Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Buckin' Up :-(


conniebky

Recommended Posts

glutenfr3309 Rookie

I gave up coffee for some time before I could have it in small quantity. Some people have their guts very damaged so they become very sensitive. Coffee may irritate your gut, as spices or vinegar do. Try not to drink coffee for a while, or take it with lactose-free milk if you can (just one small cup). :)

i have had the same problem with coffee- the dizziness, etc could be from the caffeine. i was drinking regular coffee in the mornings because i was so exhausted all the time. now that the exhaustion has diminished eating gluten-free, i switched to decaf. i just like the taste of coffee and it has become part of my morning ritual. switching to decaf doesn't make me have to go to the bathroom like the regular does!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

I wondered if the very sensitive people to small amounts of gluten could list a few products that they know are safe and thye have no problem with . Like I am wondering what brand of baking cocoa people use, or brands of cookies etc that you know are safe. I am to the point of being scared to try new things.

Hershey's cocoa power (baking cocoa) is safe for me at least. I make my own (drinking) cocoa using coconut milk. Cookies we bake ourselves mostly, but the few we buy are from Pamela's.

bisja Apprentice

I have not been able to drink tea or coffee it just seems to really make my stomach hurts and burns. Is Pamelas a totaly gluten free facility? Also is Glutino totaly gluten free facility? I have been reading about Udis and it seems like it is all totaly gluten free . I did try a Udi's blueberry muffin and all was fine.

jerseyangel Proficient

I have not been able to drink tea or coffee it just seems to really make my stomach hurts and burns. Is Pamelas a totaly gluten free facility? Also is Glutino totaly gluten free facility? I have been reading about Udis and it seems like it is all totaly gluten free . I did try a Udi's blueberry muffin and all was fine.

Pamela's and Glutino are both dedicated facilities.

bisja Apprentice

Thats great to know thank you everyone!

conniebky Collaborator

So far, Glutino is my favorite.

jerseyangel Proficient

So far, Glutino is my favorite.

If only I could stay out of my box of lemon wafer cookies.... :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bisja Apprentice

you all are makin me hungry :blink:

RoseTapper Newbie

Your gluten-free journey sounds so familiar. When people first try going gluten free, they're so accustomed to having processed foods in their diet, they look for gluten-free versions. It gives them comfort to eat like "they used to." Unfortunately, we continue to crave our old eating patterns, and it's difficult to change that without feeling deprived and bitter. I can honestly say that I was a bitter person for the first two years after being diagnosed with celiac, because I missed some of my favorite foods so very much (donuts, sourdough bread, cereals, croissants, pizza, ravioli, mac and cheese, etc.). However, over time, I lost my taste for these items. Now that there are gluten-free versions of everything I used to eat except croissants, I still rarely purchase them because I simply have very little interest in them anymore. Once you've spent some time eating a diet of unprocessed foods, believe me--you probably won't crave processed foods anymore. They just have a yucky, foreign consistency. So....don't bother to buy those cereals at all. Cook up some eggs or make a soup or salad. When your health is good, everything else seems good, too.

BTW, do you happen to live in Northern California? We have a few support groups around the S.F. Bay Area. Perhaps you can find a support group near you, too (??). Then you wouldn't have to rely on "Netland."

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,562
    • Most Online (within 30 mins)
      7,748

    dilys.jones53
    Newest Member
    dilys.jones53
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.