Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Possible Allergies?


curiousgirl

Recommended Posts

curiousgirl Contributor

I've been gluten free (as much as possible) since mid-May.

Bought some gluten-free crackers a couple of days ago, snacked on them for 2 days (ok, inhaled them), and my tongue began burning...I just thought it was because the crackers seemed very salty. Now, 3-4 days later, I have my typical symptoms (lethargy, foggy mind, post-nasal drip, anxiety, blah blah blah).

So, is it possible to have more symptoms show up a couple of days later? And, if it WAS the gluten-free crackers, what is the other possibility it could have been IN the crackers?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

The tongue burning could definitely be a reaction to something - get that to quite a few things. If you look up OAS (oral allergy syndrome) it talks about that reaction, so you could see if the details match your own.

However, I would wonder about the 3-4 day lapse being related. 1-2 days, I could see it. 3-4 days - well, worth keeping track of, but I'd wonder if you got accidentally glutened by something else, instead, first.

As to what it could be in the crackers? I'd look first at ingredients that you aren't eating a lot of, or that are less processed than what you usually eat (like evaporated sugar cane instead of sugar). Otherwise, I'd think you'd be noticing the burning mouth with other foods, more. Because what it could be, honestly, is pretty much anything. sigh.

good luck on finding the culprit!

I've been gluten free (as much as possible) since mid-May.

Bought some gluten-free crackers a couple of days ago, snacked on them for 2 days (ok, inhaled them), and my tongue began burning...I just thought it was because the crackers seemed very salty. Now, 3-4 days later, I have my typical symptoms (lethargy, foggy mind, post-nasal drip, anxiety, blah blah blah).

So, is it possible to have more symptoms show up a couple of days later? And, if it WAS the gluten-free crackers, what is the other possibility it could have been IN the crackers?

ravenwoodglass Mentor

I thought for a bit that Ener-G crackers were CC'd or something cause I seemed to react to them. It turned out I was sensitive, both allergy and intolerance, to soy. Check your crackers and see if they might have soy.

Skylark Collaborator

I got pretty sick on a day I ate Ener-G crackers too. They were the only processed food I ate that day or the day before. I'm not soy sensitive and there is nothing listed in the ingredients of those crackers that would suggest a problem for me. I wonder how carefully Ener-G is testing their raw ingredients for gluten?

curiousgirl Contributor

The tongue burning could definitely be a reaction to something - get that to quite a few things. If you look up OAS (oral allergy syndrome) it talks about that reaction, so you could see if the details match your own.

However, I would wonder about the 3-4 day lapse being related. 1-2 days, I could see it. 3-4 days - well, worth keeping track of, but I'd wonder if you got accidentally glutened by something else, instead, first.

As to what it could be in the crackers? I'd look first at ingredients that you aren't eating a lot of, or that are less processed than what you usually eat (like evaporated sugar cane instead of sugar). Otherwise, I'd think you'd be noticing the burning mouth with other foods, more. Because what it could be, honestly, is pretty much anything. sigh.

good luck on finding the culprit!

Thanks for your response, Shauna.

I looked up OAS and this is what I found:

Ragweed (weed): melons (watermelon, cantaloupe, honeydew), bananas, cucumbers and zucchini.

Birch (tree): potatoes, carrots, cherries, celery, apples, pears, plums, peaches, parsnip, kiwi, HAZELNUTS and apricots.

Mugwort (weed): celery, carrots, various spices.

Grasses: tomatoes, potatoes, peaches.

The crackers are called Hazelnut Nut Thins by Blue Diamond! As you can see, under "Birch" hazelnuts are listed. And, after the list of ingredients, it states they're "...made in a facility that makes products using wheat, soy, pecans, and HAZELNUTS."

I watched something on youtube yesterday and a dietitian said you're taking a chance by eating anything that is produced in a place where there could be cross contamination...geeeezzzzz! I wonder if this is part of the withdrawal period and eventually I can have things with hazelnuts?? Oh well, I guess I can't for now at least.

Skylark Collaborator

Oral allergy syndrome can come and go. I used to react to melons (ragweed cross-reaction) but now that I live in a part of the country where ragweed doesn't grow, I eat them comfortably.

curiousgirl Contributor

Oral allergy syndrome can come and go. I used to react to melons (ragweed cross-reaction) but now that I live in a part of the country where ragweed doesn't grow, I eat them comfortably.

Any info on Lite Salt (Mortons)? Ingredients: salt, potassium chloride, calcium silicate, magnesium carbonate, dextrose, potassium iodide.

And, if these ingredients aren't gluten, what may be the one that caused...yes, tongue burning, again!

Is there a list of common allergies to some of these types of ingredients? Is there anything common? Ha!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marz Enthusiast

Any info on Lite Salt (Mortons)? Ingredients: salt, potassium chloride, calcium silicate, magnesium carbonate, dextrose, potassium iodide.

Eh.. Dextrose is derived from grains, apparently usually corn in the US, no idea elsewhere. They are supposed to list wheat as the source if it's wheat-derived. What ingredients were in the crackers you ate?

Did a quick google, and the lite salt is apparently gluten free Open Original Shared Link

To be honest, I can get glutened from "gluten-free" cookies, so I'm always suspicious of anything I eat that I haven't prepared myself :( Even if they used rice flour etc, the source of the rice could have been contaminated with some wheat, introducing some low levels of gluten in a "naturally" gluten-free flour. However I would trust the bigger companies that test their goods for gluten-contamination - are the crackers from a well known manufacturer?

Marz Enthusiast

The crackers are called Hazelnut Nut Thins by Blue Diamond! As you can see, under "Birch" hazelnuts are listed. And, after the list of ingredients, it states they're "...made in a facility that makes products using wheat, soy, pecans, and HAZELNUTS."

I'd be more worried about the "wheat" in "...made in a facility that makes products using wheat, soy, pecans, and HAZELNUTS." :) Definitely could have some CC there with the crackers. You can always buy some whole hazel nuts to try, I don't think you can definitely say based on this that you're intolerant/allergic to hazelnuts, since there was a gluten cc possibility, and other ingredients in the crackers you could be reacting to.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,634
    • Most Online (within 30 mins)
      7,748

    dysmathers
    Newest Member
    dysmathers
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.