Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell Me About Gluten Withdrawal

danaf617

Recommended Posts

danaf617 Explorer
danaf617
Posted

Is there such a thing? <_<

I have been gluten-free for 3 or 4 days. I have had a nasty, nasty headache each evening. I rarely ever get headaches. :( I've also been feeling a little nauseous.

Is this typical?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Erica1451 Newbie
Erica1451
Posted

Is there such a thing? <_<

I have been gluten-free for 3 or 4 days. I have had a nasty, nasty headache each evening. I rarely ever get headaches. :( I've also been feeling a little nauseous.

Is this typical?

Yes! I felt the same way for the first week or so when I went gluten free. You'll start feeling better soon!

lucia Enthusiast
lucia
Posted

I had some really extreme symptoms, including headaches, when I went off gluten that lasted just under a week.

danaf617 Explorer
danaf617
Posted
  • Author

Boo on those headaches! Just reminds me to be thankful that I don't get them often!

I'm so glad to hear that you dealt with it for a week or under. I was afraid of how long this would last.

I thought it was strange that I had the nausea because that hasn't been one of my symptoms these past 7 months. I hope that doesn't stick around too long. Yuck!

I don't really feel better yet. Haven't had any soft of D bm's yet this week though. 2 normal bm's over the last 2 days. :)

And yesterday morning and this morning were the first 2 days in 7 months that I didn't wake up with instant rolling gas pains. I still have the all-day dull pain/pressure/cramping still though.

adab8ca Enthusiast
adab8ca
Posted

i have been gluten free for 3 weeks and until today, every single day I felt like i was getting the worst flu ever.

hopefully i am over the worst of it, this STINKS!!! However, my research shows it can be typical to feel worse before you feel better. My dietician said it could take a year to feel better...

  • 2 weeks later...
ClevelandGuy Rookie
ClevelandGuy
Posted

i have been gluten free for 3 weeks and until today, every single day I felt like i was getting the worst flu ever.

hopefully i am over the worst of it, this STINKS!!! However, my research shows it can be typical to feel worse before you feel better. My dietician said it could take a year to feel better...

Today marks my gluten-free 3-week mark too. In all that time I had only one day where I felt a bit better, but apart from that, I still feel like crap. It does stink, but you're not alone.

IngridBeth Apprentice
IngridBeth
Posted

I got bad headaches too, for a few days during the first week of gluten free life! I had other weird symptoms too, it has been up and down. Today is an "up" day (it's week three now) and I hope there are more of these ahead. But I know I am a believer in gluten withdrawal now! Also I have had a few major intestinal attacks, not sure that is withdrawal per se but maybe just things trying to heal and get back to a "normal" that hasn't actually been there in years...? Good luck...at least you are on your way!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SueQueBlue Newbie
SueQueBlue
Posted

i have been gluten free for 3 weeks and until today, every single day I felt like i was getting the worst flu ever.

hopefully i am over the worst of it, this STINKS!!! However, my research shows it can be typical to feel worse before you feel better. My dietician said it could take a year to feel better...

Seriously-a year? I know that there isn't an "insta-fix", but dang, a whole year? I want to feel better now. I've done this gut-ache thing too long as it is, I want to get better!

missceliac2010 Apprentice
missceliac2010
Posted

I didn't get the headache, but I got the nausea. In fact, I posted a question about it on this site wondering what the heck was wrong with me! Mine went away after about 2 days.

Good luck to you!!

Is there such a thing? <_<

I have been gluten-free for 3 or 4 days. I have had a nasty, nasty headache each evening. I rarely ever get headaches. :( I've also been feeling a little nauseous.

Is this typical?

sandsurfgirl Collaborator
sandsurfgirl
Posted

I'm going on 8 months gluten free and feel better than I have in years and years, if ever.

But... I did have lots of withdrawal symptoms. I did get better a little bit all the time but it was about 5 months before I really felt good. I felt results right away, but 5 months til I was pretty much symptom free.

If you use the search function on here and read old threads about withdrawals there is a ton of info for you.

Your body will go through some wacky phases. Around 5 weeks into the diet I couldn't eat anything without getting sick. Then it passed.

Make sure you aren't getting glutened by soaps and shampoos etc. Shampoo runs into your mouth in the shower. Soap and lotions stay on your hands and get in your mouth. Made a huge difference when I made that change.

danaf617 Explorer
danaf617
Posted
  • Author

thanks again for all of the replies.

My headaches and nausea only lasted 4 or 5 days. I am around 2.5 weeks gluten-free now and have noticed my BMs calming down a bit and my energy has picked up a little. But I still have a stomach ache 24/7. If I wake up at 2am for some reason, I have terrible pains. Luckily I sleep through it most of the time.

I am going dairy free this weekend, after I grocery shop this afternoon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.