Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor


conniebky

Recommended Posts

conniebky Collaborator

Ok, I talked to my doctor, told him about everything. He said (regarding the hyproglycemia), he goes, "don't eat any white rice" :o I said I've been living on that. He said stop it. I asked him if he's heard of Celiac. He said, "oh, celiac is older'n dirt and it's not to be fooled with", so YAY! My old country doctor is HIP! LOL!

So, Saturday morning I'm going to the hospital for the 5 hour glucose thing, and he's also doing the gluten blood tests (told him I ain't having no C-scope), and he's ordering a hormone level, too.

So, I am so happy that I talked to him. He fussed at me, "what in this world do you mean going on a gluten diet, not feeling good and not telling me one dam word about it?"

So, yeah, he's going to take care of me, get these tests done and see what's what.

I already feel better, as silly as that sounds. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Can everyone on the forum stay at your place when we come to see your doc? :P

conniebky Collaborator

Can everyone on the forum stay at your place when we come to see your doc? :P

LOL! No, seriously I am laughing out loud! Of course! C'mon! We'll all have a blast! When he graduated, he was a doctor in Appalachia so God only knows what he saw there, he says he learned more in the hills than he did in grad school. He's been practicing since the sixties, so he knows a thing or two and keeps up on everything.

I really thought he'd be like "huh?" but yeah he was telling me all kinds of things about celiac and wheat and blood sugar. I feel soooooooo happy! :D:D

missy'smom Collaborator

That's great Connie. Sounds like you are in good hands. I had the 3 hr. glucose tolerance test. Bring plenty of reading material, distractions, busy work etc. I'm the biggest baby when it comes to blood draws and have been known to pass out but it went fine. I had wonderful lab ladies. I tell everyone, if I could do it they surely can!

After you get the OGTT results, take a look at this site so that you know what your numbers mean. Open Original Shared Link

There are some good tests out there that can be helpful. We shouldn't have to figure it out all on our own! I really hope these will provide you with some good direction.

conniebky Collaborator

That's great Connie. Sounds like you are in good hands. I had the 3 hr. glucose tolerance test. Bring plenty of reading material, distractions, busy work etc. I'm the biggest baby when it comes to blood draws and have been known to pass out but it went fine. I had wonderful lab ladies. I tell everyone, if I could do it they surely can!

After you get the OGTT results, take a look at this site so that you know what your numbers mean. Open Original Shared Link

There are some good tests out there that can be helpful. We shouldn't have to figure it out all on our own! I really hope these will provide you with some good direction.

LOL, yeah I think I;ll get me one of those variety puzzle word games books. I am not scared of the blood draws, but I am scared of passing out. That's 13 hours I have to go fasting! But if I pass out there, hell, it's better than passing out in my car, that;s for darn sure! Sorry about my typing today y;all i'm on my daughter's laptop!

txplowgirl Enthusiast

Remember you need to be eating gluten for at least 6 weeks or longer for any chance at all for the blood tests to be accurate. If you've been gluten free for a while now, they might not be positive.

missy'smom Collaborator

LOL, yeah I think I;ll get me one of those variety puzzle word games books. I am not scared of the blood draws, but I am scared of passing out. That's 13 hours I have to go fasting! But if I pass out there, hell, it's better than passing out in my car, that;s for darn sure! Sorry about my typing today y;all i'm on my daughter's laptop!

That reminds me, bring a meal with you or something that you can eat after the testing is all done, until you get your next or have something prepared at home-heat and eat. The last thing your gonna want to do is go home and cook a meal and you're not going to want to wait very long for one! Although, you will be in the hospital so hopefully they'll help you out with that-I did it in the doc's office lab so I had to fend for myself. Then again, you have the issue of getting something gluten-free at the hospital, well, it's something to think about and plan for and ask about.

It doesn't hurt to bring some company too.

Gosh, I hope you haven't experienced passing out in your car.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



conniebky Collaborator

Remember you need to be eating gluten for at least 6 weeks or longer for any chance at all for the blood tests to be accurate. If you've been gluten free for a while now, they might not be positive.

Yes, he mentioned that. He said since its been only three weeks and I've ingested some curious things, he feels it a good idea to go ahead and do it anyway, he brought that up and decided to go ahead and try.

conniebky Collaborator

That reminds me, bring a meal with you or something that you can eat after the testing is all done, until you get your next or have something prepared at home-heat and eat. The last thing your gonna want to do is go home and cook a meal and you're not going to want to wait very long for one! Although, you will be in the hospital so hopefully they'll help you out with that-I did it in the doc's office lab so I had to fend for myself. Then again, you have the issue of getting something gluten-free at the hospital, well, it's something to think about and plan for and ask about.

It doesn't hurt to bring some company too.

Gosh, I hope you haven't experienced passing out in your car.

Good thinking! Yeah, he said that I have to bring someone with me so my mom's gonna go with me. Hey! Maybe she'll take me out to eat after!! Come to think of it, its my doctor who took that picture of me in my avatar on here, when we were all out for lunch one day

I didn't pass out in my car but I almost did on Monday.

ravenwoodglass Mentor

Good thinking! Yeah, he said that I have to bring someone with me so my mom's gonna go with me. Hey! Maybe she'll take me out to eat after!! Come to think of it, its my doctor who took that picture of me in my avatar on here, when we were all out for lunch one day

I didn't pass out in my car but I almost did on Monday.

Im glad to hear you have such a great doctor. Also really, really happy you are not driving yourself. Hopefully with his wise advice and the support you have found here you will soon be a happier and healthier person.

Marz Enthusiast

He said stop it.

Haha, love your doctor! There is definitely advantages going to an older doctor - they've been around for so long, they've probably seen everything and anything that could affect the human body.

Case in point - my mom saw a an older doc a few years ago, complaining of feeling ill and her face feeling sore. The doc took one look at her and said she had mumps! She had caught it after her trip to Mozambique. I'm not sure if a younger doc would have even thought of that, since it's pretty rare nowadays. She wasn't swollen like a chipmunk, so it wasn't an obvious diagnosis.

On the other hand, I've found younger docs do have the latest information from med school. If an older doc doesn't keep himself informed, he could miss out on newer theories/diseases/diagnosis. Like how celiac is more common than thought in the past, and it's not a childhood only disease.

conniebky Collaborator

Haha, love your doctor! There is definitely advantages going to an older doctor - they've been around for so long, they've probably seen everything and anything that could affect the human body.

Case in point - my mom saw a an older doc a few years ago, complaining of feeling ill and her face feeling sore. The doc took one look at her and said she had mumps! She had caught it after her trip to Mozambique. I'm not sure if a younger doc would have even thought of that, since it's pretty rare nowadays. She wasn't swollen like a chipmunk, so it wasn't an obvious diagnosis.

On the other hand, I've found younger docs do have the latest information from med school. If an older doc doesn't keep himself informed, he could miss out on newer theories/diseases/diagnosis. Like how celiac is more common than thought in the past, and it's not a childhood only disease.

Yes, my doctor continues his education, I'm pretty sure it's required - ? The MUMPS???? Who woulda thought?

Chirpy Newbie

Wow. You have a relationship with your doc that I think most of us would LOVE to have Congratulations. That's half the battle, right there. Could you clone him, please? And distribute about 100,000 of him evenly around the country? :D

Wishing you the best with your tests and everything else.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,860
    • Most Online (within 30 mins)
      7,748

    MEK5
    Newest Member
    MEK5
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.