Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Not Sure...


jane doe 2

Recommended Posts

jane doe 2 Newbie

I have been to the doctor's several times. First e thought I had a wheat allergy, so i had blood work done. It came back negative. I'm trying to figure out wht my stomach ges bloated EVERY tme I eat! I could probably have a conversation with my stomach (if was weird)...it grumbles and rolls all the time. One week Im constipated (sorry for the graphic)..the next week its the exact opposite..I dont get it!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Hi Jane,

First of all, alternating C&D is a well known symptom on both gluten intolerance and celiac disease. Neither of those would show up with wheat on an allergy test. Gluten may (and I stress may) show up on an IGg food intolerance panel, but that isn't the same as a diagnostic for gluten intolerance, and definately not for celiac disease.

If I may ask, do you have other symptoms? Have you done any kind of food elimination diet? Is it really every time you eat, or is there something common you always have like a milk product or something?

I'm making some assumptions below that you don't have any true food allergies or a vegan diet or anything. If you do adjust accordingly.

Try a quick (four day) starter test that will not have any long term impact but if you are really reacting after every meal might help you begin to identify this. The reason for four days (five would be better) is that your body may react to foods up to four or five days AFTER you have eaten them. Some food intolerances may be an interaction as well. e.g. I have a friend who can eat eggs just fine. She can also eat brown rice. However if she eats rice and eggs within the same 24 hour period she feel nauseous for several hours after whichever one she ate last.

Eliminate all non-water beverages from your diet. (This means tea and any coffee too unless you grind the beans yourself and it is non-flavored coffee).

Prepare any veggies you may eat in a glass or pyrex microwavable dish which you have washed thoroughly between use. Steam them lightly unless they are frozen single veggies. Don't use mixed frozen bagged ones (like three-veggie mix).

For breakfast eat no grains at all. Do poached eggs, or fried, etc, but cook them in stainless steel - not non-stick. Throw some diced potatoes or something in there for fried as well. The key is CLEAN STAINLESS STEEL for any cooking.

For lunch take some whole fresh veggies, fruit, or meat from the night before. No bread or grain products of any kind.

For dinner sometime similar. Nothing but water, fresh veggies, fruit, meat. Don't use any mixed seasoning blends, salt substitutes, or anything but single spices or salt. Keep it as simple as possible. Prepare your food on a plate (non-plastic) that has been through the dishwasher.

Use/eat/ingest no dairy (even non-lactose things), grains, tomato or processed foods. No alcohol. No butter substitutes.

See how you feel after each meal. Write down your symptoms and how you feel a hour after each meal, along with what you ate, and also journal immediately before a meal. Do this for four days.

miaryan Apprentice

the journal this is a good idea. i'm in the process of doing that to but for me i'm trying to find out what is causing my headaches. other then gluten.

sandsurfgirl Collaborator

I'm surprised a mod didn't move this post. Put this in the prediagnosis and testing room and you might get a lot more responses. If you get sick from eating wheat, then you can't eat it. Don't buy the you're not allergic line, because I bought that and suffered for a long time unnecessarily. Get tested for celiac. If it comes up negative go gluten free anyways and see if it helps you.

  • 2 months later...
Branny Newbie

First report and keep a Headache Journal with your Food Journal for the Dr... it will help him help you conciderably and Second, Heahaches are mostly Muscle Spasms, find out the Trigger and you'll be able to control them better.

My GI Dr gave me some great advice a few years back... "The only way to trully find out if you are allergic to anything is to stop using it for a week. If sysmtoms begin to subside then you have that allergy, if not move on to the next product you use in your life and don't miss anything... it all matters."

  • 1 month later...
klbasap Newbie

I have been to the doctor's several times. First e thought I had a wheat allergy, so i had blood work done. It came back negative. I'm trying to figure out wht my stomach ges bloated EVERY tme I eat! I could probably have a conversation with my stomach (if was weird)...it grumbles and rolls all the time. One week Im constipated (sorry for the graphic)..the next week its the exact opposite..I dont get it!!!!!

Constant bloating after every time you eat sounds like what I'm just now getting through...C. Diff. I found that I do have celiac disease by trying to get rid of the constant bloating and headaches but going gluten free did nothing for me. I was gluten free for four months- nothing! So, I found the SCD diet; did that for 6 months(still gluten free of course) but still bloating! I'm a size 4 pants but with a distended stomach of 36 inches every time I eat?

Finally.... I found a celiac specialist/GI doctor and in a week found that C. Diff had taken over and that's why I was so sick for so long! 14 months into my journey I had my best day today! I have never posted on a forum until today but I see that you may be suffering what I suffered. Please check into c diff testing or, at a minimum begin tracking your food consumption- c. Diff lives on sugar/starch/carbs. A carrot has too many carbs for someone suffering with this obnoxious little bacteria.I hope you no longer suffer soon!

Kelly

psawyer Proficient

I'm surprised a mod didn't move this post. Put this in the prediagnosis and testing room and you might get a lot more responses.

Good idea. Sometimes we aren't as sharp as we could be. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.