Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Balance Thing Going On...


Ruthie13

Recommended Posts

Ruthie13 Rookie

Ok so in a nutshell I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



masterjen Explorer

I don't know if your symptoms are gluten-related or not, but google the term BPPV (benign paroxysmal positional vertigo), and see if this sounds like what you are experiencing. If so, ask your family doctor to refer you to an Ear, Nose, Throat specialist (otolaryngologist) if it doesn't clear up.

i-geek Rookie

It could be. I had problems with constantly clogged sinuses (like, since childhood and I'm 31 now) before going gluten-free, and that caused a lot of problems with vertigo. I didn't even realize how big of a problem it was until I went totally gluten-free and it cleared up.

ravenwoodglass Mentor

What you are likely experiencing is gluten ataxia. It differs from vertigo in that you wouldn't have the 'spinning' sensation that often goes with vertigo. You described it perfectly IMHO when you described it as feeling like you are walking on a boat. I have had it since childhood. Mine got so bad I couldn't walk unaided by the time I was diagnosed. The good news is that it is likely the CC you are living with that is causing it. Once you are able to stop the CC it should resolve.

celiacmom2 Rookie

I usually get the off kilter problem in the Spring...I think mine is due to fluid in the ears. My doc always checks my ears and asks me what I am using as nose spray to get it drained and I am not using anything because the sprays all make me feel weird. That could have been from celiac disease though, now I am on a gluten free diet, and once in a while I get glutened but the fluid in my ears doesn't seem to go away, I am still getting sinus headaches. You might want to get your sinuses looked at by your doc to just rule everything out.

I have experienced a problem when I am sitting that about once a month I feel like I am falling forward and I end up grabbing whatever is near me so I don't actually fall. Of course I scare my family and they wonder what just happened so I just say the usual, I have had and still have some anemias from Celiac Disease that I am still working on trying to build back up like my iron count, but not sure if it is that or just allergies. I wonder if that is ataxia( I think that is how its spelled) from Celiac that I have experienced for a long time.

StephanieGF Rookie

Yes, the feeling like you are walking on a boat is exactly what I experience. I think it is the worse part of being glutened. I can deal with gas and other issues, but the dizziness is unbearable. I think for me it is the stress that gluten puts on my body, because other things that cause a stress on my body (food allergies or mental stresses) tend to make me dizzy too.

Ruthie13 Rookie

wow great to know that I'm not going crazy!!..this forum is great for that, just to be able to connect with others experiencing similar things. If I get the chance I'll get checked out by the doc just to see it isn't something else but hopefully it'll disappear once I get my diet under control again. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BigDogz Explorer
  On 5/14/2010 at 6:12 PM, Ruthie13 said:

wow great to know that I'm not going crazy!!..this forum is great for that, just to be able to connect with others experiencing similar things. If I get the chance I'll get checked out by the doc just to see it isn't something else but hopefully it'll disappear once I get my diet under control again. Thanks!

I think we've all felt from time to time as though we're crazy and the only person out there experiencing such things. But, no, you're NOT crazy...

In addition to mild to moderate GI symptoms, I get peripheral neuropathy (burning/tingling in toes/feet/lower legs & hands) and the same off-kilter issue you have when I'm glutened. I find that I have a tendency to veer to the right when walking and it takes me longer than normal to adjust to sudden, significant position changes (e.g. standing after sitting or lying down).

I like your description about how your symptoms feel like you're walking on the deck of a rolling ship. I described it as a sensation that I was walking on a floor that was warped and buckled but your's is a much clearer description. When I get that "rolling ship" sensation, it seems as though I can't control my legs & I find that I do a lot of tripping and the veering thing.

But it's the way you describe how it seems that there's a delay where you have to "wait for the back of your head to catch up" that really stood out to me. I experience something that's somewhat similar. Before I was diagnosed, I wasn't sure how to explain what I was feeling to my doctor other than to say that it felt as though I was having what I thought an out-of-body experience might feel like...I knew in my mind that my physical body was walking on the floor but it felt like some "invisible, shadow part" of me was simultaneously walking 6 or 8 inches off the floor and a step or two behind my body. And don't think I didn't worry about being thought of as crazy with a description like that!! LOL.

Take heart, though. Since going gluten-free, the only time I have those unsettling symptoms is the unusual occasion when I get glutened. It sounds as though your cross-contamination issue is at the root of this and I'd bet that the symptoms will disappear when you're able to fix that problem.

bluebonnet Explorer

i would say its got something to do with gluten ... ataxia is an issue for me ... noticed slight improvement(after 3.5 months gluten free) and now with my gluten challenge it happens frequently. again. (1 more week of gluten and i get my biopsy. i hope this has been worth it as far as the biopsy goes).

anyway, do your best to stay away from it and hopefully after awhile you will notice improvement! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,193
    • Most Online (within 30 mins)
      7,748

    ChrissiG
    Newest Member
    ChrissiG
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates...
    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears...
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten...
    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
×
×
  • Create New...