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Itching


choker28

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choker28 Newbie

I was diagnosed with celiac disease about 6 months ago,went to the doctor because i was constantly itching manly on my back and shoulders and sometimes on my ankles.have a light red measle looking rash that occurs on my upper body (shoulders and neck).have been gluten free for about 3months but still continue to itch,anti histamines don't do nothing for me.is this a common thing with celiac disease


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JAMR Newbie

I was diagnosed with celiac disease about 6 months ago,went to the doctor because i was constantly itching manly on my back and shoulders and sometimes on my ankles.have a light red measle looking rash that occurs on my upper body (shoulders and neck).have been gluten free for about 3months but still continue to itch,anti histamines don't do nothing for me.is this a common thing with celiac disease

Gluten is not the only thing that can cause itching, for example I react to cashews and pineapple. From what I understand gluten causes fundamental damage to the gut creating issues with other foods, lactose, soy etc. You might then also get skin reactions and other symptoms from these. Of the major food groups that cause skin problems, at the very least lactose, gluten and yeast cause skin issues. The other major product, that of fructose does not appear to. I suggest you stick with the gluten (I assume you have been correctly diagnosed with gluten intolerance), as the skin does take a while to recover and look for other fods that typically cause reactions.

Be positive about this although it can be a challenge - you have isolated gluten as a problem, thiscan take up to 6 months to show significant improevement. Track other symptoms, like energy levels, state of stool, weight loss/gain. The skin tends to be the slowest to react is symptoms after gut and energy etc. Also check you are not eating gluten from some unknown source.

Sasparillo is a very good herb for itching relief, it acts a a blood cleanser and takes a few days to see the results, but works very well over long periods.

If you are unsure if you have DH, you can get a skin biopsy to confirm this as being the result of gluten. Good luck.

mushroom Proficient

After I stopped eating gluten I began to itch like crazy with a red rash on my chest. I discovered that this was caused by soy. After quitting eating soy, I still had residual itching, the source of which I could not identify for a long time. I eventually discovered it was caused by potatoes. Much later I developed additional itching, which I developed because I had been eating too much citrus. After eliminating soy, potatoes and citrus, I had no more itching. It could be that your itching is coming from an additional intolerance.

RoseTapper Newbie

It's possible that there's gluten in your shampoo--Organics makes gluten-free shampoos. I know that when I've used shampoos that contained gluten, my DH comes right back.

  • 3 months later...
kuunami Newbie

After I stopped eating gluten I began to itch like crazy with a red rash on my chest. I discovered that this was caused by soy. After quitting eating soy, I still had residual itching, the source of which I could not identify for a long time. I eventually discovered it was caused by potatoes. Much later I developed additional itching, which I developed because I had been eating too much citrus. After eliminating soy, potatoes and citrus, I had no more itching. It could be that your itching is coming from an additional intolerance.

how long after the eliminating the soy, potatoes and citrus did you start to see an improvement?

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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