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Intestinal Healing In Celiac

Dino

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Dino Rookie
Dino
Posted

I have been gluten free for about 2 months. Things seem to be getting better although once in a while I seem to get hit with something that is similar to a gluten hit. Probably some sneaking in as I get used to the new lifestyle. I do have a couple of questions though. Should I back off of coffee. I enjoy it and it did not seem to cause any problems but it has been suggested that it might slow down healing. Also has anyone had any experience with plant enzymes helping in healing?

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Kay DH Apprentice
Kay DH
Posted

My doctor said coffee, even decaffeinated, can relax the esophageal sphincter and increase acid reflux. It also seems to have an effect on IBS such that it encourages food to move through the digestive track at a faster pace. Perhaps you are either having problems with contamination or cross-contamination of gluten, or the coffee is causing GI problems? Writing down you rmeals and marking any GI or other problems may help to pin down the problem. I got sick from gluten-free hummus (small print processed in same plant with wheat...) and from a gluten-free cupcake that was in a bag that had a non-gluten-free roll. Best of luck with your investigations. I'm new to gluten-free and it is quite the life change, and one that few people understand.

RoseTapper Newbie
RoseTapper
Posted

Celiac experts oftentimes recommend taking L-Glutamine to heal the gut, and also Metagenics Medical Food has been recommended to me. I put it in my morning smoothie for about a year, and it helped my digestion a lot. You don't have to take the full amount it suggests--just one scoop is all you need to feel better.

burdee Enthusiast
burdee
Posted

Celiac experts oftentimes recommend taking L-Glutamine to heal the gut, and also Metagenics Medical Food has been recommended to me. I put it in my morning smoothie for about a year, and it helped my digestion a lot. You don't have to take the full amount it suggests--just one scoop is all you need to feel better.

I second the L-Glutamine suggestion. I'm taking that 2x daily now to heal damage from long misdiagnosed celiac disease, food allergies, and 8 gastrointestinal infections (including pathogenic bacteria, 2 parasites and candida). I'll take that for at least 6 weeks and then assess my progress.

SUE

Dino Rookie
Dino
Posted
  • Author

How much L-Glutamine have you guys been taking.

Gfresh404 Enthusiast
Gfresh404
Posted

I have been gluten free for about 2 months. Things seem to be getting better although once in a while I seem to get hit with something that is similar to a gluten hit. Probably some sneaking in as I get used to the new lifestyle. I do have a couple of questions though. Should I back off of coffee. I enjoy it and it did not seem to cause any problems but it has been suggested that it might slow down healing. Also has anyone had any experience with plant enzymes helping in healing?

I would lay off the coffee for a while - see if you notice an improvement. I believe it is an irritant to the GI tract.

The "gluten-like" poisonings that you describe is most likely either cross contamination or lactose intolerance.

You also have my vote for the Glutamine supplementation, but I would be very careful with it. Most of the studies have shown little to no side effects, but I still don't buy it. I take two grams once a week on an empty stomach with some enzymes. But I have noticed some personality changes after taking it, mostly depression. Theoretically it could also cause some brain damage. It is a natural substance (the most abundant amino acid in the body), but it does not occur by itself in virtually almost any dose. The only reason I still take it is because I believe the benefits outweigh the risks. Just monitor yourself as you take it.

Enzymes also helped me greatly - I'm not sure if it was so much with healing, but more just energy levels.

Dino Rookie
Dino
Posted
  • Author

Ok, I will lay off the coffee, I hear camomile tea is good for the gut so I will trade in my coffee for now. I also am going to start to take probiotics as well as some L-glutamine and see if that all helps. I have been feeling better over all but am kind of tired of the days when I don't so I will be much more consistent and hopefully these things will help.

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burdee Enthusiast
burdee
Posted

How much L-Glutamine have you guys been taking.

I'm taking one rounded teaspoonful of L-glutamine powder dissolved in a cup of water 2x daily (when I first wake up and before bed) for at least the next 5 weeks. However, I'm using that to treat stomach damage from the H. Pylori bacteria as well as longterm celiac damage. I wasn't diagnosed with celiac disease until I was 56, but I had symptoms for at least 15 years before that. So like other adults diagnosed in middle age, I may still have unhealed intestinal lesions from celiac disease. Hopefully the LG will heal all that.

SUE

Gfresh404 Enthusiast
Gfresh404
Posted

Ok, I will lay off the coffee, I hear camomile tea is good for the gut so I will trade in my coffee for now. I also am going to start to take probiotics as well as some L-glutamine and see if that all helps. I have been feeling better over all but am kind of tired of the days when I don't so I will be much more consistent and hopefully these things will help.

Things will only get better.

Dino Rookie
Dino
Posted
  • Author

I am not sure but does getting "glutened" affect the psyche? It seems that a couple of days after getting hit and the gut seems to feel better my mood stinks. I get angry much easier and go into a depressed mood. This lasts for a day or two. Anybody else experience this?

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    • Inkie
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      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
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