Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intestinal Healing In Celiac

Dino

Recommended Posts

Dino Rookie
Dino
Posted

I have been gluten free for about 2 months. Things seem to be getting better although once in a while I seem to get hit with something that is similar to a gluten hit. Probably some sneaking in as I get used to the new lifestyle. I do have a couple of questions though. Should I back off of coffee. I enjoy it and it did not seem to cause any problems but it has been suggested that it might slow down healing. Also has anyone had any experience with plant enzymes helping in healing?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kay DH Apprentice
Kay DH
Posted

My doctor said coffee, even decaffeinated, can relax the esophageal sphincter and increase acid reflux. It also seems to have an effect on IBS such that it encourages food to move through the digestive track at a faster pace. Perhaps you are either having problems with contamination or cross-contamination of gluten, or the coffee is causing GI problems? Writing down you rmeals and marking any GI or other problems may help to pin down the problem. I got sick from gluten-free hummus (small print processed in same plant with wheat...) and from a gluten-free cupcake that was in a bag that had a non-gluten-free roll. Best of luck with your investigations. I'm new to gluten-free and it is quite the life change, and one that few people understand.

RoseTapper Newbie
RoseTapper
Posted

Celiac experts oftentimes recommend taking L-Glutamine to heal the gut, and also Metagenics Medical Food has been recommended to me. I put it in my morning smoothie for about a year, and it helped my digestion a lot. You don't have to take the full amount it suggests--just one scoop is all you need to feel better.

burdee Enthusiast
burdee
Posted

Celiac experts oftentimes recommend taking L-Glutamine to heal the gut, and also Metagenics Medical Food has been recommended to me. I put it in my morning smoothie for about a year, and it helped my digestion a lot. You don't have to take the full amount it suggests--just one scoop is all you need to feel better.

I second the L-Glutamine suggestion. I'm taking that 2x daily now to heal damage from long misdiagnosed celiac disease, food allergies, and 8 gastrointestinal infections (including pathogenic bacteria, 2 parasites and candida). I'll take that for at least 6 weeks and then assess my progress.

SUE

Dino Rookie
Dino
Posted
  • Author

How much L-Glutamine have you guys been taking.

Gfresh404 Enthusiast
Gfresh404
Posted

I have been gluten free for about 2 months. Things seem to be getting better although once in a while I seem to get hit with something that is similar to a gluten hit. Probably some sneaking in as I get used to the new lifestyle. I do have a couple of questions though. Should I back off of coffee. I enjoy it and it did not seem to cause any problems but it has been suggested that it might slow down healing. Also has anyone had any experience with plant enzymes helping in healing?

I would lay off the coffee for a while - see if you notice an improvement. I believe it is an irritant to the GI tract.

The "gluten-like" poisonings that you describe is most likely either cross contamination or lactose intolerance.

You also have my vote for the Glutamine supplementation, but I would be very careful with it. Most of the studies have shown little to no side effects, but I still don't buy it. I take two grams once a week on an empty stomach with some enzymes. But I have noticed some personality changes after taking it, mostly depression. Theoretically it could also cause some brain damage. It is a natural substance (the most abundant amino acid in the body), but it does not occur by itself in virtually almost any dose. The only reason I still take it is because I believe the benefits outweigh the risks. Just monitor yourself as you take it.

Enzymes also helped me greatly - I'm not sure if it was so much with healing, but more just energy levels.

Dino Rookie
Dino
Posted
  • Author

Ok, I will lay off the coffee, I hear camomile tea is good for the gut so I will trade in my coffee for now. I also am going to start to take probiotics as well as some L-glutamine and see if that all helps. I have been feeling better over all but am kind of tired of the days when I don't so I will be much more consistent and hopefully these things will help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

How much L-Glutamine have you guys been taking.

I'm taking one rounded teaspoonful of L-glutamine powder dissolved in a cup of water 2x daily (when I first wake up and before bed) for at least the next 5 weeks. However, I'm using that to treat stomach damage from the H. Pylori bacteria as well as longterm celiac damage. I wasn't diagnosed with celiac disease until I was 56, but I had symptoms for at least 15 years before that. So like other adults diagnosed in middle age, I may still have unhealed intestinal lesions from celiac disease. Hopefully the LG will heal all that.

SUE

Gfresh404 Enthusiast
Gfresh404
Posted

Ok, I will lay off the coffee, I hear camomile tea is good for the gut so I will trade in my coffee for now. I also am going to start to take probiotics as well as some L-glutamine and see if that all helps. I have been feeling better over all but am kind of tired of the days when I don't so I will be much more consistent and hopefully these things will help.

Things will only get better.

Dino Rookie
Dino
Posted
  • Author

I am not sure but does getting "glutened" affect the psyche? It seems that a couple of days after getting hit and the gut seems to feel better my mood stinks. I get angry much easier and go into a depressed mood. This lasts for a day or two. Anybody else experience this?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal. Were any other antibody tests run?
    2. trents
      - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

      The practical takeaway: "For people who care about celiac disease, especially families who have children at higher risk, the findings highlight the importance of self-advocacy." It's the only parameter that the affected individual or their family members have control over. We need to learn to become "politely pushy" in order to get proper testing done when...
    3. Russ H
      - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility...
    4. Scott Adams
      - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

      This technology is currently years away, as it will need to go through an extensive FDA approval process.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,001
    • Most Online (within 30 mins)
      7,748
    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • RMJ
      Positive biopsy

      By RMJ · Posted

      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      Positive biopsy

      By Russ H · Posted

      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      Positive biopsy

      By Scott Adams · Posted

      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Help understand results

      By trents · Posted

      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.