..eats this stuff....or are we still damaging ourselves inside?

Not all celiacs in those countries consume wheat starch. As you have seen many of us here wouldn't chance it. I wouldn't either.

You might want to ask in the International section, perhaps some folks there can give an opinion on whether they consume it or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Are Glutino cookies made by "Toro"?

I just looked it up and didn't see a reference to it--either as Toro or having wheat of any sort. What they do have however are "Natural Flavors" which can be, as you all know, created by using alcohol as an extraction method. It may be they used distilled grain alcohol, but that still gets me...

Nevertheless the Glutino cookie effect only lasted a day for me, ditto with my boyfriend--so the effect wasn't as severe as some things... However I still plan to stay away from their products.

Lycopene Rookie

The WORD wheat scares me. There's no way I'd ever eat anything like that no matter what assurances I had stating that it was safe. If it's made from wheat, I'm not eating it. No thank you. :P I hate feeling sick, and I get bloated and gassy for WEEKS if I get glutened. So annoying.

Korwyn Explorer

Foodiegirl, this is not directed at you or your post, but at an attitude I seem to keep encountering even in people who have been diagnosed and living with celiac disease for years longer than I have. So.....

I'm going to go onto a slight rant here. :) I don't understand what the obsession is with having to reintroduce or 'get to eat wheat again' for many companies, except that the agri/grain companies have such a vested interest in finding a way to 'make it safe.' As more and more research is being done (or being rediscovered) about the physiologic, endrocrine, and insulin impact of grains and refined carbs and their relationship to the diseases of western civilization, the agri companies are seeing a growing threat to their forced saturation of our diet with engineered, modified, and highly processed grains many of which are not even good for us even if we didn't have celiac disease! (Do some reading on the hormonal impact of soy on both men and women for example).

What few grains we do eat in our house now are almost always whole milled grains (millet, buckwheat, sorghum, brown rice, etc) and it has taken some time but we have managed to find recipes and techniques which have replaced almost everything we 'used to love to eat'. We don't take store prepared lunches to work anymore we usually spend a Saturday a month cooking and baking and then freeze what we will need. Why do we feel this need to try and reacquaint ourselves with a substance that is a toxin for us, and will ultimately result in the shortening of our lifespan? It's like trying to figure out how much dioxin or DDT would be safe to ingest before we start to feel sick. Because almost every one of use bases our 'glutened' status on how we feel, not what our lab work shows.

* Edited for typo correction.

YoloGx Rookie

Foodiegirl, this is not directed at you or your post, but at an attitude I seem to keep encountering even in people who have been diagnosed and living with celiac disease for years longer than I have. So.....

I'm going to go onto a slight rant here. :) I don't understand what the obsession is with having to reintroduce or 'get to eat wheat again' for many companies, except that the agri/grain companies have such a vested interest in finding a way to 'make it safe.' As more and more research is being done (or being rediscovered) about the physiologic, endrocrine, and insulin impact of grains and refined carbs and their relationship to the diseases of western civilization, the agri companies are seeing a growing threat to their forced saturation of our diet with engineered, modified, and highly processed grains many of which are not even good for us even if we didn't have celiac disease! (Do some reading on the hormonal impact of soy on both men and women for example).

What few grains we do eat in our house now are almost always whole milled grains (millet, buckwheat, sorghum, brown rice, etc) and it has taken some time but we have managed to find recipes and techniques which have replaced almost everything we 'used to love to eat'. We don't take store prepared lunches to work anymore we usually spend a Saturday a month cooking and baking and then freeze what we will need. Why do we feel this need to try and reacquaint ourselves with a substance that is a toxin for us, and will ultimately result in the shortening of our lifespan? It's like trying to figure out how much dioxin or DDT would be safe to ingest before we start to feel sick. Because almost every one of use bases our 'glutened' status on how we feel, not what our lab work shows.

* Edited for typo correction.

Go girl!

Bea

Skylark Collaborator

Go girl!

Bea

That's a "he". ;)

This article scared me half to death about European "gluten-free" baked goods. Open Original Shared Link As far as I can tell, the wheat starch baked goods are only currently required to be below 200 ppm gluten to be labeled "gluten-free". Starting January 1 2012, there is a 20 ppm requirement for labeling food "gluten-free", and baked goods can label "very low gluten" if they are below 100 ppm. I'll be surprised if any of the Codex Alimentarius wheat starch foods manage the 20 ppm gluten limit to be labeled "gluten-free".

