Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Strictly Do You Avoid Your Igg Reaction Foods?


Chakra2

Recommended Posts

Chakra2 Contributor

I got IgG food allergy tests done by a holistic MD a few months ago. The results were divided into categories by severity. Category 1 = very mild reaction, 2 = mild, 3= moderate, 4= severe. The doc said to never eat the severe foods ever again, to avoid the moderates for 9 months, milds for 6 months, and very milds for 3 months.

I'm okay with his advice for the most part but my son's pediatrician (son got tested too) and my chiropractor/nutritionist both said they didn't believe in the IgG testing. I wasn't surprised that the pediatrician thought that, but the nutritionist is super alternative so I was surprised that even she thought I wouldn't really benefit from following that schedule. She said the test was a useful, concrete image of just how leaky my gut is but that she doesn't necessarily think that it accurately measures a specific response to individual foods.

So I was wondering if others who have done IgG testing have really followed a schedule like the one above? With what kind of result?

I only have 4 "never agains" and I'm fine avoiding those (even my mainstream primary care doc said to avoid the nevers) but one of the foods I'm supposed to avoid for nine months is rice -- easier said than done while I'm learning gluten-free/soy-free/dairy-free. My nutritionist said it just doesn't make sense to think that a person couldn't really tolerate rice for 9 months. She asked if I feel like I react badly to it but I honestly feel a little confused about some of my reactions still -- I've only been gluten free since January, and fully dairy and soy free since about April.

Chakra2


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Those tests are very inaccurate. You really need to test each specific food by first eliminating it for several weeks, then adding it back. Keep a journal and write down everything you feel while you are doing this. Note both physical and emotional/mental things (...."I seem to not get angry as much"....).

If any of the foods on your 'reactive' list have no response in your body, then eat them whenever you want.

burdee Enthusiast

I got IgG food allergy tests done by a holistic MD a few months ago. The results were divided into categories by severity. Category 1 = very mild reaction, 2 = mild, 3= moderate, 4= severe. The doc said to never eat the severe foods ever again, to avoid the moderates for 9 months, milds for 6 months, and very milds for 3 months.

I'm okay with his advice for the most part but my son's pediatrician (son got tested too) and my chiropractor/nutritionist both said they didn't believe in the IgG testing. I wasn't surprised that the pediatrician thought that, but the nutritionist is super alternative so I was surprised that even she thought I wouldn't really benefit from following that schedule. She said the test was a useful, concrete image of just how leaky my gut is but that she doesn't necessarily think that it accurately measures a specific response to individual foods.

So I was wondering if others who have done IgG testing have really followed a schedule like the one above? With what kind of result?

I only have 4 "never agains" and I'm fine avoiding those (even my mainstream primary care doc said to avoid the nevers) but one of the foods I'm supposed to avoid for nine months is rice -- easier said than done while I'm learning gluten-free/soy-free/dairy-free. My nutritionist said it just doesn't make sense to think that a person couldn't really tolerate rice for 9 months. She asked if I feel like I react badly to it but I honestly feel a little confused about some of my reactions still -- I've only been gluten free since January, and fully dairy and soy free since about April.

Chakra2

My IgG mediated allergies were diagnosed by ELISA blood test. My doc told me to just disregard the 'low' reaction and heed the 'moderate to high' reaction results. Every one of the foods (eggs, nutmeg, vanilla and cane sugar) in that latter category cause me painful gastrointestinal symptoms, except cane sugar, which causes 2-3 days of tachycardia and nausea. I absolutely avoid those foods, because I get obvious and uncomfortable reaction symptoms, which get even more intense after abstaining from those for long periods. So I will never be able to return to eating them, because my body won't forget how to make antibodies to those foods.

I also was diagnosed with IgA mediated allergies (intolerances?) to gluten, casein and soy. All those foods cause intense painful gastro symptoms. So I will never purposely consume any of those foods.

SUE

Skylark Collaborator

Your nutritionist is absolutely correct. The schedule is really silly.

The use for IgG tests is as a guide, not to absolutely identify foods you can't ever eat. There really is no accurate test for food allergies and intolerances other than an elimination diet, but the IgG tests are supposedly helpful in narrowing down what might cause issues. Talk to your nutritionist (she sounds smart!) about how to set up an elimination diet to see whether you are sensitive to the foods with medium to high results.

Remember that as your body heals, you may come to tolerate some of your IgG foods again. If a food is fully, correctly digested in the intestine, it doesn't make it to the bloodstream to interact with IgG.

Juliebove Rising Star

I've had two IGg tests done and so has my daughter. The results did not have things like mild or severe. We avoid all food that show an allergy all together. The Dr. said my egg was the highest one he had ever seen. And I did have severe reactions to eggs. I only knew this because daughter had previously been diagnosed with an egg allergy. So I quit buying them.

Then I got some egg salad from the salad bar for myself. Got sick something like 16 hours later. Did not make the connection to the egg, so ate the rest of it. This time the reaction was a half an hour later.

Some months went by. Had bought eggs for my husband. He didn't eat them. So I boiled them and made egg salad. Ate it twice. Same exact reaction. So... Suddenly a light bulb went off in my head! All those times I had gotten sick in the past and didn't know why. Eggs! Because of the delayed reaction, it made it hard to see. But I will never eat an egg again.

Daughter has since outgrown the egg, dairy, soy and banana allergies. But the egg was close to the line. So the Dr. told her to eat no more than once a week, avoidance would really be the best. The rest could be eaten no more than twice weekly and not on subsequent days.

We still avoid soy at least in the form of soybeans and soy protein because it messes with my thyroid. We do figure we will get soybean oil in restaurants. And we do eat some soy lecithin.

I outgrew the dairy but the Dr. told me to avoid it. I did this for a while. But I really wanted it. So, like my daughter, I started eating it twice a week. But I am not so sure this is a good idea. Sometimes I get sick to my stomach. I do have other medical digestion issues. So I just don't know...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,368
    • Most Online (within 30 mins)
      7,748

    Jdhunt
    Newest Member
    Jdhunt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...