Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Bronchitis


giselle

Recommended Posts

giselle Newbie

Hi everyone,

I am new here, I am SO grateful to have found this board because I feel like I am on the verge of falling apart. In brief, I wanted to know if anyone has had the experience of getting repeated episodes of bronchitis, asthmatic bronchitis, or other similiar illnesses while still ingesting wheat and gluten. I am too sick to begin to explain everything, but I am only just beginning to go wheat free. I developed chronic bronchitis over a year ago and have had so many antibiotics/inhalers, etc. and I keep relapsing. I am very frightened from being so sick and weak. My life is in standstill, I can barely function or think. Sorry for the poor writing.

I am newly diagnosed and overwhelmed. Very depressed and teary. But most of all, the bronchitis is scaring me because of how sick it makes me and my doc says I will get resistant to meds if we arent careful. I am about to have a sputum culture done as well.

I would be so very grateful for any feedback.

Completely overwhelmed, giselle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Eloisa

Giselle,

Sorry you feel so bad but I completely understand. I used to get chronic sinus infections and my husband used to get chronic bronchitus all the time. I know that having celiac disease weakens your immune system therefore you get sick easily and its takes longer to get well. I just want to let you know that there is hope in this. I take Reliv shakes which are nutritional supplement that are taken in liquid form and since I've taken them I no longer have sinus issues that turned into infections. I've completely gotton off of all my sinus medications and have not had a sinus infection since I've been on Reliv. My husband who was sceptical about taking anything finally went to a Reliv meeting and heard all the great health stories and was convinced to start taking Reliv. Since him being on it, he has not had any bronchial infections and is off his sinus meds as well. He also suffered from old athletic injuries (knee, broken vertibre, broken bones and arthiritus) and had severe intestinal damage in his early twenties. When he started taking Reliv he initially started because of all of the aches and pains he had from injuries but wound up benefiting from all other issues his body has been going through.

Eloisa

cdford Contributor

Also, if you use a hot tub regularly, be sure to tell your doctor as this can sometimes trigger infections that react like bronchitis.

Guest nini

yeah, prior to being dx and going gluten-free, I used to get upper respiratory infections and bronchitis ALL the time. Seems like I would just get off of treatment for one and BOOM along came another one.

anewsprue Newbie

Hello all, don't know if it's celiac disease related but I just got out of the hospital on Monday after being admitted with pneumonia and pleurisy. I still hurt, can't breathe well at times but feel a little better overall. I think my immune system has left the building, it's just been a very tough year. :(

giselle Newbie

Hi everyone,

Thanks for the great replies and info. I just got the results of my culture back and found I have Viral Chronic Bronchitis. It's good that I got a second opinion because I had been given 4 different very long courses of powerful antibiotics over the last year. My second doc said I was lucky to have not developed a resistant strep infection (MRSA), scary stuff.

After reading other posts here, it seems I have a severe case of fibro "fog" (also have fibromyalgia like several of you) and I guess that is why I am so mentally overwhelmed about where to begin in starting my wheat/gluten free diet.

I am happy to hear that many of you got relief from your bronchitis after starting the diet, so I guess I have some hope now. Perhaps I should go to the thread about the diet and see how others got going.

Thanks again for your efforts in helping me. In friendship, giselle

  • 1 month later...
BellaSara Newbie

I was having autoimmune problems and had chronic bronchitis all winter long. I decided to try the gluten free diet to see if it would help. After about five days I was doing good and my bronchitis was starting to heal. I went and I bought what I was told to be gluten free spelt bread. After about 3 pieces I got very tired and took a nap. My bronchitis came back full force and I was immobilized for a week. I also got a very bad case of plurisy which I still have slightly. All from three pieces of bread.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

For MANY years I would get Bronchitis so severly that I would end up as a patient in the hospital or intensive care. I had an 18 hour window to get on antibiotics before I ended up in the hospital. And of course this would always happen on a weekend LOL. Had the pneumonia shot and exactly 2 weeks later I had pneumonia and again landed in the hospital. Two years later I had a very rare and painful pneumonia and ended up in the hospital. Went from intensive care to cardiac intensive care. 6 days after I was admitted I had lung surgery. I was there two weeks and that was when my husband started talking about early retirement and to get me out of the cold. A long bout of allergy attacks would trigger Bronchitis and my doctor gave me potent antibiotics to keep on hand. Since I have been gluten-free (year and a half) I have not used an Epi-Pen and had one bout of Bronchitis the beginning of this year. It was Asthmatic Bronchitis and required a trip to the emergency room with lots of meds fed intraveniously - BUT, I was not hospitalized. This has been the best year and a half that I have had with only relative minor asthma problems (except for the one just mentioned. This beats the last 15 years. So, I think that going gluten-free made a big difference in all of this.

Armetta :D

Misa Rookie

Bronchitis was actually the reason I started to investigate celiac disease B) I got really bad coughing spells everytime I ate gluten grains. It took a while for me to see the connection, but one day after yet another coughing attack I suddenly said to a friend; Iget this everytime I eat bread. Saying it out loud made me think of course and just after the first gluten-free day my coughing stopped and hasn't returned in six weeks now..... :P

It just blows me away how many symptoms can be gluten-related.

Misa :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,557
    • Most Online (within 30 mins)
      7,748

    kghorne3
    Newest Member
    kghorne3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.