Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From The Kansas City Area


sandy-swanson1103

Recommended Posts

sandy-swanson1103 Newbie

I was just wondering if there was anyone from the Kansas City area on here. I am new with Celiac Disease. My 7 year old daughter has it, and I have no clue what I am doing!!

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I was just wondering if there was anyone from the Kansas City area on here. I am new with Celiac Disease. My 7 year old daughter has it, and I have no clue what I am doing!!

Thanks

Me! Me! Some would say I don't know what I'm doing though. I live in Johnson county, KS

sandy-swanson1103 Newbie

Me! Me! Some would say I don't know what I'm doing though. I live in Johnson county, KS

I live in Johnson County Ks also!!!!! Did you just recently get diagnosed? Just curious as to why some people would say you didn't know what you were doing. LOL I am in that boat right now. I am still learning everything for my daughter. Where in Johnson county do you live?

kareng Grand Master

I live in Johnson County Ks also!!!!! Did you just recently get diagnosed? Just curious as to why some people would say you didn't know what you were doing. LOL I am in that boat right now. I am still learning everything for my daughter. Where in Johnson county do you live?

I was being funny. Didn't work? I'll IM you.

sandy-swanson1103 Newbie

I was being funny. Didn't work? I'll IM you.

Oh no. LOL I kinda figured, but I wasn't for sure. LOL I am new to this, so I will try and IM you back. Thanks!

  • 1 month later...
Branny Newbie

I'm over in Blue Springs, just SouthEast of the big city and have had an allergy to Gluten all my life, but only found out about two years ago what I was trying to fight. I've learned alot in this time and so if you need anything, please don't hesitate to drop me a line.

  • 1 month later...
ToriBlake Newbie

Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 months later...
GermanGirlWithCurls Newbie

Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

If you have a Hy-Vee in your area, most of them have newly expanded their Health Market sections, complete with a Gluten-Free section. I live just a few miles north of downtown K.C., and the Hy-Vee I shop at is great. They carry a very full line of Bob's Red Mill gluten-free flours and mixes, Pamela's baking mixes, lots of cookies and breads (including Udi's, which is the best pre-made gluten-free bread you can get), crackers, pastas, soups and gravy mixes all gluten-free, and really a lot of stuff I wouldn't have time to list. Although the prices can get pretty high is you are purchasing too many pre-made items. Best to buy the flours and learn how to make your own. There are tons of other great gluten-free blogs (Gluten Free Goddess, Gluten Free Mommy, Gluten Free Cooking School...just a few of my faves) from where I've really learned to bake some great muffins, cakes, casseroles, etc. Even my husband will eat some of these things, and he thinks going gluten-free is a waste of time. :-) I don't have Celiac, but I do have a very sensitive digestive system (blood type AB, we are complicated) and found that switching to a gluten-free lifestyle really helped a lot...AND I lost weight.

Try (Company Name Removed - They Spammed This Forum and are Banned) for purchasing Bob's Red Mill and other great gluten-free flours and mixes in bulk at discount prices...Amazon offers free shipping for orders over $25. I believe this how some of the serious bakers can really afford to do all the gluten-free treats and breads.

I would also be interested in a support/meet-up group. Has anyone tried searching the MeetUp groups? Or maybe put out a Craigslist ad to try and get one together on your side of the city.

GFreeMO Proficient

Kansas City here too! Way out in the boonies in Platte County. (By Snow Creek)

  • 2 months later...
majones Newbie

Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

My favorites are Whole Foods (the one on 91st and Metcalf seems more gluten-friendly) and Hyvee. Their new gluten-free section is amazing. Walmart brand stuff also will say "naturally gluten free" on it most of the time. So helpful!

Where do you go?

kareng Grand Master

My favorites are Whole Foods (the one on 91st and Metcalf seems more gluten-friendly) and Hyvee. Their new gluten-free section is amazing. Walmart brand stuff also will say "naturally gluten free" on it most of the time. So helpful!

Where do you go?

I live by you! I usually go to the WF on 119 th just for bread. I go to Hy Vee on Stateline or 135 th & Antioch for most stuff. Target, Walmart & Hen House have a few things like pasta to grab while I'm there.

I just saw that Minsky's is doing gluten-free pizza but I haven't quizzed them yet on topping procedures.

Pamela B. Apprentice

Hi; I just joined the forum. I'm in Grandview!

  • 3 months later...
MelissaBe123 Newbie

I've been looking for people in the Kansas City area too! I'm in Prairie Village and wonder if there is any support group in town.

sa1937 Community Regular

I'm jealous...I wanna move to Kansas City! :lol:

kareng Grand Master

I've been looking for people in the Kansas City area too! I'm in Prairie Village and wonder if there is any support group in town.

There is but...I never go :ph34r:

Open Original Shared Link

I'm jealous...I wanna move to Kansas City! :lol:

Come on! I'll help you find an apartment. Actually,, oldest son is going off to college....

  • 4 months later...
isntsheclever Newbie

Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

kareng Grand Master

Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

Welcome, Lee's Summit!

NateJ Contributor

Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

Yes. welcome from STL, cross state neighbor.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.