Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Dh Be In One Small Place?


Skylark

Recommended Posts

Skylark Collaborator

In that thread about itching, I just made a connection. I used to get INTENSE itching on my right index finger, and a couple days later I would get one or two tiny blisters. A friend saw me picking at this rash once and told me it was probably herpes whitlow. I looked it up and herpes simplex is able to live in the nerves at the base of the hand and cause blistering on the fingers. I have had some itching but no blistering in the past few years since I've been really careful about gluten and now I'm wondering if it could be DH?

Can DH show up in a tiny patch in almost the same place (anywhere along my right index finger) over and over again and nowhere else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

In that thread about itching, I just made a connection. I used to get INTENSE itching on my right index finger, and a couple days later I would get one or two tiny blisters. A friend saw me picking at this rash once and told me it was probably herpes whitlow. I looked it up and herpes simplex is able to live in the nerves at the base of the hand and cause blistering on the fingers. I have had some itching but no blistering in the past few years since I've been really careful about gluten and now I'm wondering if it could be DH?

Can DH show up in a tiny patch in almost the same place (anywhere along my right index finger) over and over again and nowhere else?

I don't know much about DH, but I had the exact thing happen to me in the year or so before I went gluten-free. As I got sicker, I would also get a few on the underside of my forearm. It's not happened since, it's been a little over 5 years.

ravenwoodglass Mentor

I have had my DH under control now for years, I had it extensively for most of my life. Now if I get a good glutening I get one or two little blisters, usually on my pinky fingers. Can't say for sure what you are getting is DH but if it gets worse and starts showing up in other areas cut the iodine out of your diet for a while.

After the antibodies are gone from the dermis then iodine won't cause a reaction. For me at first that took about 2 years but I now can take vitamins with iodine and use iodized salt with no issues.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.