Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Glutening. Crap!


AmandaD

Recommended Posts

AmandaD Community Regular

Hi guys:

It's AmandaD. Need some tricks to help me get back on my feet.

On both Friday and Saturday afternoon we had to eat out. I was very careful and tried to explain everything to everyone, but last night in the middle of the night I woke up with the Big D and feeling like vomiting. I seem to have reacted to something I'm guessing (?) because it's been a seriously long time since I've had a good old gluten accident.

I need to be healthy this week. I have a job interview and tons of work. What can I do (or maybe what do you do?) to make myself get better faster. The gut cramps and nausea is really irritating - it's even made me tired!

Thanks as always (as a reminder I have biopsy diagnosed Celiac Sprue. Blech!)

Amanda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

Ask your doctor for a prescription for melt away tabs of Zofran (Ondansetron), it's an anti nausea, and a pain killer. It doesn't do anything for the D but it DOES get the cramps to lessen enough so I can move out of a ball, and gets the nausea under control. MY doctor gives me Loritabs for when I get hit because it has a tendency to constipate which helps a tiny bit for the D. When I get hit I take a zofran immediately and then a half a loritab and it helps me return to somewhat normal. I actually pretty much lived on this the past week because of all the wheat eaters who kept getting me!

I sincerely hope you get better soon, people are not understanding of what we deal with a lot of the time.

AmandaD Community Regular

Thanks K8ling!

Lord, how long do your reactions last...I keep trying to remember but I think mine run their course in about a week...

(Loritab - that reminds me of the name of an allergy med...)

Ask your doctor for a prescription for melt away tabs of Zofran (Ondansetron), it's an anti nausea, and a pain killer. It doesn't do anything for the D but it DOES get the cramps to lessen enough so I can move out of a ball, and gets the nausea under control. MY doctor gives me Loritabs for when I get hit because it has a tendency to constipate which helps a tiny bit for the D. When I get hit I take a zofran immediately and then a half a loritab and it helps me return to somewhat normal. I actually pretty much lived on this the past week because of all the wheat eaters who kept getting me!

I sincerely hope you get better soon, people are not understanding of what we deal with a lot of the time.

Skylark Collaborator

Ugh. Sorry to hear you got CC'd.

I use Immodium for D, and once its settled I switch to Pepto Bismol for the nausea. I don't know a way to settle down the autoimmunity so I just take things that help the symptoms.

jerseyangel Proficient

Hi Amanda, sorry about the reaction :(

I use Immodium for the D, try and keep well hydrated, and also I feel better if I eat smaller amounts of food more often. A little something in my stomach seems to help the queasiness--bland things like banana, baked potato, etc. Whatever sounds good to you.

Hope you feel better soon!

AmandaD Community Regular

Thanks (as always, Patti!!!)

You know what's funny...i felt tonight like making minute rice, some cheddar cheese and ground sirloin all in a skillet as a make-shift casserole. I might have an upset stomach but when this happens I actually FEEL like eating, which always surprises me!

I just realized that this is the same type of food I make for my dog when they get stomach upset :o)!

Hi Amanda, sorry about the reaction :(

I use Immodium for the D, try and keep well hydrated, and also I feel better if I eat smaller amounts of food more often. A little something in my stomach seems to help the queasiness--bland things like banana, baked potato, etc. Whatever sounds good to you.

Hope you feel better soon!

K8ling Enthusiast

Thanks K8ling!

Lord, how long do your reactions last...I keep trying to remember but I think mine run their course in about a week...

(Loritab - that reminds me of the name of an allergy med...)

I just realized I wasn't exactly clear with that.. hang on let me try this again:

Ondansetron (Zofran) is an anti nausea.

Loritabs are pain pills. I take both of them when I get hit. Sorry, was typing with a 2 year old on my lap lol.

My gross part is about 5 hours of laying around on the bathmat balled up, or in a HOT bath. Then I spend the next few days in bed or on a couch sipping chicken broth. Luckily (or unluckily) my reactions got more severe when I went gluten-free BUT they don't last nearly as long, they're over far quicker. I got glutened Thursday afternoon and then was back to almost normal food by Friday at lunch (Still had cramps but I the loritabs work for about 8 hours so i was able to take a book out on the deck).

I hope you feel better soon! Also, a hot heating pad helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

You know what's funny...i felt tonight like making minute rice, some cheddar cheese and ground sirloin all in a skillet as a make-shift casserole. I might have an upset stomach but when this happens I actually FEEL like eating, which always surprises me!

I just realized that this is the same type of food I make for my dog when they get stomach upset :o)!

When you think about it, we are conditioned to think: stomach troubles = not wanting to eat, as in a stomach virus or food poisoning. Seems counter-intuitive, but I always suggest trying to eat at least a little something.

Your casserole sounds good :D

Coinkey Apprentice

I use bentonite clay- the liquid one that you mix with water. It's got strong magnetic properties and your body doesn't absorb it, so it goes straight through pulling all the toxins from the bowels as it goes. It doesn't fix the symptoms but it gets the gluten out much faster making the symptoms go away faster. I haven't used it for diarrhea and nausea but I have used it when I get painful gas, fuzzy brain and anxiety. You can find it at the local health nut store. Make sure you take fibre with it because it can cause constipation.

knittingmonkey Newbie

I use bentonite clay- the liquid one that you mix with water. It's got strong magnetic properties and your body doesn't absorb it, so it goes straight through pulling all the toxins from the bowels as it goes. It doesn't fix the symptoms but it gets the gluten out much faster making the symptoms go away faster. I haven't used it for diarrhea and nausea but I have used it when I get painful gas, fuzzy brain and anxiety. You can find it at the local health nut store. Make sure you take fibre with it because it can cause constipation.

Gasp! :o That's what I do!!!

Thank goodness now I've read someone does that same thing. You have made my day! Mmmmmwaaaah! Mmmmmmwaaaah! I'm not crazy! :rolleyes:

It's especially effective on food poisoning, and there's nothing that can beat it for treating diarrhea. It's healing for the small intestine and colon, and can neutralize stomach acid faster and better than any other remedy. I take a tablespoonful of it four times a week now as I inch the dose towards daily, my skin is lovely, my hair is thick and curly again... I think it cures almost everything! All those minerals and other goodness. Sigh. :D

AmandaD Community Regular

Bentonite clay? NEVER heard of this - going to go read about it right now!!!!!!!!!

Gasp! :o That's what I do!!!

Thank goodness now I've read someone does that same thing. You have made my day! Mmmmmwaaaah! Mmmmmmwaaaah! I'm not crazy! :rolleyes:

It's especially effective on food poisoning, and there's nothing that can beat it for treating diarrhea. It's healing for the small intestine and colon, and can neutralize stomach acid faster and better than any other remedy. I take a tablespoonful of it four times a week now as I inch the dose towards daily, my skin is lovely, my hair is thick and curly again... I think it cures almost everything! All those minerals and other goodness. Sigh. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.