Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Not Sure What To Do About Diet


yogismith

Recommended Posts

yogismith Rookie

I was diagnosed in Janurary with Celiacs....I am still in the denial/angry stage. I need advise about foods to eat. I have been gaining weight pretty steadly...I am scared that I am going to keep gaining weight. I get bloated really easily. I have heard that when you are first diagnosed with celiacs that you should not eat lactose for a couple months to let your instestine heal (this is hard cause I LOVE cheese). I am 21 and living on a college students budget, so I don't like buying gluten-free grains because they can be really pricey for me. everytime i see regular pasta or cake, etc I get huge cravings. I am just so upset with myself for allowing myself to gain so much weight...any suggestions or ideas would be gratefully appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

It sounds like you may not have a lot of support with this. These are the kinds of things that you should be able to talk to your doctor about. It would also help to see a good nutritionist/dietician. I know this won't always be possible, since so many health professionals remain ignorant about celiac, but it may be worth looking into finding someone who you can trust. If it's possible in your area, I'd also suggest looking for a celiac support group to meet other people who are dealing with these issues too.

When I was first diagnosed, I thought that it'd be an easy process to recover - all I had to do was give up gluten. I had no idea how difficult it would be 1) abstaining from gluten in a gluten-filled world, and 2) dealing with secondary health issues that result from eating gluten for so many years. It's not easy! But when you commit to your recovery, you will feel better. That includes giving up lactose for awhile. It won't be forever, but that you are experiencing bloating means that your body can't process it right now (celiacs lose the enzyme for digesting lactose, but with recovery they get it back).

Do you know why you're gaining weight? It could be that your body is finally able to absorb the nutrients from food that it needs to be healthy. While it may be surprising and even shocking to see yourself gain a lot of weight suddenly, it may be what your body needs. Our Hollywood-obsessed culture doesn't exactly encourage a healthy weight especially in women so it's hard to know what's normal. On the other hand, newly-diagnosed celiacs will sometimes gain weight unnecessarily, because they are start eating too many gluten-free, replacement items which have a lot more calories than regular foods. Celiacs also sometimes have issues with their thyroid which cause them to gain weight quickly.

There are a lot of options for your new diet besides gluten-replacement foods. You need to make sure your body is getting the carbohydrates it needs, but there are a lot of options for carbs. Foods that satisfy these needs include: potatos, corn, and grains such as rice, quinoa, millet, and amaranth. Americans tend to choose wheat-based items for their carbs, which means you'll likely need to get used to eating different foods than before. Also, be careful you're not overloading on carbs, which is also common in the American diet. You need carbs, but not usually in the proportions of a typical American diet. Make sure you are getting plenty of fresh veggies and fruits.

If you are eating well-balanced meals without too many gluten-replacement items and you are not underweight but you are still gaining weight rapidly, then you'll want to see a doctor to get tested for thyroid issues.

Best of luck to you. I've found a lot of info and support on this board, and I hope you can too.

kayo Explorer

Look for an Asian market near you. They often have Ramen type noodle soup packs made with rice noodles. They also have lots of rice noodles and rice crackers which are often much cheaper than at a regular super market.

scarlett77 Apprentice

I agree with PP...you can get Ramen type soups with rice noodles that are gluten free and very inexpensive. Rice is cheap and easy to make into a meal. I personally love mexican rice and it is cheap to make. Pair it with some black beans and some corn tortillas and you've got a very filling meal. gluten-free pasta can be a bit pricey, but if you are feeding just yourself 1 bag of Tinkyada should last you AT LEAST 2-3 meals (so that only equates to about less than $2 per meal). Toss pasta with garlic, olive oil, and some parmasean cheese. There are commercial sauces that are gluten free or you can make your own from some ground beef, can of tomato sauce, garlic, onion, and italian seasoning. The beauty of making your own sauce is that it freezes really well too. Betty Crocker makes gluten-free cake mixes (sometimes they go on sale!!)so there's no need to give up cake. It is very easy to make chocolate chip cookies too with Pamela's pancake mix. I know Pamela's is a bit pricey, but for a large bag at $17 you can make a lot with it (cookies, biscuits, pancakes, bread, pizza crust, muffins,etc...heck i even use it to bread chicken). So the per meal cost is not too bad. I've heard Domato is a bit cheaper so you might look at that.

I know what you mean about your feelings about the food. I went gluten-free because my son has Celiac and it was tough and I did go through a period where all I wanted was cookies, fried foods, and candy. I even went as far as to figure out how to make all these unhealthy foods gluten-free. But 2 things helped me get past it: 1) the realization that I CAN still have and make a lot of things that I love to eat...the gluten-free versions are sometimes just as good if not better. And 2) reading blogs of other Celiacs and celiac moms (my favorite is Open Original Shared Link). That blog helped me to really SEE food and really appreciate all the things out there that are yummy and naturally gluten free. I don't think I've truly appreciated food until going gluten-free.

I wish you the best and hope you feel better (and eat your beloved cheese) soon!

Skylark Collaborator

Go for lots of fruits and veggies, rice, and beans. They're cheap and don't have so many calories. Peanut butter is filling too. I like it with celery, rice cakes, or on apple slices. I also used to eat a lot of eggs in college because they were cheap and easy to cook. Also, you only need to avoid dairy or lactose if they bother you. If cheese doesn't give you any trouble it's OK to eat (though it has a lot of calories). If you can find the Betty Crocker Gluten Free mixes, they aren't too expensive. Might help with the cravings but not the weight.

T.H. Community Regular

This site might be of some use in finding foods to eat that work for you: Open Original Shared Link

It's a gluten free blog by another college student who has to live on a budget. He has recipes and food ideas that would hopefully be something you could afford/have time to make. :)

There's another site that might be of some use, too: Open Original Shared Link

Lots of recipes for the shoestring budget. She's not gluten free, but she has recipes from usually simple ingredients, so many of them ARE gluten free, from things in season, and affordable!

Tina B Apprentice

Look for an Asian market near you. They often have Ramen type noodle soup packs made with rice noodles. They also have lots of rice noodles and rice crackers which are often much cheaper than at a regular super market.

You don't really need to go to an Asian market if it is hard to find. Most major grocery chains have these things in the international food aisle. I have bought rice crackers and rice noodles there. Also, don't buy corn and rice flour in the health food stores. It is much more expensive there. I keep a bag of Goya fine white corn flour or rice flour around for coating meats for stews etc. 1/3 the cost of buying it somewhere like Wholefoods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.