Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh And Iodine


rdunbar

Recommended Posts

rdunbar Explorer

Does anyone know anything about how/ why iodine makes DH worse?

I've just learned this recently from a friend who attended a celiac conference at Stanford with Dr Peter Green

I'm avoiding seafood and iodized salt for the last few weeks and I'm getting better

when I first went super hardcore gluten casien free a few months ago and was using no salt at all my DH improved a lot. It was almost shocking

then I phased in seasalt and it got worse. Apparantly seasalt has some iodine

what has me concerned me now is I just noticed that on my Nordic naturals fishoil label it says consult a pysician if you have an allergy to iodine

i keep hearing fishoil is important because it's maybe the only source of long chain omega 3s. I naively assumed iodine would be taken out of the fishoil along with the heavy metals

but do I have to drop the fishoil for now until my DH clears up??

I've been suffering with this so long sometimes it seems like it will never go away

I geuss it's always something but how many obstacles do you have to get past?

What has been your experience with iodine?

What else do I need to consider to get bettter here?

Thanks for any input everyone


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RoseTapper Newbie

Yes, I also learned from Peter Green (from reading his book--which is great, BTW) about iodine, and it explained why I was able to control the DH for most of my adult life. I actually thought I had an allergy to iodine, since the blistery rash appeared after I ate something with iodine in it. One place for iodine contamination that most people don't look for is dairy products. Even though the milk and other dairy products won't list iodine in them, they do, in many cases, contain sometimes large amounts of iodine. I've found that organic milk and dairy products are safer.

I don't know if you really need to give up the fish oil, though there are better sources of Omega 3's than fish oil. Brian Peskin wrote a book called, "The Hidden Story of Cancer," and other books on diet, and I follow his recommendations on this matter. He says that fish oil causes arterial inflammation and exacerbates diabetes (and he backs these statements up with studies). Your best bet would be to take 1/2 teaspoon of organic flaxseed oil with 3/4 teaspoon of organic safflower oil or grapeseed oil. This combination with give you what is called Parent Essential Oils (Omega 3s and 6s), which will oxygenate all of your cells. You'll not only feel more energetic, you'll be protected from cancer because cancer cells can't grow in an aerobic environment. That's the idea in a nutshell.

linuxprincess Rookie

Yes, I've heard of the link between iodine and DH before. There was a community member here who greatly helped me in cutting out my salt intake after I was still suffering with DH despite a gluten-free/CF diet for nearly two years. Now, with little to no iodine in my diet, I can keep my DH in check about 95% of the time.

The way it was explained to me - pardon me for not citing the actual source here, I scoured for a while beofore giving up - is that iodine is needed to carry out the chemical reaction that forms the blisters or hot spots for DH.

Hope this helps and hope your road to recovery has a less itchy future! :)

RoseTapper Newbie

Oh, BTW, asparagus is also high in iodine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,064
    • Most Online (within 30 mins)
      7,748

    Lexxi Hartless
    Newest Member
    Lexxi Hartless
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...