Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migraines After Gluten Free

melblondin

Recommended Posts

melblondin Apprentice
melblondin
Posted

Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine by Sandoz). I've tried looking into them, but haven't been able to get an answer yet. Does anyone else know about that company or experienced something similar?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

I had occasional migraines before I went gluten free, but they really started up a few years after I was gluten free - when I moved and changed jobs. It's not always a food thing (or certainly not always a gluten thing) and they can come on at any time. For me, I suspect it was a combination of stress affecting my brain chemistry and barometric pressure changes.

Coolclimates Collaborator
Coolclimates
Posted

You are probably experiencing withdrawl symptoms. I also had lots of headaches the first few weeks of the gluten-free diet, as well as crying spells, anger and all kinds of emotions. The gluten-free diet is like quitting smoking or drugs cold turkey. Essentially, it's not much difference. If you're used to eating glutenous foods all your life and suddenly remove them and drastically change your diet, you will most likely experience withdrawl symptoms. They should improve, they were the worst for me the first couple of weeks. I hope your migranes improve soon.

T.H. Community Regular
T.H.
Posted

For me, I only had one migraine in my life before going gluten free, and after I was gluten free for a while, suddenly I get migraines if I eat peanuts. :blink: No idea why, it doesn't test positive as an allergy, but if I eat it, I get a migraine. Even ingested it accidentally twice now, same reaction.

However, re: medicines! there is a great site that is kept up by a pharmacists that lists drugs by name that are gluten free. It's kept very up to date.

Open Original Shared Link

And according to it, I'd say you are right on the money with your worries. It lists Levothyroxine as gluten free if it is made by Lannett and Movak but no other companies were listed. So that could definitely be your culprit!

Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine by Sandoz). I've tried looking into them, but haven't been able to get an answer yet. Does anyone else know about that company or experienced something similar?

melblondin Apprentice
melblondin
Posted
  • Author

Thanks everyone for the responses and esp. for that website. I had tried contacting the company, but hadn't got very far, and then ended up just getting busy with other things and forgetting all about it. I will pursue that further for sure. I haven't had another migraine since Sunday and am praying things stay that way!!!

melblondin Apprentice
melblondin
Posted
  • Author

Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that the medication is okay then???

ravenwoodglass Mentor
ravenwoodglass
Posted

Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that the medication is okay then???

I take a generic drug that Sandoz makes because the name brand isn't gluten free. I have had no issues with it. I can't of course say for sure that yours or any other they make wasn't CC'd somewhere down the line since they don't test but I would feel safe taking it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

For me, I only had one migraine in my life before going gluten free, and after I was gluten free for a while, suddenly I get migraines if I eat peanuts. :blink: No idea why, it doesn't test positive as an allergy, but if I eat it, I get a migraine. Even ingested it accidentally twice now, same reaction.

However, re: medicines! there is a great site that is kept up by a pharmacists that lists drugs by name that are gluten free. It's kept very up to date.

Open Original Shared Link

And according to it, I'd say you are right on the money with your worries. It lists Levothyroxine as gluten free if it is made by Lannett and Movak but no other companies were listed. So that could definitely be your culprit!

how soon after eating peanuts, do you get the migraine?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,159
    • Most Online (within 30 mins)
      7,748
    Laz
    Newest Member
    Laz
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By trents · Posted

      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
    • Scott Adams
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Scott Adams · Posted

      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
×
×
  • Create New...