Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired Of Being Tired, Help.......


sandiz

Recommended Posts

sandiz Apprentice

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?

Hi. I don't know how long your Celiac disease was active, but if for any length of time, you are probably deficient in all sorts of vitamins and minerals, which puts a real hurt on your hormonal system and other systems too really. One thing I would look into, if you have not already, are your iron levels and your B12 levels. B12 is absorbed through interacting with stomach acid, and many celiac sufferers have low stomach acid (even if they feel they have an acid stomach). Your adrenals are probably tired, especially if your sleep patterns are disturbed. It is best for your adrenals if you are asleep by 10pm (or at least eyes closed and resting) ... and then obviously having uninterrupted sleep is best. I can't tell by your post if you are waking up becuase you don't feel good, if it is for another reason. B12 you could take w/o getting your levels checked and see if it makes any difference. Iron on the other hand can be toxic at high levels so you should get tested if you can before adding that. It can cause constipation so you should look into a kind form the healthfood store that does not do so.

You might be protein deficient too, and that's coming from someone who is vegetarian and hates having folks assume she does not get enough protein. The fruit craving is probably liquid, vitamins, and mostly sugar - the veggie soup...hmmmm...you're making me hungry. Is there some healthy starch you could add, such as sweet potato or potato even, that might give you a bit of a boost? I did not eat potatoes for a couple years (they are nightshades and require calcium to digest and bla bla bla other stuff too) but now do and I immediately had more energy. I guess it was the starch.

One other thing I noticed about your post is that you tend to wake up and then be unable to go back to sleep. For what it's worth, in Chinese medicine they talk about the liver being clogged or overworked if you are able to go to sleep, but not stay asleep. I don't know if you can take a liver cleanser or tonic or anything or if that interests you, but it might be something to think about.

Skylark Collaborator

I was thinking the same thing about the cravings and nutrition. I used to crave fruit too. I would buy smoothies, V-8, and those heavy-duty Odwalla juices at the health food store and I usually felt a little better. Emergen-C was another thing I used to really like. I stopped craving fruit so much when I got onto my heavy duty mulitvitamin/mineral/trace element supplement. It's interesting as I think about it because I've been experimenting with taking less and I came home from Costco with a case of V-8. :lol: (Note to self: back to higher dose of vitamins!)

I bet you need to get on a good multivitamin/mineral. Fruits and veggies have lots of soluble vitamins and trace elements. Solgar makes really good supplements. I also need to take a couple capsules of double-strength fish oil every day to sleep well.

Also, you might want to get your thryoid checked. Lots of us have thyroid problems.

kaki-clam Enthusiast

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?

I have been gluten free for nine months ( I mention this as it isn't much longer than yourself) and have the same problems with sleep. When I do sleep I have terrible scary dreams about people stalking me and/or trying to kill me, which pretty much means that the sleep I get isn't the deep kind that your body needs. My doc just put me on Kava Kava and 5-HTP both to help calm my anxiety and assist in sleeping. I went the sleeping pill route and it didn't work for me...but that doesn't mean you shouldn't give it a shot. Talk to your doc and see what s/he says about the sleep thing...life without sleep has been very rough. I have just started the other things so I will try to remember to let you know how they are working. If you find something that works for you I'd love to hear about it..and worse case...we can stay up all night together chatting :)

anabananakins Explorer

Tiredness could also be vitamin D deficiency. My iron and b12 were fine but my Vit D was terribly low - I scored 2 and he said it should be at least 50, optimum 70 and mine being so low explained why I feel like death warmed up. It puts you at risk of a bunch of awful things so worth getting tested.

RiceGuy Collaborator

I agree with the suggestion of vitamins, especially B12 and other B vitamins. All the suggestions so far seem worth considering.

I find I sleep way better now than I ever could before. Even after being gluten-free for quite awhile, sleep just wasn't something I'd get much of, and what little I got wasn't quality sleep. But since I started taking a sublingual methylcobalamin (active form of B12) tablet, I sleep quite well. I take 5mg about an hour before going to sleep, which seems to make it work even better. I think the sublingual tablet/lozenge type is better than the liquid, because it stays under the tongue far longer, allowing better absorption.

Hope you feel better soon!

sandiz Apprentice

Hi. I don't know how long your Celiac disease was active, but if for any length of time, you are probably deficient in all sorts of vitamins and minerals, which puts a real hurt on your hormonal system and other systems too really. One thing I would look into, if you have not already, are your iron levels and your B12 levels. B12 is absorbed through interacting with stomach acid, and many celiac sufferers have low stomach acid (even if they feel they have an acid stomach). Your adrenals are probably tired, especially if your sleep patterns are disturbed. It is best for your adrenals if you are asleep by 10pm (or at least eyes closed and resting) ... and then obviously having uninterrupted sleep is best. I can't tell by your post if you are waking up becuase you don't feel good, if it is for another reason. B12 you could take w/o getting your levels checked and see if it makes any difference. Iron on the other hand can be toxic at high levels so you should get tested if you can before adding that. It can cause constipation so you should look into a kind form the healthfood store that does not do so.

You might be protein deficient too, and that's coming from someone who is vegetarian and hates having folks assume she does not get enough protein. The fruit craving is probably liquid, vitamins, and mostly sugar - the veggie soup...hmmmm...you're making me hungry. Is there some healthy starch you could add, such as sweet potato or potato even, that might give you a bit of a boost? I did not eat potatoes for a couple years (they are nightshades and require calcium to digest and bla bla bla other stuff too) but now do and I immediately had more energy. I guess it was the starch.

One other thing I noticed about your post is that you tend to wake up and then be unable to go back to sleep. For what it's worth, in Chinese medicine they talk about the liver being clogged or overworked if you are able to go to sleep, but not stay asleep. I don't know if you can take a liver cleanser or tonic or anything or if that interests you, but it might be something to think about.

Thanks you for your post. I was diagnosed with IBS for over 10yrs. I do eat meat every day and starch, potatoe and rice. Canned fruit goes to work with me I have bananas, strawberries, blueberries, melons. Lately it is corn on the cob, being the season for it too, but that is my starch choice as of now. Iron and thyroid checked in Jan and was told everything was fine. I was taking vit D for my SAD in the winter time and thankfully this was the first yr I didn't get too depressed. Yes I have had scary dreams and vivid dreams, but also I wake because I am not feeling good or not go to sleep because I am not feeling good. This also puts a damper on your personal live.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.