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How Is Celiac Related To Anxiety?


Zeb

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Zeb Rookie

I'm in the process of being checked for Celiac -- waiting for the labs to come back. I have had anxiety issues for many years and have been diagnosed having GAD. I read here on the forum and elsewhere that anxiety and Celiac Disease are like hand-in-glove with each other. Why is that?


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K8ling Enthusiast

Well for me it was the fear of having a reaction in public (we didn't know what was wrong with me yet or how to prevent it) and my baby being left to fend for himself. My husband deploys a lot so there was no safety net with a spouse coming to rescue me/him.

Skylark Collaborator

I haven't seen any convincing research as far as mechanism for the anxiety connection. Vitamin deficiency plays a role in some people, especially B12. Outside of that, all the autoimmune disorders seem to generate some degree of anxiety, fatigue, and depression. Increased anxiety has been demonstrated with lupus, Sjogren's, rheumatoid arthritis, and celiac disease.

Anxiety is one of my signs of being glutened, even after years gluten-free and with good nutritional status.

rain Contributor

I'm on the hunt for information related to how healing works, largely because the intense anxiety I have lived with for many, many years is slowly and steadily lessening as I stay off gluten. I'd really like to understand this better - I feel very different than before and it's a bit daunting. I suspect it's just that it's odd to me to not feel anxious.

Sorry not to have any info, but in my experience the connection between gluten and anxiety is very clear.

BRUMI1968 Collaborator

For me it was light night and day - DAYS off gluten, no more anxiety attacks. Minutes after being glutened, anxiety attacks. The thing with GAD is that it is for no particular reason, right, as opposed to other forms of anxiety? Just for some reason you have anxiety issues: for me, attacks of sweating palms, tingling skin, intense fear, stomach ache, having to poop emergently, etc. It would last between 1 and 20 minutes or so. At some points in life it was so bad I was on valium all the time - low dose permanently.

Anyway, quitting the gluten made me 100% GAD free. As to why - I do now know. It cannot be vitamin/mineral deficiency being overturned in a day or two of quitting gluten - so my guess is that it's a nervous system reaction. The body is so complex, that for us to figure out exact mechanisms for everything is just unreasonable.

One thing I would say is that if you are feeling strange about not feeling the anxiety, that is probably something that talk therapy can help with, if you're open to it. I saw a Jungian counselor for years (he had Celiac, in fact, and is the one who urged me to get tested) and we talked a lot about my health issues as part of my overall coping mechanisms and way of being in the world. It really helped a lot.

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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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