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Negative For Celiac, Positive For Genetic Markers


MGMG

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MGMG Newbie

Hello

I am new to this site.

My brother was diagnosed with celiac disease in October of 2009.

I tested negative for celiac, but postive for the genetic markers.

I am deciding whether or not to embrace the celiac life style.

Any advice??

MGMG


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Heidi S. Rookie

Tough decision.

Your gene could be active and silent, active later in life, or never at all. I am not sure of your sex but you can pass it down to your children and not exposing them to gluten for the first year of their life, greatly helps the chance of activation.

A gluten free diet is tedious, expensive, and inconvenient, I do not wish it upon anyone, and NO one goes into it lightly. In my opinion, it is hard to follow if you don't have symptom, the symptoms are what keep you from cheating ;) It would be great to support your brother and understand his needs even if you choose not to follow the diet for yourself:)

Do you have any symptoms or medical problems?

Skylark Collaborator

I saw a talk by Dr. Markku M

ravenwoodglass Mentor

If your having symptoms then yes do give the diet a shot.

MGMG Newbie

Thank you for your quick response.

I am able to tolerate gluten-containing products. The only symptom I present with is abdominal bloating at times.I have tried to embrace the gluten-free diet and after a few days I have significantly less abdominal bloating. I also lost a few pounds while following the gluten-free diet!! It is extremely difficult to follow when eating in restaurants.

MGMG

WheatChef Apprentice

Thank you for your quick response.

I am able to tolerate gluten-containing products. The only symptom I present with is abdominal bloating at times.I have tried to embrace the gluten-free diet and after a few days I have significantly less abdominal bloating. I also lost a few pounds while following the gluten-free diet!! It is extremely difficult to follow when eating in restaurants.

MGMG

Certainly sounds like your body is reacting to the gluten. Since its normally a constant chronic exposure in a regular diet it can be hard to tell just all of what changes the gluten is causing in your body. I'm at the 2.5 month mark now and weekly notice a new thing that apparently was abnormal in me because it's now fixed but before I didn't even realize that it wasn't supposed to be that way (this week's discovery, not everyone has dermatographism and now neither do I!). You may be tolerating gluten less than you think. The bloating thing is definitely easy to notice however, one of the first changes that happened with me upon going gluten-free was losing 10 pounds and going down 2" in waist size.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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