Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Test Results.....

Mrsb2010

Recommended Posts

Mrsb2010 Newbie
Mrsb2010
Posted

In 1987, at age 18, doctors discovered a large (size of my fist) tumor in place of my thyroid. They did biopsies and opted to remove the thyroid completely. The diagnosis was Hoshimotos. Within a year I was having horrible stomach issues and went through multiple barium tests to be told I had a hyetal hernia and GERD. I am now in my early 40s and have been suffering from difficulty swallowing (especially at night), major stomach cramping, constipation (it can be five to six days), diarreha, major gas, itchy skin (especially after a warm shower), and depression. The despression I have attributed to mostly my being unemployed for so long. But now I am not so sure. A couple of weeks ago, the specialist I went to in regards to the digestive issues scheduled me for a colonoscopy and endoscopy. Biopsies on the endoscopy came back unremarkable. But the colonoscopy came back with damage. SO the doctor called for more definitvie bloodwork tests. The lab tech taking my blood directed me to this site. As I read all the symptoms and peoples issues, I am scared to think that this could finally be the correct diagnosis! Has anyone been living with these issues for nearly 22 years? And what do could it be if the blood tests come back negative? And what do I do about the thyroid medication I take? The brand I take has glucose aparently. Do they make gluten free thyroid medication?

Thanks for all the help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RESO Apprentice
RESO
Posted

Has anyone been living with these issues for nearly 22 years? And what do could it be if the blood tests come back negative? And what do I do about the thyroid medication I take? The brand I take has glucose aparently. Do they make gluten free thyroid medication?

Thanks for all the help.

Hi MrsB: I believe I can answer one of your questions. Glucose is a sugar, so it is safe for Celiacs or people with gluten intolerance.

Good luck with everything, hope they get it figured out quickly so you feel better soon.

Mrsb2010 Newbie
Mrsb2010
Posted
  • Author

Hi MrsB: I believe I can answer one of your questions. Glucose is a sugar, so it is safe for Celiacs or people with gluten intolerance.

Good luck with everything, hope they get it figured out quickly so you feel better soon.

I meant to say the brand of Thyroid I take has GLUTEN.....not glucose. Just wondering if any one else has found a thyroid medication without Gluten. THANKS!

dhiltonlittle Contributor
dhiltonlittle
Posted

I meant to say the brand of Thyroid I take has GLUTEN.....not glucose. Just wondering if any one else has found a thyroid medication without Gluten. THANKS!

Which brand are you taking that has gluten in it?

Skylark Collaborator
Skylark
Posted

Don't be scared. This is one of the best diseases you can have! It's 100% curable with diet. If you're gluten-sensitive, going off gluten totally changes your life for the better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      Researchers are working on T cell modification therapy that could one day let celiacs eat gluten.
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    4. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748
    dalimoda
    Newest Member
    dalimoda
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.