Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Just Diagnosed


Grace'smom

Recommended Posts

Grace'smom Explorer

Hi there

My six year old daughter received her diagnosis yesterday, following an endoscopy last week. I am overhwelmed. We will meet with a nutritionist next week. In the meantime, I was pointed to several books and supermarkets. I wondered if someone would mind recommending gluten free cookies, salty snacks and school snacks that their children really like. I struck out on all 3 that I brought home from Whole Foods market last night. She didn't like the after taste with any of the cookie treats I found. I know this is going to get easier but right now it seems very challenging. Any suggestions on brand recommendations would be so appreciated. Thank you... Emily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Hi there

My six year old daughter received her diagnosis yesterday, following an endoscopy last week. I am overhwelmed. We will meet with a nutritionist next week. In the meantime, I was pointed to several books and supermarkets. I wondered if someone would mind recommending gluten free cookies, salty snacks and school snacks that their children really like. I struck out on all 3 that I brought home from Whole Foods market last night. She didn't like the after taste with any of the cookie treats I found. I know this is going to get easier but right now it seems very challenging. Any suggestions on brand recommendations would be so appreciated. Thank you... Emily

My son has not been diagnosed with celiac but he is eating gluten free and no more tummy pain. He likes Glutino pretzel sticks, Season's baked cheddar cheese curls, Blue diamond nut thins-almond, Pamala's mini choc chip cookies, Chex cereal-cinnamon, Brothers all natural disney freeze dried apples, , kroger sells their brand of pre-popped and bagged salted popcorn, my family loves it.

sa1937 Community Regular

Hi there

My six year old daughter received her diagnosis yesterday, following an endoscopy last week. I am overhwelmed. We will meet with a nutritionist next week. In the meantime, I was pointed to several books and supermarkets. I wondered if someone would mind recommending gluten free cookies, salty snacks and school snacks that their children really like. I struck out on all 3 that I brought home from Whole Foods market last night. She didn't like the after taste with any of the cookie treats I found. I know this is going to get easier but right now it seems very challenging. Any suggestions on brand recommendations would be so appreciated. Thank you... Emily

There are so many things she can have, some of which she probably already eats. Here are just a few to get you started:

General Mills has lots of recipes on this website to make your own treats:

Open Original Shared Link

sa1937 Community Regular

I also do fine with Frito-Lay products...not everyone does (potato chips, Fritos, Cheetos, etc. Again read the labels as not all flavors are gluten free. Stax chips are marked gluten free (do not buy Pringles are they are not gluten free).

Mizzo Enthusiast

We are 7 weeks gluten-free and this is what we have found.

Tostitio's corn chips , the rounds with slices of cheese are a favorite here.

Utz brand chips, cheese puffs and potato sticks say gluten free right on the back on their safe flavors.

Quaker rice cake say gluten-free on them also for safe flavors my girl likes the Caramel and Chocolate

Newmans Own Soy Crisps, Cinnamon and sugar are OK

Sweet's:

Enjoy life, Snickerdoodles are really good(not cheap)try the 2 pack first usually $1 each

We also like Bob's red mill Choc chip cookies, I mix the whole batter and freeze half, bake the other half and store cookies on air tight container

Glutino cereal bars are ok

Glenny's has a rice krispie bar, we haven't tried it.

K-Kritters animal crackers (these are like a SUGAR cookie )

I find it's worth baking brownies (pamela's or Bob's) or a cake( Pamela's) and packing those up for snacks, cheaper for sure.

UDI's white bread is the closest we have found to a wheat bread, My 6yr old is enjoying her PBJ sandwiches again. My girl also likes Tapioca loaf from Energ, It's kinda a weird semi-hard white bread but it does have more protein and fiber than the other Energ breads so she get that for bologna and turkey (Oscar Mayer) and Udi's for PBJ.