Gemini Experienced

That's a "he". ;)

This article scared me half to death about European "gluten-free" baked goods. Open Original Shared Link As far as I can tell, the wheat starch baked goods are only currently required to be below 200 ppm gluten to be labeled "gluten-free". Starting January 1 2012, there is a 20 ppm requirement for labeling food "gluten-free", and baked goods can label "very low gluten" if they are below 100 ppm. I'll be surprised if any of the Codex Alimentarius wheat starch foods manage the 20 ppm gluten limit to be labeled "gluten-free".

Wheat starch is supposedly so highly processed, that the gluten molecule is removed....much like distillation. I am not personally buying into that myself.

Having been to Europe many times and planning on going again this Fall, I do not ever eat anything which contains Codex wheat starch. Usually, I eat Atkins when on vacation and get my starches through baked potatoes and rice. I am pleased to see there is a Whole Foods market now (a big one) in London so will see how many truly gluten-free products they carry. If there is gluten-free bread, I always check the ingredients listing and if there is wheat starch, I do not buy it. I do not drink hard liquor/grain alcohol so have no idea if I would react to them. A previous poster had a good question....if European Celiacs are eating foods with up to 200ppm, are they causing damage? Testing in the US has shown that ingestion of gluten over 20 ppm causes villous atrophy so why would Europeans allow up to 200ppm? :blink: Maybe one of our European posters can answer that. I am very careful when eating in Europe and have been 100% successful so far but I generally eat almost zero carbs when on vacation as that's the only way I know to be completely safe.

Skylark Collaborator

Testing in the US has shown that ingestion of gluten over 20 ppm causes villous atrophy so why would Europeans allow up to 200ppm? :blink: Maybe one of our European posters can answer that. I am very careful when eating in Europe and have been 100% successful so far but I generally eat almost zero carbs when on vacation as that's the only way I know to be completely safe.

That's simple. The regulations and research are driven by our ability to accurately and reproducibly measure the gluten content of foods. The 200 ppm recommendations and laws were adopted in the early 80s when gluten was not easy to measure at 20 ppm. Modern sandwich ELISA assays can measure down to 3 ppm gliadin (6 ppm gluten), so research on gluten tolerance is more accurate and regulations at 20 ppm are reasonable to enforce.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,573
    • Most Online (within 30 mins)
      7,748

    Kim Kennedy
    Newest Member
    Kim Kennedy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • xxnonamexx
      Is blending same as cold press? Is there any juice recipe you tried that you feel helped like the ginger turmeric? Is there a brand turmeric powder you used etc? I used Aloe vera years ago but the taste is hard to get down. What are your go to juices you made?
    • Scott Adams
      Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype is significant because it indicates an even stronger genetic predisposition to celiac disease compared to those who only inherit one copy. Research suggests that people with this homozygous pattern may have a higher likelihood of developing the disease, potentially more severe immune responses to gluten, and a stronger association with dermatitis herpetiformis (which aligns with your diagnosis). While this genetic profile doesn’t guarantee worse symptoms, it does reinforce why strict gluten avoidance is critical for you. Since you’re already diagnosed, the main takeaway is that your results explain your biological susceptibility—no further genetic counseling is needed unless you have family planning questions. The repeating variants simply mean both parents passed you the same high-risk alleles, which is why your body reacts so strongly to gluten. Ultimately, your diagnosis and management remain the same, but this insight helps underscore the importance of lifelong dietary diligence.
    • Scott Adams
      It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even if it’s challenging socially. Many parents of celiac kids report significant growth spurts once gluten exposure is minimized, so there’s hope she’ll catch up if her levels improve. As for the future, while her growth window closing may reduce some risks, celiac is lifelong, and staying as strict as possible will likely always be best to avoid long-term complications, even if occasional cautious outings become manageable later. Navigating this with a teenager is tough, especially with spontaneous social events. For unplanned outings, keeping safe snacks (like GF protein bars, nuts, or fruit) in her bag or your car can help. To boost nutrition, try sneaking in variety where you can—like lentil or chickpea pasta instead of rice pasta, or adding veggies and proteins to her favorite dishes. Involving her in meal planning might help with pickiness, and connecting with other celiac families or support groups could provide social strategies and emotional support. It’s exhausting, but you’re doing an amazing job—your efforts now will set her up for a healthier future. Hang in there!
    • Scott Adams
      This is good news--I hope we can get this done on a national level!
    • Scott Adams
      I use a blender and have made various juice recipes over the years. 
×
×
  • Create New...