Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Anything I Can Eat?

Dancer9982

Recommended Posts

Dancer9982 Newbie
Dancer9982
Posted

I went gluten free, dairy free, soy free back in February due to Celiac. I got better but now I am back to being bloated constantly and constipated. I am also exhausted all the time and sleeping in the afternoons which isn't me. My doctor took me off of veggies (ugh!) to see if there was an intolerance with those, but nothing has changed. I look like I'm 3-4 months pregnant and it hurts... it's horrible!

What should I try now? Could it be fructose and fruit intolerance? I am only eating meat, fruit, rice cakes, and cereal right now. Should I try taking high fructose fruit out? I know apples are high in fructose and I eat 2 a day....

Any help would be greatly appreciated! I want to feel better and feel like myself again!

Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2sweetico Newbie
2sweetico
Posted

I know exactly how you feel! I looked preggers too! I went from 95 lbs to 140 lbs in about four days! I just found out that I might have candida so i eliminated all fruit as well. I only eat meat, eggs, and veggies. Make sure there's no yeast! Plus, make sure you take a lot of probiotics because you're not getting any. That should help with the constipation.

ravenwoodglass Mentor
ravenwoodglass
Posted

Try dropping the rice cakes and cereal. What are you putting on the cereal? If it is Rice Dream rice milk that is not safe for us. Add in rice, potatoes, well cooked veggies and fruits. Cream of buckwheat cereal is good if you have to have a cereal in the morning. The less processed foods the better for healing.

GFinDC Veteran
GFinDC
Posted

I agree, drop the cereal and rice cakes for a month. See if there is any improvement. Then try eliminating nightshades, potatoes, peppers, tomatoes. Try it for a month and see if it helps.

tina a Apprentice
tina a
Posted

hello---what is wrong with rice milk? i thought it was ok...

Try dropping the rice cakes and cereal. What are you putting on the cereal? If it is Rice Dream rice milk that is not safe for us. Add in rice, potatoes, well cooked veggies and fruits. Cream of buckwheat cereal is good if you have to have a cereal in the morning. The less processed foods the better for healing.

psawyer Proficient
psawyer
Posted

A few years ago, Rice Dream listed barley as an ingredient. Today, the manufacturer does not list barley and labels the product as gluten-free. Did the product change, or are they now hiding the barley and lying about it? You decide.

T.H. Community Regular
T.H.
Posted

On their website, it says this:

Is RICE DREAM Beverage a gluten free product?

Yes. Although RICE DREAM Beverage is processed using a barley enzyme, the barley enzyme is discarded after use. The final beverage might contain a minute residual amount (less than .002%) of barley protein.

I know that I stay away from the rice milk, big time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missceliac2010 Apprentice
missceliac2010
Posted

Rice Dream milk a no go...huh...who'd have thunk it.... ugh! I'm glad I read this now instead of finding out the hard way! Thanks Shauna!

I have been Loving almond milk! It's soy, lactose and gluten free! Tastes great too! Plus I live in the central valley of California, where almonds are a HUGE crop around here! Blue Diamond brand buys a lot of the locally grow almonds, and I buy their milk! See, I'm going local and green! :) Maybe not, but it makes me feel good...lol!

Feel better Dancer! That weight gain stuff from the bloated belly really messed with my head. I know how you feel! I have always struggled with weight, so I had gastric bypass surgery 3 years ago. Talk about drastic measures! Since then, any weight gain freaks me out more than the average person, because I have a strong "I won't go there again" inner voice. Once I figured out it was the gluten..not me, who put that beer belly gut on....I was thrilled to watch the scale drop...quickly!

It will get better. Sounds like some great advice has come before me. Good luck!

K8ling Enthusiast
K8ling
Posted

I drink vanilla silk, but I haven't had issues with Soy, and I only use it in my tea and the occasional cereal. I was surprised with the rice milk!

When I get wonky (stomach wise) I switch to strictly fresh foods, chicken breast, mashed (home made) mashed potatos, lots of fresh fruits and veggies...It gives me time to heal a little. Maybe switch to completely fresh with as little processed as possible.

I'm sorry you're having trouble!

ravenwoodglass Mentor
ravenwoodglass
Posted

For rice milk if you live near a Wegmans their rice milk is for sure safe. It is imported from Canada and Wegmans is very strict on the gluten issue. It is the one I use for chocolate milk as I don't care for any milk straight.

Dancer9982 Newbie
Dancer9982
Posted
  • Author

You all ROCK! I will give it a try.

I cut out bread and baked goods becasue those really make me sick. That is why I eat the rice cakes and cereal. But I will try not eating them for awhile. I don't put anything on my cereal except blueberries. No milk. I don't like the rice milk... it doesn't set well. :)

I go to a nutritionist in a few weeks and will check back in and let you all know what she says... She has celiac as well and works with the local CSA chapter.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.