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Anyone In Champaign, Il Or Surrounding Areas?

Coolclimates

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Coolclimates Collaborator
Coolclimates
Posted

I just got diagnosed with Celiac Disease 3 weeks ago. I'm a 32 year old single woman and I'm wondering if there are any men around my age in the Champaign-Urbana area? I'd also like to know if there is a local support group.

  • 1 month later...
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torimuse Rookie
torimuse
Posted

Wish I'd joined this board weeks ago. I'm in East Peoria, but I move to Nebraska in a couple weeks. I tend to go dancing in Urbana, so I'm down there usually at least 2x a month. I'm not male, but I'm semi-nearby.

  • 2 weeks later...
Coolclimates Collaborator
Coolclimates
Posted
  • Author

Well I did find out that there is a support group in the Champaign area, and I plan to go to one of their meetings tomorrow. I have another friend who is trying the gluten free diet because she has horrible rashes/blisters and limited income to see a doctor. She suspects that she has the skin type of celiac disease. Also found out a few people I know here in town are on the gluten-free diet. Neither were diagnosed with celiac disease, but have had positive results. However, I am not in touch with them at this time.

  • 3 months later...
sstearns Newbie
sstearns
Posted

Well I did find out that there is a support group in the Champaign area, and I plan to go to one of their meetings tomorrow. I have another friend who is trying the gluten free diet because she has horrible rashes/blisters and limited income to see a doctor. She suspects that she has the skin type of celiac disease. Also found out a few people I know here in town are on the gluten-free diet. Neither were diagnosed with celiac disease, but have had positive results. However, I am not in touch with them at this time.

I'm new to the gluten-free world and heard from a friend that there was a support group in Champaign, IL but she didn't know when and where they meet. Could you give me that information?

Woody Rookie
Woody
Posted

Hi I am amember of the c-u support group. We meet the third Sunday of the maonth at Provena Hospital, at 3:00 P.M.. The meetings generally will last about two hours. We always have glutin free snacks. If you need more information you may e-mail me here and I will get back to you.

Woody

  • 10 months later...
Coolclimates Collaborator
Coolclimates
Posted
  • Author

so is there anyone else around here? Or is it just me and my Celiac group?

  • 1 month later...
NateJ Contributor
NateJ
Posted

so is there anyone else around here? Or is it just me and my Celiac group?

3 hours away in STL. But your the closest person I've seen post on this forum.

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  • 2 weeks later...
Menic Apprentice
Menic
Posted

From NW Chicago myself, but I did go to college in Peoria :)

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    • RMJ
      Positive biopsy

      By RMJ · Posted

      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      Positive biopsy

      By Russ H · Posted

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      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

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