Ocean state job lot also carries a decent selection of corn and rice pasta the cheapest prices I have found. FYI Kraft brand mac and cheese cheese packet is gluten-free, NOT the pasta, If you have any keep the cheese packet for a gluten-free pasta, it is much better that Annies brand IMO

The hardest part once you find product you like is finding the best price, expect to spend a lot more grocery money the first month, then know it will get better as you shop around and get to know brands.

Don't know what state you are in but here are my shopping stores in Ma.

In MY OPINION:

Whole foods: most options also most expensive

Stop and shop , less options cheaper prices

Hannaford, decent selections, average prices

Ocean state job lot, average to cheaper price , lots of Bob Red Mill product and occasional chip and cracker selections.

Walmart , very small selection, cheapest prices

Target, I have heard they sell gluten-free but the ones near me do not

My girl has 2 weeks of girl scout camp in July and I found Smoreables for her gluten-free smores at Whole foods, so she can even have that.

Good luck

Grace'smom Explorer

Hi there

My six year old daughter received her diagnosis yesterday, following an endoscopy last week. I am overhwelmed. We will meet with a nutritionist next week. In the meantime, I was pointed to several books and supermarkets. I wondered if someone would mind recommending gluten free cookies, salty snacks and school snacks that their children really like. I struck out on all 3 that I brought home from Whole Foods market last night. She didn't like the after taste with any of the cookie treats I found. I know this is going to get easier but right now it seems very challenging. Any suggestions on brand recommendations would be so appreciated. Thank you... Emily

Thank you so much everyone for these great suggestions...this forum is going to be a tremendous help, and I'm very appreciative of your kind input.

Grace'smom Explorer

We are 7 weeks gluten-free and this is what we have found.

Tostitio's corn chips , the rounds with slices of cheese are a favorite here.

Utz brand chips, cheese puffs and potato sticks say gluten free right on the back on their safe flavors.

Quaker rice cake say gluten-free on them also for safe flavors my girl likes the Caramel and Chocolate

Newmans Own Soy Crisps, Cinnamon and sugar are OK

Sweet's:

Enjoy life, Snickerdoodles are really good(not cheap)try the 2 pack first usually $1 each

We also like Bob's red mill Choc chip cookies, I mix the whole batter and freeze half, bake the other half and store cookies on air tight container

Glutino cereal bars are ok

Glenny's has a rice krispie bar, we haven't tried it.

K-Kritters animal crackers (these are like a SUGAR cookie )

I find it's worth baking brownies (pamela's or Bob's) or a cake( Pamela's) and packing those up for snacks, cheaper for sure.

UDI's white bread is the closest we have found to a wheat bread, My 6yr old is enjoying her PBJ sandwiches again. My girl also likes Tapioca loaf from Energ, It's kinda a weird semi-hard white bread but it does have more protein and fiber than the other Energ breads so she get that for bologna and turkey (Oscar Mayer) and Udi's for PBJ.

Ocean state job lot also carries a decent selection of corn and rice pasta the cheapest prices I have found. FYI Kraft brand mac and cheese cheese packet is gluten-free, NOT the pasta, If you have any keep the cheese packet for a gluten-free pasta, it is much better that Annies brand IMO

The hardest part once you find product you like is finding the best price, expect to spend a lot more grocery money the first month, then know it will get better as you shop around and get to know brands.

Don't know what state you are in but here are my shopping stores in Ma.

In MY OPINION:

Whole foods: most options also most expensive

Stop and shop , less options cheaper prices

Hannaford, decent selections, average prices

Ocean state job lot, average to cheaper price , lots of Bob Red Mill product and occasional chip and cracker selections.

Walmart , very small selection, cheapest prices

Target, I have heard they sell gluten-free but the ones near me do not

My girl has 2 weeks of girl scout camp in July and I found Smoreables for her gluten-free smores at Whole foods, so she can even have that.

