Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have You Ever Felt Like This?


conniebky

Recommended Posts

conniebky Collaborator

Today is my second day of being gluten free.

I was wondering if anyone has felt like this - ? Since February, I get up in the morning, feel ok, then while eating breakfast, this icky feeling washes over me, like dizziness and nausea - just a icky gross weak feeling.

Then, when I walk, I feel "tilted" and like I'm going to fall over. I was dx'd with positional vertigo and given all kinds of drugs that I have since quit taking.

Then, every time after I ate, I'd get that dizzy gross weak feeling again. So, I looked it up and it said that eating can make vertigo worse which made no sense to me.

But everything I was eating was that good ol' healthy whole grain and whole wheat...so......

I was wondering if anyone has experienced that feeling I'm trying to describe. B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

I have had times in my life - prior to being gluten free - when I have felt that same way. I can't remember for sure if it was after I ate breakfast, but it seems like it was, and I know it was in the mornings.

Wish I had some advice or something for you, but I at least wanted to say that I had experienced the same thing before.

Hopefully you figure out your health issues soon. Good luck!

SLB5757 Enthusiast

Today is my second day of being gluten free.

I was wondering if anyone has felt like this - ? Since February, I get up in the morning, feel ok, then while eating breakfast, this icky feeling washes over me, like dizziness and nausea - just a icky gross weak feeling.

Then, when I walk, I feel "tilted" and like I'm going to fall over. I was dx'd with positional vertigo and given all kinds of drugs that I have since quit taking.

Then, every time after I ate, I'd get that dizzy gross weak feeling again. So, I looked it up and it said that eating can make vertigo worse which made no sense to me.

But everything I was eating was that good ol' healthy whole grain and whole wheat...so......

I was wondering if anyone has experienced that feeling I'm trying to describe. B)

Morning is the worst for me. I do not know if it ties into what you are dealing with at all - but I absolutely dread mornings and how my tummy will react. It definitely gets better throughout the day but I feel nauseus and and dizzy before and sometimes after I eat in the AM as well.

RESO Apprentice

Yes, vertigo was one of my symptoms when I was still eating gluten. It cleared up not long after starting a true gluten-free diet (it took a while for me to figure out what was truly gluten-free). Hopefully, this will happen for you too. :-)

bridgetm Enthusiast

When I first started reacting to gluten, I would get full-body tremors and chills and often vertigo and tunnel-vision. Once I was trying to get to the bathroom to throw some cold water on my face and I was so out of it that I walked into the men's room by mistake. I had to take a minute to regroup in the hallway before I could get to the ladies one door down.

conniebky Collaborator

When I first started reacting to gluten, I would get full-body tremors and chills and often vertigo and tunnel-vision. Once I was trying to get to the bathroom to throw some cold water on my face and I was so out of it that I walked into the men's room by mistake. I had to take a minute to regroup in the hallway before I could get to the ladies one door down.

Oh, that makes me feel AWFUL for you. I soooo know that feeling. I'm sorry that happened to you.

sick of being ill Newbie

Today is my second day of being gluten free.

I was wondering if anyone has felt like this - ? Since February, I get up in the morning, feel ok, then while eating breakfast, this icky feeling washes over me, like dizziness and nausea - just a icky gross weak feeling.

Then, when I walk, I feel "tilted" and like I'm going to fall over. I was dx'd with positional vertigo and given all kinds of drugs that I have since quit taking.

Then, every time after I ate, I'd get that dizzy gross weak feeling again. So, I looked it up and it said that eating can make vertigo worse which made no sense to me.

But everything I was eating was that good ol' healthy whole grain and whole wheat...so......

I was wondering if anyone has experienced that feeling I'm trying to describe. B)

yes!!! i know exactly what your saying, i feel like that most days a really icky weak feeling in the morning and then by late afternoon early evening i tend to feel a lot better, is s strange, sometimes when at work i feel all lopsided as if im going to walk into something is awful! I havent been diagnosed as yet waiting to see gastro but searching for answers in the meantime! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



anabananakins Explorer

is s strange, sometimes when at work i feel all lopsided as if im going to walk into something is awful! I havent been diagnosed as yet waiting to see gastro but searching for answers in the meantime! :)

Oh wow, I can relate. I hate it when I'm walking down a corridor and people are walking towards me because it's so hard not to walk into them. And if I have to walk past something and then turn, I frequently hit it as I go. I first noticed this when I was 20 and I always managed to hit the photocopier as I turned to go into the store room, even though there was plenty of room on my other side. It's that lopsided, tilted feeling and it's so weird. I haven't been diagnosed yet either.

Do you ever feel - not sure how to describe it exactly - but kind of super aware of your body and what's around you because you're struggling to stop feeling spaced out and tilted? I feel like everyone else just walks around at ease while I'm always concentrating hard on it. My GP did some neurological tests, things like me tapping my finger on my nose and then reaching for her finger, which kept moving, and she said I did fine but I was concentrating very hard :-)

conniebky Collaborator

Well, the good news is I don't feel like that anymore since I'm gluten-free. But it's when I start feeling like that that I know I've been glutened. Like today I had that coffee at work and I felt that feeling coming over me, sure enough.

I would equate that feeling with true misery. I went into Walgreens one day to get some cigarettes ( i know, i know ;) and they are right up front and I thought I'd never make it outta that store without falling over. It was just misery feeling like that. Also, I noticed that I hold my head up correctly now. I noticed before that I was holding my chin down and turned to the left.

And I was so "jealous" of all these people walking around like there was nothin' to it! I went to the grocery last night and walked clear back to the restroom without a basket - but then I got one, cuz I think I've become dependent on them.

anabananakins Explorer

Well, the good news is I don't feel like that anymore since I'm gluten-free. But it's when I start feeling like that that I know I've been glutened. Like today I had that coffee at work and I felt that feeling coming over me, sure enough.

I would equate that feeling with true misery. I went into Walgreens one day to get some cigarettes ( i know, i know ;) and they are right up front and I thought I'd never make it outta that store without falling over. It was just misery feeling like that. Also, I noticed that I hold my head up correctly now. I noticed before that I was holding my chin down and turned to the left.

And I was so "jealous" of all these people walking around like there was nothin' to it! I went to the grocery last night and walked clear back to the restroom without a basket - but then I got one, cuz I think I've become dependent on them.

That's awesome that being gluten fre makes it go away, though I'm sorry you had to go through it again after being glutened :-( I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri

    2. - bombier replied to bombier's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      KATZ CINNAMON DONUTS

    3. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri

    4. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri

    5. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      6

      Manitol and mri


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still  which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly, because I've been at this year's , and I clearly have all the symptoms , it's so frustrating when you have all this going in and still feel no further ahead 😳
    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.