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Celiac?

hercules25

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hercules25 Apprentice
hercules25
Posted

Hi Everyone. I am so confused.

Symptoms - nausea, abdom pain, fatigue, vision problems, , tingling in feets and hands, headaches, sore muscles, constipation, bloating,

My CT scans Neg, colonoscopy shows mild inflammation where small intestines and colon meets, MRI scan normal, Gastritis in stomach, etc, etc, LOL

No fever, no bleeding

Normal blood work except:

increased eosinophils (in my blood) my doctor says this indicated to him he thinks my problems are from food allergies but I had the prick food allergy test and negative.

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Other bloodwork that is positive

Saccharomyces cervissiae, IgG 34.9 High (over 25 is Positive)

Saccharomyces cervissiae, IgA 48.5 High (over 25 is Positive)

I have been sick for 13 years and over it. Any advice would be great.

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Coinkey Apprentice
Coinkey
Posted

An easy way to find out if it's gluten related is to go gluten free for a while. I figured out my symptoms were gluten related when I ran out of money (I'm on student loans), which meant I ate all the gluteny products left in my house- leaving me with the potatoes and rice for a week. I felt SO MUCH BETTER after just one week and it finally clicked. I've been gluten free for a month (aside from accidental glutenings and they are HORRIBLE). So, just give it a try and see if anything improves! good luck!

Skylark Collaborator
Skylark
Posted

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

hercules25 Apprentice
hercules25
Posted
  • Author

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

I am not sure how I would have no damage. Its been 13 years of sick and pain. And a handful of intestinal infections. I am starting to think from the test results it is probably Chrons.

WheatChef Apprentice
WheatChef
Posted

I tested negative for IgA-TTg (the main celiac marker) and yet whenever I eat gluten it feels like I have shrapnel dragging through my intestines for a few days. The blood tests don't mean squat compared to how you react to a gluten-free diet.

Marz Enthusiast
Marz
Posted

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Hi and welcome :)

Sorry to hear you've struggled with this for so long. :( I'd recommend trying a strict gluten free diet - you have nothing to lose but restricting yourself to certain foods for a few weeks. If you notice a huge impovement, you could let your doctor know about this, and maybe see if you still need the meds? I'm surprised your Gastro didn't recommend this after the panel came back positive?

hercules25 Apprentice
hercules25
Posted
  • Author

Thanks. I am starting gluten free today. I was not sure if there were 2 different IgA and IgG test. One for Celiac and one for IBD. I guess I am just confused. After the blood test he thought ok lets treat you for Chrons but he has his doubts too. I wonder why he did not talk about Celiac. Maybe its both.

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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