Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Almost Glutened At A Restaurant

TAMI2382

By TAMI2382
in Gluten-Free Restaurants

Recommended Posts

TAMI2382 Rookie
TAMI2382
Posted

Hi Everyone!

I'm a newbie to being gluten free and to this forum. I self diagnosed myself about 2 month. I was dismissed by my primary care doctor. My GI doctor ran some test but they all came back normal. I'm going for an endoscopy at the end of the month (which I am really nervous about). My conclusion has been that even if I'm not gluten intolerent, I have never felt so good in my life (not perfect but so much better)! And I lost 15 pounds!

Anyway, recently I ordered some gluten free lunch from PF Changs. I was very specific about my needs. It's about a 10 minute walk to there from where I work. When I got back to my desk and opened my food something made me question it before I ate it. I checked my reciept and it did not say gluten free. I called PF Changs and sure enough my meal was not gluten free. They told me they would make me another one but I didn't want to walk all the way back over there and at that point I didn't trust them.

Has this happened to anyone? When you're about to eat something and all of a sudden you think somethings wrongs? Sometimes I think I'm over cautious but I guess I have to be! It's like having a sixth sense!

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


conniebky Collaborator
conniebky
Posted

Hi Everyone!

I'm a newbie to being gluten free and to this forum. I self diagnosed myself about 2 month. I was dismissed by my primary care doctor. My GI doctor ran some test but they all came back normal. I'm going for an endoscopy at the end of the month (which I am really nervous about). My conclusion has been that even if I'm not gluten intolerent, I have never felt so good in my life (not perfect but so much better)! And I lost 15 pounds!

Anyway, recently I ordered some gluten free lunch from PF Changs. I was very specific about my needs. It's about a 10 minute walk to there from where I work. When I got back to my desk and opened my food something made me question it before I ate it. I checked my reciept and it did not say gluten free. I called PF Changs and sure enough my meal was not gluten free. They told me they would make me another one but I didn't want to walk all the way back over there and at that point I didn't trust them.

Has this happened to anyone? When you're about to eat something and all of a sudden you think somethings wrongs? Sometimes I think I'm over cautious but I guess I have to be! It's like having a sixth sense!

Thanks!

I just posted last week about the great experience I had at PF Changs. And YES! I have had that feeling, outta nowhere - must be Angels!

precious831 Contributor
precious831
Posted

Hi Everyone!

I'm a newbie to being gluten free and to this forum. I self diagnosed myself about 2 month. I was dismissed by my primary care doctor. My GI doctor ran some test but they all came back normal. I'm going for an endoscopy at the end of the month (which I am really nervous about). My conclusion has been that even if I'm not gluten intolerent, I have never felt so good in my life (not perfect but so much better)! And I lost 15 pounds!

Anyway, recently I ordered some gluten free lunch from PF Changs. I was very specific about my needs. It's about a 10 minute walk to there from where I work. When I got back to my desk and opened my food something made me question it before I ate it. I checked my reciept and it did not say gluten free. I called PF Changs and sure enough my meal was not gluten free. They told me they would make me another one but I didn't want to walk all the way back over there and at that point I didn't trust them.

Has this happened to anyone? When you're about to eat something and all of a sudden you think somethings wrongs? Sometimes I think I'm over cautious but I guess I have to be! It's like having a sixth sense!

Thanks!

I have eaten there 4x and got sick once, so there must have been some confusion. The one time I got sick was when my sister ordered it for me.

Other than that I've been fine. I do that too, sometimes there's just that feeling something isn't right!

Darissa Contributor
Darissa
Posted

Don't hesitate to try PFChangs again! We love PFChangs and when we travel, we are very happy when we find out if the city we are staying in has one. We have eated at PFChangs in 5 different states and have always had a good experience! Good luck with the new gluten free diet!

jerseyangel Proficient
jerseyangel
Posted

I've had nothing but good luck with PF Changs both in the restaurant and take-out. No matter, though, I always double check with take-out and make sure the food comes on a round plate when dining in. Anyone can make a mistake ;)

Glad you caught it!

luvs2eat Collaborator
luvs2eat
Posted

I went to a restaurant a few years ago and they were happy to tell me that another server had celiac so she came over and told me all the things I could eat on the menu. My dinner came w/ a dessert of rice pudding... and just as I was about to put the first spoonful into my mouth, this celiac server HAPPENED by, saw me, and nearly knocked the spoon out of my hand!! Came to find out that their rice pudding IS NOT rice, but orzo pasta!!

First and last time I ate there!!

conniebky Collaborator
conniebky
Posted

I've had nothing but good luck with PF Changs both in the restaurant and take-out. No matter, though, I always double check with take-out and make sure the food comes on a round plate when dining in. Anyone can make a mistake ;)

Glad you caught it!

Hey Patti! What do you mean it was on a round plate? Is that a PF Changs thing? When I had it, it was carry out. but I'm going to have my birthday dinner there, so trying to find out everything I can LOL!~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


conniebky Collaborator
conniebky
Posted

I've had nothing but good luck with PF Changs both in the restaurant and take-out. No matter, though, I always double check with take-out and make sure the food comes on a round plate when dining in. Anyone can make a mistake ;)

Glad you caught it!

Hey Patti! What do you mean it was on a round plate? Is that a PF Changs thing? When I had it, it was carry out. but I'm going to have my birthday dinner there, so trying to find out everything I can LOL!~

jerseyangel Proficient
jerseyangel
Posted

Hey Patti! What do you mean it was on a round plate? Is that a PF Changs thing? When I had it, it was carry out. but I'm going to have my birthday dinner there, so trying to find out everything I can LOL!~

Inside the restaurant, regular meals are served on plain white rectangular plates. Gluten free meals come on a round plate with the Chang's logo around the edge. :D

Takeout is packaged the same, whether gluten-free or not.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.