Good luck

Wow, thank you so much for all of those GREAT suggestions!! Appreciate it. Emily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast

It gets easier--especially as she feels better.

Cookies are hard because nothing tastes quite right until their taste buds adjust, but many regular fruit snacks are just fine and nice and sugary. Plain Fritos, popcorn, Smart Food, Lays Stax are all gluten-free and very mainstream.

I found that finding mainstream junk food was very important in the recovery process for my daughter who was diagnosed when she was 9. Over time we began introducing gluten free cookies, cakes, etc. once she had some distance between remembering what the gluten stuff tastes like.

Pamela's chocolate cake mix is great, too, and basically the same tasting as the gluten counterpart. Nice thing about summer coming up is she has a whole length of time to recover away from school (which brings on a whole host of other worries and concerns).

My daughter was diagnosed right before summer vacation, too, and it actually worked out VERY well.

seezee Explorer

It gets easier--especially as she feels better.

Cookies are hard because nothing tastes quite right until their taste buds adjust, but many regular fruit snacks are just fine and nice and sugary. Plain Fritos, popcorn, Smart Food, Lays Stax are all gluten-free and very mainstream.

I found that finding mainstream junk food was very important in the recovery process for my daughter who was diagnosed when she was 9. Over time we began introducing gluten free cookies, cakes, etc. once she had some distance between remembering what the gluten stuff tastes like.

Pamela's chocolate cake mix is great, too, and basically the same tasting as the gluten counterpart. Nice thing about summer coming up is she has a whole length of time to recover away from school (which brings on a whole host of other worries and concerns).

My daughter was diagnosed right before summer vacation, too, and it actually worked out VERY well.

seezee Explorer

My sister and mother bought me a nice stand mixer and I make cookies now. We had bad luck with the gluten-free versions as they were also generally everything else free (eggs, dairy, etc.), so can be kind of made with rice and sugar and they are super expensive. There are a couple brands of gluten-free flour that you can replace 1-1 in recipes with wheat flour. I think King Arthur is releasing one shortly. We also liked Mr. Ritts. Right now we have one called Domata (Open Original Shared Link) that I bought a health food store (Open Original Shared Link) that specializes in hard to find gluten free stuff. Their daughter has celiac. I can use it in any recipe 1-1 with wheat flour and get good results. People don't seem to notice that the cookies are gluten-free at all with this one. Of course we all gained a bit of weight from baking so much. Also, Whole Foods has a good return policy so if you get something you hate return it.

Of the store bought cookies she likes the glutino oreo type cookies and another one that is like a kit kat called milk chocolate candy bar by glutino that is really pretty good. Those are individually wrapped so are good for lunch boxes. There are carmel corn rice cakes by Hanes that are at whole foods that are good too, kettle corn, cheetos, dried fruit, nuts, ice cream.

When we were in Europe we discovered that they have much tastier products so if you know anyone over there ask them to send you some. We loved the free-from line from Sainsbury's. We also had a friend in Germany who sent us some great stuff. Most stores over there have a section with stuff that is like other European cookies but gluten-free.

CeliacMom2008 Enthusiast

Caution - last time I checked only the LARGE quaker rice cakes were gluten-free. The minis were not.

One thing that helped my son a lot (8 1/2 at diagnosis) was to keep all the labels of the different things we tried. We would make a big fuss about writing on them - GREAT! LOVED IT! or YUCK! DISGUSTING! Then we would keep all the labels in a drawer. This had a couple of outcomes for us - one, he felt in control of deciding if he'd ever eat it again. Two, you think you'll be able to remember what you've tried and liked, but you will forget. Having a stash to go back and look at saves you from buying things over that you already determined you didn't like.

You may have struck out so far, but don't fret. There are loads of great gluten-free products, and unfortunately, there are loads of terrible gluten-free products. If you try one brand of something and it's bad don't assume all products of that type are bad. And you'll find huge ranges in what people on here like and don't like. We've found a couple products that people rave about that we really don't care for.

