Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergy Testing

butterfl8

Recommended Posts

butterfl8 Rookie
butterfl8
Posted

So I went to the allergist to inquire about allergy testing for both foods and environmentals, and was told to think about what foods I wanted to be tested for. (uh, isn't that his job???)

Ok, so anyway, I have been avoiding soy, and just challenged it to be sure. Yep, heart racing, pounding, stomach hurting a bit.

Cumin is really evil.

I'd like to throw in corn, potatoes, rice.

Does anyone have any other suggestions? Something makes me salivate, and get really hungry, and I haven't been able to pinpoint that yet. I'm just hoping the testing will narrow that down a bit.

Thank you for any input!

-Daisy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Do you mind sharing what cumin does to you? I'm curious because cumin is on my avoid list because I tested pos. to it but haven't reintroduced it yet. I know sometimes reactions are hard to describe.

Our first allergist was like yours and didn't believe in his own tests much. I just asked for the top 8 or 10. Wasn't helpful. They dismissed kiddo's reaction to wheat. 2nd allergist gave us a list of about 100 and asked us to check all foods that we routinely ate. We have a fairly vaeried diet so ended up checking about 80 each. Those are what we got tested for and I'm glad it was done that way. I had NO idea that I could be allergic to the 26 that I reacted to. I could not have come up with that list on my own. When I eliminated all of them I felt remarkably better. That's what convinced me that there was something to this and that I needed to take the journey. I've been reintroducing them one by one. Still got quite a few to go. Reaction to individual ones weren't so strong but at least the total sum was making a significant impact on how I felt on a daily basis.

sa1937 Community Regular
sa1937
Posted

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

missy'smom Collaborator
missy'smom
Posted

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

Both allergists did skin testing. One was not helpful and the other was very so I wonder if there was any difference in the tests or not. I haven't asked yet. The results of the first time I was allergy tested(skin) everything came back neg. too. With this new set and elimination/challenge my symptoms have been primarily GI but a little mouth or other with a couple. I am recognizing that many of them give me this feeling of pressure and inflamation in the GI tract that I didn't have when I was not comsuming them. All was blissfully and strangely calm for the 4 weeks without. It was SO strange to not feel anything after a meal!

Yes, I would find an allergist who believes in eliminating foods even if you don't have an anaphalactic reaction and one who routinely runs large food panels.

StephanieL Enthusiast
StephanieL
Posted

If you take any allergy/antihistamines prior to testing it can cause false negatives. Allergy testing is NOT 100% accurate. Skin or blood! The only true test is an allergy trial. Many Dr's don't do these. Testing can give you an idea. Food logs can be really helpful too! Listing foods, times eaten and any reaction you feel you may be having. Good luck in your search!

GFinDC Veteran
GFinDC
Posted

Nightshades, tomatoes, potato, peppers, carrots, turnips, soy, dairy, oats, garbanzo beans, fruits, all the top 8 food allergens, celery, corn.

butterfl8 Rookie
butterfl8
Posted
  • Author

Okay, now that I'm back!!

Missy's mom, cumin makes my stomach cramp up. Just feels like my stomach is turning inside out. My coworkers were telling me to go home all day! Not fun. The more I had, the worse. Just a little seemed to be less cramping, but still enough to avoid. :blink:

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." <_< The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? :angry:

StephanieL: Yep, I'm not looking forward to stopping my happy allegra, and flonase, and benedryl. It will be a miserable few days, but hopefully answer a few questions!

GFinDC Thanks! Those are great suggestions!

Any more?

-Daisy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


butterfl8 Rookie
butterfl8
Posted
  • Author

GFinDC, did you find out you were uh, coffee intolerant (I love my coffee!!!) through testing or elimination? I wonder because I know if I avoid it for a few days it bothers me to go back to drinking it, but only for a day or two. Once I readjust to it, we get along again, and I can wake up in the morning. . . mostly. :P So if I were to eliminate coffee, then challenge it, I would seem to be reactive to it. I just wondered.

Thanks!

-Daisy

sa1937 Community Regular
sa1937
Posted

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." dry.gif The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? mad.gif

I'll admit that I don't have a clue about allergy testing. Obviously the RAST test I had was not the right one. I'll be anxious to hear how everything turns out for you.

Is the Dr. you're seeing an allergist?

butterfl8 Rookie
butterfl8
Posted
  • Author

The Dr. is an ENT, who was recommended by my GP. His office does allergy testing, which is handled by this one nurse. Unfortunately, I'm quiting work in three weeks to go back to school and get my master's, or I would look for a different Dr. Insurance coverage will run out at the end of August.

-Daisy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Lotte18
      - Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      9

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      I feel the same way. Looks like the research is being done in Switzerland. Thank you Scott for keeping us updated on the research!
    2. knitty kitty
      - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease. It will not show if you have active Celiac disease. Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies. The...
    3. trents
      - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases...
    4. McKinleyWY
      - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast. All my life I have avoided bread and most products containing enriched flour as they contain yeast (when making the man made vitamins to add back in to the flour). Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat...
    5. trents
      - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,239
    • Most Online (within 30 mins)
      7,748
    Y. Chan
    Newest Member
    Y. Chan
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.