Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unsure Of What To Do..


kannne

Recommended Posts

kannne Explorer

I have had celiac for 10 years and for 2 years ago I got a huge antibiotic dose and I got very bad and I know have dysbioses, leaky gut ++ I have been on strict SCD for 10 months and have shown great improvement. Specially after starting with digestive enzymes in December. I am now able to eat 10 soft vegetables, meat and some type off sea food without getting pain and bms are good.

I am going to take a CDSA stool test to see if I (and my doctor) can figure out what is wrong with my gut (there is something more then only celiac..). But before I going to take CDSA I need to be medication free for 2 days and not take medication and supplements when I take the test (to days). So total of 4 days with out any enzyme or medication.. And because my stomach is very slow it will be best to be 3 days without enzymes.. So that will be 5 days without anything.

I just started with Bio Gest and S.A.T and I has really helped me. I have been able to introduce new food and I am able to DIGEST fat! I eat the chicken skin now and I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I have had celiac for 10 years and for 2 years ago I got a huge antibiotic dose and I got very bad and I know have dysbioses, leaky gut ++ I have been on strict SCD for 10 months and have shown great improvement. Specially after starting with digestive enzymes in December. I am now able to eat 10 soft vegetables, meat and some type off sea food without getting pain and bms are good.

I am going to take a CDSA stool test to see if I (and my doctor) can figure out what is wrong with my gut (there is something more then only celiac..). But before I going to take CDSA I need to be medication free for 2 days and not take medication and supplements when I take the test (to days). So total of 4 days with out any enzyme or medication.. And because my stomach is very slow it will be best to be 3 days without enzymes.. So that will be 5 days without anything.

I just started with Bio Gest and S.A.T and I has really helped me. I have been able to introduce new food and I am able to DIGEST fat! I eat the chicken skin now and I don't get any pain and the BM is very good. Before if I tried eating skin I got bloated stomach and floating poop with undigested food pieces.

Now I am taking digestive enzyme to every meal and S.A.T + Bio Gest to meals that are higher then "normal" in fat (for me).

I am just so unsure what to do because I want to take the test. But I don't want to stop enzyme because I get pain.

I'm just so confused :(

The stool test can tell you a lot, so it might be worth a bit of suffering to have it done. Just lay off the foods that normally set you off, like the chicken skin - you really don't need that anyway, use herbs and spices to give it good flavor. Eat sparingly so you don't over load your system and give it easy to digest foods, no cruciferous vegetables, no raw food; eat apple sauce, rice pudding, fin fish, cooked veggies and rice, skinless chicken, canned fruits. Hey, you can do this for a few days, really you can.:)

kannne Explorer

The stool test can tell you a lot, so it might be worth a bit of suffering to have it done. Just lay off the foods that normally set you off, like the chicken skin - you really don't need that anyway, use herbs and spices to give it good flavor. Eat sparingly so you don't over load your system and give it easy to digest foods, no cruciferous vegetables, no raw food; eat apple sauce, rice pudding, fin fish, cooked veggies and rice, skinless chicken, canned fruits. Hey, you can do this for a few days, really you can.:)

Well... I'm on SCD and I can only eat a few vegetable..

I can eat:

Broccoli

Cauliflower

Sugar snaps

Carrots

Green peas

Green beans

This vegetable needs to be boiled for 45 minutes

I can also eat:

Butternut squash

Kabocha squash

This need to be baked 1,5 hour at 400F or boiled for 1 hour.

I can eat lean meat, catfish and shrimps.

Thats it! ... :(

burdee Enthusiast

Antibiotics are notorious for killing all our good bacteria, which assist digestion in our small intestines. Digestive enzymes can help somewhat with protein and fat digestion. However, you may have very low levels of good bacteria or even some bad bugs (bacteria, parasites or fungus like candida) which moved into the space created when the antibiotic killed both bad and good bugs in your gut.

The stool test should indicate your levels of good bacteria and whether you have any bad bugs which you will need to treat. If you take more antibiotics (or antiparastic or antifungal drugs), you will need to take high dose probiotics both during and after treatment in order to prevent another gut bug infection. A good stool test lab will also test whatever gut bugs they find for sensitivites to specific drugs or herbal supplements which can kill those bugs.

I've had 8 different gut bugs (5 bacteria, 2 parasites and candida) during the past 8 years. I always take high dose probiotics during and after treatment for any gut bugs.

SUE

Mari Contributor

I use the SCD too and have been able to tolerate more foods. A few months ago I started eating goat's milk yogurt and no longer have to take probiotics or betaine to acidify my stomach. The gas and bloating problem has almost gone away after using Candida Herbs and Neem. I've had to flush out my gall bladder (liver flushes) and improve my bile pool by using gluten-free oat bran with meals. I avoid antibiotics when possible and use well tested natural methods of improving my digestion. I often visit the Forums at Curezone to see what has worked for other people.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.