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SLB5757

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SLB5757 Enthusiast
SLB5757
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

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dilettantesteph Collaborator
dilettantesteph
Posted

As a child, I had dental enamel defects, and my celiac child also does.

RideAllWays Enthusiast
RideAllWays
Posted

I did as a child as well

momtok&m Explorer
momtok&m
Posted

That's very interesting, my 4 year old has cavities (6 so far) but she's not the gluten intolerant one! I wonder if I should have her tested?

SLB5757 Enthusiast
SLB5757
Posted
  • Author

That's very interesting, my 4 year old has cavities (6 so far) but she's not the gluten intolerant one! I wonder if I should have her tested?

My little guy seems to have dental enamel that is just yellowing or wearing thin. Hard to explain really - but I brush his teeth so well so it doesn't make a lot of sense. I know it could just be genetic - but wondered if there was a link.

T.H. Community Regular
T.H.
Posted

My daughter had enormous dental problems as a child. No sweets or juices, but by 18 months old, she already had 22 cavities, and we were like you. We used flouride and brushing and such, and she would still get about a new cavity a month. It was awful.

She was just diagnosed last year, after she turned 11 years.

My son had the short stature and pudgy belly, and while his test is negative, we've taken him off of gluten and seen an improvement in his growth, as well. No dental issues for him, however.

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

mom2kae Rookie
mom2kae
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

My almost 4 yr. old has had enamel problems since 1 yr. old. Her top 4 teeth started to lose enamel, then chip all of a sudden. She wasn't bottle fed, no sweets, brush her teeth, etc.

We haven't gotten the official diagnosis but she did get an IGG Gliadin test back + so we're waiting for a specialist referral to get a proper diagnosis. She also has the pudgy belly, weird stools, failure to thrive, etc.

~J

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Cindy G Newbie
Cindy G
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

Hi!

My daughter has an enamel defect on one of her top front permanent teeth. She was diagnosed 11 months ago, and I had been wondering about that spot for some time! Too bad most dentists don't know more about celiac disease - they could help alot of people reach a diagnosis earlier!!!

What'sForDinner? Newbie
What'sForDinner?
Posted

My son with celiac has terrible teeth...just like I do (also celiac). My son who does NOT have celiac, has great teeth. We have educated our dentist a lot about celiac!

Pattymom Newbie
Pattymom
Posted

My eldest, now 14 had terrible awful teeth, canines that came in with holes basically, and most of his baby teeth as well-He was just diagnosed last year, though he had GI symptoms since aroudn 5 or 6. My youngest, 5 also has lots of dental issues, she's been gluten free since around 3.5ish, had two teeth extracted, and I just ofund two more cavities this week, sigh. Non-celiac dd, 11, great teeth, no issues.

Patty

weluvgators Explorer
weluvgators
Posted

Anyone else with a dental presentation in their child?

Yes! Our super silly girl has had extensive teeth problems, and the staining on her teeth was one of our first clues as to the serious nature of her celiac issues. Unfortunately, we have yet to find a dentist that understands the issues. It is truly awful, in my experience. While I feel that dentists should have been a first line notification and alert for us, they have been anything but. We have had a dentist look at my daughter's teeth and tell us that she has the teeth of a soda drinking, candy eating, bottle at bedtime child, and she is none of those. He could NOT wrap his head around the idea that celiac was the root issue for us. I was standing there telling him about her celiac while he just shook his head and explained that he sees this all the time in the soda drinking, candy eating kids and that was the logical explanation. We never went back. It was so insulting. We struggled to find a pediatric dentist to help, and I think that we are past the worst of it *KOW*. But she has been gluten free for most of her life (we trialed gluten a handful of times in months 6-12). It wasn't until *I* went gluten free (she was nursing), and we better understood cross contamination that we were able to get improved dental health for her. It has been a struggle!

msbecky74 Newbie
msbecky74
Posted

My little girl had horrible teeth when she was little and I couldnt understand why, her two front top teeth were black and decayed. She is now 11 years old and we just found out she has celiac disease last month and sooo many things are starting to make sense to me now. The only reason we found out was because my youngest daughter who is 9 was diagnosed with type 1 diabetes in January and they said that I should have all my children tested, in that test they do a celiac disease test as well.

My daughter never had a problem growing as she is very tall for her age, she is also over weight but has the pot belly. It all came out of know where, she used to be this little tiny girl and then she hit 9 years old and started gaining a lot of weight, started getting severe acne, and very oily hair. Has anyone else seen this in their child with celiac?

We have not started the gluten free diet yet, we just got the second test in that confirmed celiac. So now I am researching like crazy to find out where to start. One with diabetes and one with celiac in 5 months just has my mind whirling.

irish daveyboy Community Regular
irish daveyboy
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

I posted these links on the same topic over on a UK forum.

Take Your Pick

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Best Regards,

David

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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