Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until Symptoms Disappear?

Eliza82

Recommended Posts

Eliza82 Apprentice
Eliza82
Posted

Hello all,

I have not had a Gastroenterologist confirm that I have Celiacs Disease, since my body is too weak for a Colonoscopy at this time, but he thinks I either have celiac disease or IBS. I have had blood work done which came back negative, but that doesn't mean I might not have a gluten intolerance. I'm hoping someone else out there can offer any insight or help with my current issue or just someone who has a similar situation to reach out and say hello.

I was having stomach bloating, pain, gas, constipation and diahrea on and off for about a year and went to my (former) primary care doctor and he thought I had Giardia so he gave me flagyl. The stool tests came back negative for the Giardia but it was too late - I was already taking the Flagyl. It messed up my system pretty bad and gave me a 13 month migraine, numbness in my feet and hands, chills, naseau, weakness, metalic taste in my tongue, depersonalization (brain fog - I am unsafe to drive at this time), jittery arms & legs, forgetfullness, no energy, hives on skin and in private areas, puffy feeling face even though its hard for others to spot, redness on my skin, excessive sweating and a pungeant body odor and so many other things. My thought was that maybe I had a gluten-intolerance and the doctor missed it and gave me the Flagyl which made my whole system MUCH worse. I am getting acupuncture treatment and taking chinese herbs for the relief of some of my symptoms. My migraine is almost gone and some of my naseau has resolved but there are many symptoms that are still there. I don't like medications and try to do things naturally and I'm sure you can understand why.

I have just taken the gluten out of my diet last Sunday so its one week today. I am noticing a little reduction in my hives but I'm not quite sure yet. I'm hoping its the gluten that is making things worse, but I'm not putting all my eggs in one basket so I don't get down if this is not the case.

How long do people generally see a change in their stomach and other symptoms when they go gluten-free? I do realize every body is different, but I'm just looking for others opinions.

Thank you and have a wonderful day!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

I saw mainly negative results the first week followed by very favorable results starting in the 2nd week. Since then I've been getting glutened a decent amount so who knows how things are going, currently at 2.5 months and still noticing a new positive change occurring each week.

carecare Enthusiast
carecare
Posted

Hi,

My husband saw pretty immediate cessation (first couple days) with his indigestion upon going gluten free. His diarrhea issues improved but did not completely go away for about 5 months. I believe it just took that long for his intestines to start to heal. He went gluten free in October...and it wasn't until February that the diarrhea was gone completely. Now it's May...and it's been a couple months of not one episode of diarrhea or indigestion. We've been married for 18 yrs and he's never went more than a week or two without bad cramps and diarrhea....so this is huge for him. He feels great now too! My husband was one to not want to see a doctor...so he did this on his own.

Good luck. Some people I've heard improve with all their symptoms right away...some take a couple weeks but I've also read it could be quite a few months for healing to take place (as in my husband's case.)

CC

Hello all,

I have not had a Gastroenterologist confirm that I have Celiacs Disease, since my body is too weak for a Colonoscopy at this time, but he thinks I either have celiac disease or IBS. I have had blood work done which came back negative, but that doesn't mean I might not have a gluten intolerance. I'm hoping someone else out there can offer any insight or help with my current issue or just someone who has a similar situation to reach out and say hello.

I was having stomach bloating, pain, gas, constipation and diahrea on and off for about a year and went to my (former) primary care doctor and he thought I had Giardia so he gave me flagyl. The stool tests came back negative for the Giardia but it was too late - I was already taking the Flagyl. It messed up my system pretty bad and gave me a 13 month migraine, numbness in my feet and hands, chills, naseau, weakness, metalic taste in my tongue, depersonalization (brain fog - I am unsafe to drive at this time), jittery arms & legs, forgetfullness, no energy, hives on skin and in private areas, puffy feeling face even though its hard for others to spot, redness on my skin, excessive sweating and a pungeant body odor and so many other things. My thought was that maybe I had a gluten-intolerance and the doctor missed it and gave me the Flagyl which made my whole system MUCH worse. I am getting acupuncture treatment and taking chinese herbs for the relief of some of my symptoms. My migraine is almost gone and some of my naseau has resolved but there are many symptoms that are still there. I don't like medications and try to do things naturally and I'm sure you can understand why.

I have just taken the gluten out of my diet last Sunday so its one week today. I am noticing a little reduction in my hives but I'm not quite sure yet. I'm hoping its the gluten that is making things worse, but I'm not putting all my eggs in one basket so I don't get down if this is not the case.

How long do people generally see a change in their stomach and other symptoms when they go gluten-free? I do realize every body is different, but I'm just looking for others opinions.

Thank you and have a wonderful day!

sa1937 Community Regular
sa1937
Posted

I went gluten free following my endo/biopsy on April 9 and was surprised that I saw some positive results in only three days. Not that I'm completely there yet but it was so encouraging as I was hoping to feel somewhat better in a couple of weeks or so. I know everyone is different.

The day after I cleaned out my gluteny pantry the following week, I didn't feel that great.

My biopsy was positive but my GI doc is out of town due to a family emergency so I'll find out more info and where to go from here when I have my follow-up appt. on May 20.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748
    Stacy W
    Newest Member
    Stacy W
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.