Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired Of Being Tired, Help.......


sandiz

Recommended Posts

sandiz Apprentice

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?

Hi. I don't know how long your Celiac disease was active, but if for any length of time, you are probably deficient in all sorts of vitamins and minerals, which puts a real hurt on your hormonal system and other systems too really. One thing I would look into, if you have not already, are your iron levels and your B12 levels. B12 is absorbed through interacting with stomach acid, and many celiac sufferers have low stomach acid (even if they feel they have an acid stomach). Your adrenals are probably tired, especially if your sleep patterns are disturbed. It is best for your adrenals if you are asleep by 10pm (or at least eyes closed and resting) ... and then obviously having uninterrupted sleep is best. I can't tell by your post if you are waking up becuase you don't feel good, if it is for another reason. B12 you could take w/o getting your levels checked and see if it makes any difference. Iron on the other hand can be toxic at high levels so you should get tested if you can before adding that. It can cause constipation so you should look into a kind form the healthfood store that does not do so.

You might be protein deficient too, and that's coming from someone who is vegetarian and hates having folks assume she does not get enough protein. The fruit craving is probably liquid, vitamins, and mostly sugar - the veggie soup...hmmmm...you're making me hungry. Is there some healthy starch you could add, such as sweet potato or potato even, that might give you a bit of a boost? I did not eat potatoes for a couple years (they are nightshades and require calcium to digest and bla bla bla other stuff too) but now do and I immediately had more energy. I guess it was the starch.

One other thing I noticed about your post is that you tend to wake up and then be unable to go back to sleep. For what it's worth, in Chinese medicine they talk about the liver being clogged or overworked if you are able to go to sleep, but not stay asleep. I don't know if you can take a liver cleanser or tonic or anything or if that interests you, but it might be something to think about.

Skylark Collaborator

I was thinking the same thing about the cravings and nutrition. I used to crave fruit too. I would buy smoothies, V-8, and those heavy-duty Odwalla juices at the health food store and I usually felt a little better. Emergen-C was another thing I used to really like. I stopped craving fruit so much when I got onto my heavy duty mulitvitamin/mineral/trace element supplement. It's interesting as I think about it because I've been experimenting with taking less and I came home from Costco with a case of V-8. :lol: (Note to self: back to higher dose of vitamins!)

I bet you need to get on a good multivitamin/mineral. Fruits and veggies have lots of soluble vitamins and trace elements. Solgar makes really good supplements. I also need to take a couple capsules of double-strength fish oil every day to sleep well.

Also, you might want to get your thryoid checked. Lots of us have thyroid problems.

kaki-clam Enthusiast

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?

I have been gluten free for nine months ( I mention this as it isn't much longer than yourself) and have the same problems with sleep. When I do sleep I have terrible scary dreams about people stalking me and/or trying to kill me, which pretty much means that the sleep I get isn't the deep kind that your body needs. My doc just put me on Kava Kava and 5-HTP both to help calm my anxiety and assist in sleeping. I went the sleeping pill route and it didn't work for me...but that doesn't mean you shouldn't give it a shot. Talk to your doc and see what s/he says about the sleep thing...life without sleep has been very rough. I have just started the other things so I will try to remember to let you know how they are working. If you find something that works for you I'd love to hear about it..and worse case...we can stay up all night together chatting :)

anabananakins Explorer

Tiredness could also be vitamin D deficiency. My iron and b12 were fine but my Vit D was terribly low - I scored 2 and he said it should be at least 50, optimum 70 and mine being so low explained why I feel like death warmed up. It puts you at risk of a bunch of awful things so worth getting tested.

RiceGuy Collaborator

I agree with the suggestion of vitamins, especially B12 and other B vitamins. All the suggestions so far seem worth considering.

I find I sleep way better now than I ever could before. Even after being gluten-free for quite awhile, sleep just wasn't something I'd get much of, and what little I got wasn't quality sleep. But since I started taking a sublingual methylcobalamin (active form of B12) tablet, I sleep quite well. I take 5mg about an hour before going to sleep, which seems to make it work even better. I think the sublingual tablet/lozenge type is better than the liquid, because it stays under the tongue far longer, allowing better absorption.

Hope you feel better soon!

sandiz Apprentice

Hi. I don't know how long your Celiac disease was active, but if for any length of time, you are probably deficient in all sorts of vitamins and minerals, which puts a real hurt on your hormonal system and other systems too really. One thing I would look into, if you have not already, are your iron levels and your B12 levels. B12 is absorbed through interacting with stomach acid, and many celiac sufferers have low stomach acid (even if they feel they have an acid stomach). Your adrenals are probably tired, especially if your sleep patterns are disturbed. It is best for your adrenals if you are asleep by 10pm (or at least eyes closed and resting) ... and then obviously having uninterrupted sleep is best. I can't tell by your post if you are waking up becuase you don't feel good, if it is for another reason. B12 you could take w/o getting your levels checked and see if it makes any difference. Iron on the other hand can be toxic at high levels so you should get tested if you can before adding that. It can cause constipation so you should look into a kind form the healthfood store that does not do so.

You might be protein deficient too, and that's coming from someone who is vegetarian and hates having folks assume she does not get enough protein. The fruit craving is probably liquid, vitamins, and mostly sugar - the veggie soup...hmmmm...you're making me hungry. Is there some healthy starch you could add, such as sweet potato or potato even, that might give you a bit of a boost? I did not eat potatoes for a couple years (they are nightshades and require calcium to digest and bla bla bla other stuff too) but now do and I immediately had more energy. I guess it was the starch.

One other thing I noticed about your post is that you tend to wake up and then be unable to go back to sleep. For what it's worth, in Chinese medicine they talk about the liver being clogged or overworked if you are able to go to sleep, but not stay asleep. I don't know if you can take a liver cleanser or tonic or anything or if that interests you, but it might be something to think about.

Thanks you for your post. I was diagnosed with IBS for over 10yrs. I do eat meat every day and starch, potatoe and rice. Canned fruit goes to work with me I have bananas, strawberries, blueberries, melons. Lately it is corn on the cob, being the season for it too, but that is my starch choice as of now. Iron and thyroid checked in Jan and was told everything was fine. I was taking vit D for my SAD in the winter time and thankfully this was the first yr I didn't get too depressed. Yes I have had scary dreams and vivid dreams, but also I wake because I am not feeling good or not go to sleep because I am not feeling good. This also puts a damper on your personal live.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748

    Jane Margaret
    Newest Member
    Jane Margaret
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.