Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daytime Tiredness


rebe09

Recommended Posts

rebe09 Contributor

I have been gluten-free since last June. As of the last few months I have been extremely tired, especially in the afternoon and evening. This is not like me. I am beginning to wonder if it has anything to do with the gluten-free diet---less carbs?! Or could it be an iron deficiency? It's bothering me because I dislike being tired during my daytime routine. Thoughts?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I have been gluten-free since last June. As of the last few months I have been extremely tired, especially in the afternoon and evening. This is not like me. I am beginning to wonder if it has anything to do with the gluten-free diet---less carbs?! Or could it be an iron deficiency? It's bothering me because I dislike being tired during my daytime routine. Thoughts?!

The one question that comes to mind is whether you have been tested for vitamin and mineral deficiencies, iron and thyroid. These are all problems for those of us who have had malabsorption problems for a long tiime. You need to check your levels of Vit D, B12, folate, K, potassium, zinc, calcium, ferritin, TSH and free T3 and T4 (thyroid) at the minimum. Deficiencies in any of these can leave you feeling tired. But so can the healing process, which by now you should be over, so I would suspect the deficiencies.

RiceGuy Collaborator

I agree with what mushroom said. I'd also add the suggestion of a strong co-enzyme B-complex. But don't depend on this for the B12. Get a separate vitamin B12, and make sure it is the methylcobalamin form, in a sublingual tablet. Take about 5mg per day. There is no known level of toxicity, however the human body typically doesn't absorb more than about 5-6mg per day. Magnesium can also be helpful, and statistically about 80% of the population is deficient in this nutrient too. The probability may be even higher for persons with Celiac, due to malabsorption.

charles76 Newbie

Just some ideas here, but did you change anything in particular around the same time? Not all products labeled gluten free are. Also, I found I got more sensitive as I removed things - though it was worth it. One other idea, a lot of mainstream foods contain msg, in many forms - even autolyzed yeast, paprika extract or "natural flavor." Msg is a nerve stimulant that you may not be getting as much of. When I changed to gluten-free, nothing tasted the same for years, until one of the last items I have reintroduced made me realize why. Msg is in everything tasty, even many natural foods. The Japanese call this flavor Umami. I recommend "Ac'cent" in the spice section. Other brands are made from modified corn and wheat gluten, or have some cross-contamination.

That may not be it at all, it could be a vitamin deficiency, especially b12 is stored in a three year supply in the liver, so some nutrients take different amounts of time before you notice a deficiency. But it could be a change due to a particular food. And personally, magnesium makes me more tired.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,260
    • Most Online (within 30 mins)
      7,748

    HaleighA
    Newest Member
    HaleighA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
×
×
  • Create New...