Here are a few that have withstood the "kid" test several times over. This would the "bring a non-Celiac friend over and feed it to them" test:

Bell & Evans Chicken Nuggets and Tenders (be sure to get gluten-free version, they also sell non-gluten-free) - These are fantastic in our opinion.

Pamela's Pancake mix - makes great pancakes for breakfast and many kids eat PB&J on pancakes. My son actually was actually the cause of a stir at school lunches. Moms were coming up and joking about how now their kid didn't want Uncrustables, they wanted pancake PB&J!

Gluten Free Sensations Chocolate Chip Cookie Mix (available online) - These are always a hit at parties and school functions. Soft cookie with no aftertaste at all.

Kinnikinnick cake mixes - Zero aftertaste. I use these for all birthday parties, soccer team parties, and basketball team parties. There are never any leftovers.

Pamela's Chocolate Chunk cookies (prepackaged) - a little pricey, but great. My personal weakness! (and I'm not a Celiac!)

Lastly, over time your kiddo will forget what gluten tastes like. At first I could tell very easily if something was gluten-free. It's getting harder and harder as time goes by - and I still eat gluten outside of the house. Your taste buds adjust. Some flours do have a heavier aftertaste - bean flours being one. Eventually you can introduce these for healthier options, but at first I'd just stick with whatever tastes good to her!

Grace'smom Explorer

Caution - last time I checked only the LARGE quaker rice cakes were gluten-free. The minis were not.

One thing that helped my son a lot (8 1/2 at diagnosis) was to keep all the labels of the different things we tried. We would make a big fuss about writing on them - GREAT! LOVED IT! or YUCK! DISGUSTING! Then we would keep all the labels in a drawer. This had a couple of outcomes for us - one, he felt in control of deciding if he'd ever eat it again. Two, you think you'll be able to remember what you've tried and liked, but you will forget. Having a stash to go back and look at saves you from buying things over that you already determined you didn't like.

You may have struck out so far, but don't fret. There are loads of great gluten-free products, and unfortunately, there are loads of terrible gluten-free products. If you try one brand of something and it's bad don't assume all products of that type are bad. And you'll find huge ranges in what people on here like and don't like. We've found a couple products that people rave about that we really don't care for.

Here are a few that have withstood the "kid" test several times over. This would the "bring a non-Celiac friend over and feed it to them" test:

Bell & Evans Chicken Nuggets and Tenders (be sure to get gluten-free version, they also sell non-gluten-free) - These are fantastic in our opinion.

Pamela's Pancake mix - makes great pancakes for breakfast and many kids eat PB&J on pancakes. My son actually was actually the cause of a stir at school lunches. Moms were coming up and joking about how now their kid didn't want Uncrustables, they wanted pancake PB&J!

Gluten Free Sensations Chocolate Chip Cookie Mix (available online) - These are always a hit at parties and school functions. Soft cookie with no aftertaste at all.

Kinnikinnick cake mixes - Zero aftertaste. I use these for all birthday parties, soccer team parties, and basketball team parties. There are never any leftovers.

Pamela's Chocolate Chunk cookies (prepackaged) - a little pricey, but great. My personal weakness! (and I'm not a Celiac!)

Lastly, over time your kiddo will forget what gluten tastes like. At first I could tell very easily if something was gluten-free. It's getting harder and harder as time goes by - and I still eat gluten outside of the house. Your taste buds adjust. Some flours do have a heavier aftertaste - bean flours being one. Eventually you can introduce these for healthier options, but at first I'd just stick with whatever tastes good to her!

Great advice, thank you! Especially excited about the pancake recommendation...my husband makes them all the time for our 5 kids. I was sad thinking it may be hard to find a "good" gluten free brand. So grateful, Emily

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,291
    • Most Online (within 30 mins)
      7,748

    DottieLyn
    Newest Member
    DottieLyn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.