Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Take For Help With The Itching?


vickyn-p

Recommended Posts

vickyn-p Newbie

My DH showed up in a new place and is super, super itchy. Is there ANYTHING I can do to help soothe it while my body heals from the gluten exposure?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

I take liquid children's benedryl and use hydrocortisone cream. It stops the itching pretty well for me.

ravenwoodglass Mentor

For me the biggest help is cool compresses and a topical hydrocortisone cream. If I am having a very bad time with it, which hasn't happened since I have been gluten free, I used to get a short course of prednisone from the doctor.

For me the benydral doesn't help but it would make me sleepy so I would sometimes take it at night.

Be sure to check all your topical products, you don't want to keep the reaction going by using topicals on the raw sores.

I know how uncomfortable you are feeling and hope it resolves soon.

Oh yea and do avoid iodine in salt and supplements for a bit until the DH outbreaks stop happening. Iodine will keep the antibodies active.

vickyn-p Newbie

For me the biggest help is cool compresses and a topical hydrocortisone cream. If I am having a very bad time with it, which hasn't happened since I have been gluten free, I used to get a short course of prednisone from the doctor.

For me the benydral doesn't help but it would make me sleepy so I would sometimes take it at night.

Be sure to check all your topical products, you don't want to keep the reaction going by using topicals on the raw sores.

I know how uncomfortable you are feeling and hope it resolves soon.

Oh yea and do avoid iodine in salt and supplements for a bit until the DH outbreaks stop happening. Iodine will keep the antibodies active.

Thanks for the information and concern. The itchy has subsided and now I'm just waiting for it to heal. I guess I've gotten even more sensitive to gluten after being gluten free for so long.

ChemistMama Contributor

Thanks for the information and concern. The itchy has subsided and now I'm just waiting for it to heal. I guess I've gotten even more sensitive to gluten after being gluten free for so long.

Sarna Sensitive lotion (the one that doesn't contain menthol) has the same painkiller that's in Neosporin Pain but without the antibiotics. It's the one thing I always turn to to soothe the itch.

bluebonnet Explorer

i can't take benedryl because of svt but i have found a generous dose of the topical calamine lotion helps with the itching/burning. it only helps deal though ... gotta stay away from gluten for total healing. :)

  • 3 weeks later...
ChemistMama Contributor

i can't take benedryl because of svt but i have found a generous dose of the topical calamine lotion helps with the itching/burning. it only helps deal though ... gotta stay away from gluten for total healing. :)

This is a misconception: Benadryl will do NOTHING to help DH. Benadryl is a histamine blocker, and histamine isn't a part of the DH pathway, it has to do with your T cells and some other complicated stuff. The only oral medicine for DH is dapsone, which can be nasty in its own right (need regular bloodwork, yucchy side effects). My DH also warned against too much topical steroid cream, it can actually hinder healing. Use something with a topical pain killer and a moisturizer to help things heal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ChemistMama Contributor

My DH also warned against too much topical steroid cream, it can actually hinder healing. Use something with a topical pain killer and a moisturizer to help things heal.

OOps, that should be my Dermatologist said....too much DH on the brain, I think!! ;)

Hopeful1950 Explorer

I have had the DH rash for 7 years and was just diagnosed about 10 weeks ago. I have tried everything for the itching. The Sensitive Sarna works very well, but I am allergic to it and breakout in thousands of tiny blisters when I use it. I have found another remedy that works pretty well "Bandaid Hurt-Free Antiseptic Wash". It contains lidocaine which helps with the itch. I keep it in the fridge so the combination of cold and lidocaine is very soothing. It also kills germs which I have always needed since I was clawing myself in my sleep. I also go easy on steroids, but sometimes they are the only thing that will help.

Deb H Newbie

I have had the DH rash for 7 years and was just diagnosed about 10 weeks ago. I have tried everything for the itching. The Sensitive Sarna works very well, but I am allergic to it and breakout in thousands of tiny blisters when I use it. I have found another remedy that works pretty well "Bandaid Hurt-Free Antiseptic Wash". It contains lidocaine which helps with the itch. I keep it in the fridge so the combination of cold and lidocaine is very soothing. It also kills germs which I have always needed since I was clawing myself in my sleep. I also go easy on steroids, but sometimes they are the only thing that will help.

I have been trying to find something for the burning itch.. Nothing so far.. Doctor keeps giving me a antihistimaine, which doesn't do anything.. On the bad days I take it to try to fool myself.. lol.. Thank you for the suggestion.. I will defiantely try that..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.